Why Living With A Mental Illness Is Like Having A Full Time Job

When I told my mum and my various therapists that I had got a job for Christmas, the general reaction was “Why on earth have you gone and done that”, and admittedly, upon accepting the job, I felt very much the same. Realistically, I knew that my mental illnesses are currently putting too much of a strain on me to manage a job on top of them, but nevertheless I felt I had to get a job and that there was no choice in the matter. Why? Because of a question I always get asked by people in day to day life: “What do you do?”.

Whenever you meet someone new or see a family member that you haven’t seen for a few years, people tend to ask questions along those lines to find out what you are doing with your life, this often meaning in terms of job or career. It is this question and the moment in which it is asked that I always dread.
You see, pretty much all of my friends have proper jobs and it is generally accepted in society that everyone has a job to show that they are a valuable member of the population, contributing to society and earning money to put into a bank account somewhere to save for a mortgage on a house (what the hell is a mortgage!? How do you make a bank account?! Where do banks keep all the money? Who is in charge of all of this? When did they teach this in school? Why are piggy banks no longer acceptable as a money holding receptacle? Have I been mis-sold PPI?!).

Unlike most of my friends and indeed most people my age however, I do not have a proper job nor have I taken my first step onto the career ladder (I haven’t even found the damn ladder).
The reason for this is because my mental health currently dictates my day to day life and arguably makes a regular job impossible (hence why I have not applied for a regular job in years). This means that every time someone asks me what I am doing with my life I feel incredibly embarrassed and inferior having to say that I am “just trying to work on my mental health”. In essence this is ridiculous as I am well aware that there is no shame in not having a job because you are too unwell and I would never judge anyone else for being in a similar situation. Being ill myself, I know how drastically it can impact one’s routine, but as much as I know that I worry that people who haven’t experienced such things will think I am someone who is lazy or sponging off their parents, someone who should be written about or filmed for a Channel 4 documentary so that the general public can watch and rave on twitter about what a terrible person I am. Luckily I have never had any bad comments myself, but I know for a fact that when people ask my mother what I do and she responds with “Katie can’t work because of mental illness right now”, she has received comments akin to “so what on earth does she DO all day?.
It is as if they think I just tick the box for having a mental disability on all the forms I get for the sake of not having to hold down a job and then lie at home complaining about how bored I am. This could not be further from the truth. I tick that I have a mental disability on all of these forms and then when I go home I am not being bored, I am wrestling with a mass of nastiness in my brain that is trying to kill me, and that in itself is pretty hard work. I always felt like it was equivalent to a job myself, but lately the number of “what do you do” questions has been putting such a pressure on me that I started to wonder whether or not I really was making excuses and was as lazy as I assume everyone thinks I am.

After a week of work though, I have fully learnt the lesson that I feel more people need to learn in society, that being mentally ill is very much like a full time job all in itself (a really rubbish job with no time for a tea break, no pay and no Christmas party. Yeah. You heard me. NO CHRISTMAS PARTY.)
Things that should take minutes just take hours when it comes to me and the time simply goes by without me realising it. Showering can take forever and meal times are at least three hours so some days I may only be able to say “I have eaten three meals and had a shower” in response to “what have you done today?”, which doesn’t sound like much.
In the mind of a sane person that probably conjures up an image of two hours activity at the most with time in between to spare, without realising that really to achieve that is over ten hours work a day, and that doesn’t even include other things I may have to do like go to an appointment, go to the loo or get dressed (all of which are more things that go on for longer in duration than the film Gone with the Wind. God have you seen that movie? IT GOES ON FOR HOURS. I swear it never ends. It has been running in my living room since January 1989 and they are still waffling on. Also for a film with the word “wind” in the title I would like to complain that it is simply not blustery enough. I don’t even think we have had a light breeze yet let alone the gale force tornadoes I was expecting. FALSE ADVERTISING. MOVIE PEOPLE ARE EVIL.)
When viewed like this then, it is easy to see how mental illnesses demolish the time and effort people would usually put into a job, and it is the reason that I am struggling so much with my career as a Christmas temp for six weeks.

I only do five hour shifts five days a week which may not be as much as other people, but in carrying out that job the issue is that I haven’t simply been able to resign from my mental illness one to accept it. Having a real paid job doesn’t mean that I can just stop showering or eating for hours on end, so essentially I am now working two jobs. Considering I never really get free time you may be wondering how on earth I am able to do these two jobs as where can i fit these extra five hours in? As an answer to that I will simply say that rather than resigning from my mental illness job, I have had to resign from the position of “person who sleeps” instead.
Nowadays I work for five hours, then come home and work my usual eating and sleeping routine (I can’t bring myself to eat breakfast before work so I literally am having a working day then coming home and starting with the routine from the beginning with meals like breakfast as if I have just woken up).
If I am lucky and my “day” of trying to eat/stop washing/stop obsessively repeating things like brushing my hair finishes, it is then that I will go to bed. However, by this point it is practically time to start the next day in terms of official work, so after two to three hours I am up and have to get started all over again. I have also had to cancel every therapy appointment I had this week and I really am so exhausted that I have no idea what is going on. I am sort of in that drunken state that you find yourself in when you haven’t had enough sleep and end up staggering about, bumping into things and laughing at the pavement which in your deluded state suddenly seems to be a hilarious invention worthy of much mirth and merriment. It has got to the point where yesterday I genuinely felt a small hole when washing my stomach in the shower and panicked because I thought I had been mortally wounded somehow/was about to see my liver fly/spill onto the floor, before I realised that that “hole” is the belly button that has been chilling in the same place upon my abdomen for the past 24 years. As signs that you are pushing yourself too hard, I think “being scared of your own belly button” is a fairly big one.

I know that in writing this I am going to get comments telling me to quit this job before it gets too out of hand, and to be honest if it was anyone else in this situation I would be saying exactly the same thing. Carrying on with this job until the end of December goes directly against all the advice that I gave in my “tips for managing a job interview blog” (e.g. the whole “don’t push yourself past what is possible and take care of yourself first” idea), yet I am frustratingly one of those silly people who can give very good advice but very seldom follow it. That said, I still stand by all of that advice and can reassure you that there is no way I would be carrying on with this if it were a permanent position. I am not stupid, I KNOW that I could not keep up this level of hectic-ness forever. The way I am managing is by thinking I just have to keep my head down, get on with things for another 6 weeks or so and then I can get back to working only my mental health job. After that I think I will accept that I have thoroughly learnt my lesson and there is no way I will be applying for any more jobs until I am a lot less bonkers.

Nevertheless, as difficult as it is, I still really wanted to write this post as this experience is something that I am learning from, and hopefully they are lessons that, in writing them here will help us all out in the long run. If you can’t work because of your mental illness it doesn’t make you lazy, as you technically have a job getting through every day, it just isn’t one you handed in a CV for yet this doesn’t mean it is any less real. Also I really hope that this helps spread the message to people without experience of mental health problems as to what it means when someone is out of work because they are mentally unwell. It isn’t about laziness, it is simply about having the internal job of fighting your demons that nobody else can see, and if more people realise that then maybe the pressure to perform when you are not up to it will one day subside so other people don’t find themselves in my current pickle.

Now if you don’t mind, I will love you and leave you all with the illustration below, an image that depicts what the movie Gone With The Wind would have looked like had I been the writer/director.  As for me I think it is time to go to sleep. My next shift at work starts in a few hours. Oh good lord…

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5 Tips For Managing A Job Interview When You Have Mental Health Problems

A couple of weeks ago, I had a job interview. Much like most people before an interview, I was terrified, but not exactly for any of the usual reasons for pre-interview nerves. Of course the normal worries like “Am I going to look like an idiot?” “What if I can’t remember my own name?” “What if I can’t answer any of the questions?” were there, yet the leading racers in the anxiety Olympics were all mental health related. My main concerns were things like “Are they going to want to shake hands?” “What if I have a panic attack?” “What if they offer me a biscuit?” and “Is it socially acceptable to go into this interview with a hot water bottle shoved down my trousers?” (admittedly that last one isn’t exactly mental health related but I think we can all agree it isn’t on the list of the most common interview worries…I was just very cold…still, my mother confiscated the hot water bottle because it would make me “look weird”…yeah…I am sure they saw the icicles forming on my chin as totally normal…I’m not bitter at all…)
Prior to the interview then, I had a lot on my mind, and in turn a lot of preparations to make to ensure that I was going to be able to actually get through the interview. This meant that over the course of the experience I learnt a few things, so I thought I would pass them onto you now in case anyone else out there is struggling with the “please hire me by the way I am insane” issue. I can’t say these tips are going to make your job interview a jolly occasion, but in the end, I got the job which the interview was for, so I guess these tips have their uses…

1. Anticipate parts of the interview that are going to cause particular problems: Prior to an interview, there are several things that everyone will think about in preparation. Maybe they will research the company in which they are seeking employment, think about potential questions, or have a google search of the latest updates in the business world so they are prepared for any topic up for discussion. In the same way then, it is important to think about and prepare for any potential events that could be difficult. For example, I was worried about hand shaking, so in preparation I spent the days before the interview anticipating the touching of palms and speaking to people about it to get through some of the anxiety. In practical terms I also found an anti bacterial foam that supposedly lasts for six hours, so I was sure to pack that in order for me to be able to use it before the interview as a sort of protection glove. I then made sure I knew where the nearest bathrooms were for post interview washing. I even prepared how to turn down a biscuit incase one was offered, so anticipate potential mental health hiccups and solve them before they arise. (Thankfully water was the only refreshment offered so I never had to turn down a biscuit…I accepted the water and really wanted to drink it, yet never got a chance because I was too scared of making a slurpy noise. Had it been a job interview for a position as professional slurper I would have drunk the water as fast as I could and been sure to demonstrate all the slurping noises possible but alas, my interviews was not located in an institution that advocated slurping…or hot water bottles stuffed down one’s trousers apparently…)

2. Be realistic: In job interviews, it is sort of an unwritten rule that you say “yes” to everything and worry about consequences later. Can you speak french? Of course you can! You have a french dictionary at home and 24 hours to learn it…what could go wrong? Can you fly? Of course you can! How hard can it be to sprout wings /morph into a sparrow overnight (from experience I can assure you that is VERY hard indeed). As great as it is to say whatever you can to get the job though, it is important to be realistic and not agree to things that your mental health is going to make impossible and that you are consequently going to go home fretting about. If you have social anxiety and can’t speak publicly to a crowd of thousands, do not agree to do so and then regret it later. If there are things you are not going to be able to do, let the people know right away to avoid getting into a difficult situation further down the line. Yes it will be awkward and maybe you won’t get the job if there is a key part of it that your mental health makes impossible, but then again if that is the case, maybe that job isn’t the one for you. In terms of being realistic about actions you can perform, it is also important to be realistic concerning what you can manage when it comes to hours. Accepting a job 24 hours a day 7 days a week when you know it will overwhelm you, interfere with medical appointments and leave you no time to take care of yourself, is never a good idea. Getting the job is important, but taking care of your needs is vital as without looking after yourself you wont be able to perform at work and getting the job will not be a success you can celebrate for long. I for example know that there are multiple aspects to this job that are going to be extremely challenging and on the surface, if I am honest with myself, the hours are more than I think I can realistically handle. However, I made sure only to apply for a Christmas job for 6 weeks so that if I get overwhelmed/it is detrimental, there is at least an end goal in sight.

3. Get there early: Everyone knows you should get to a job interview early purely because being late is not the best way to promote the “great time keeping skills” you bragged about in your CV. Nevertheless, with mental health problems I would always advise not just getting there early enough to ensure you are on time and make a good impression, but getting there super early to allow for potential disaster/to allow you to remove the hot water bottle shoved down your trousers. Obviously you can’t plan what your brain is going to do in advance and it would be unrealistic to decide that you are going to schedule a panic attack for 11:15 so you have time to calm down in time for the interview, but if there is a risk of that kind of thing happening, get there with the time such an event would take spare. If you often have panic attacks, get to the interview with enough time to have one. Even if you don’t have panic attacks but suffer with anxiety, still get there early just to allow yourself to gather your thoughts and carry out any coping mechanisms like listening to a certain song or practicing mindfulness if needed.

4. Do not take rejection personally: One thing I really struggle with when it comes to job interviews/anything in life, is the fact that I take rejection extremely personally. My main worries about not getting the job weren’t about not getting the job in itself, rather they were worries about the effect it would have on my self esteem. For example I know that getting rejected from roles in school plays/not performing as well as I wanted in a test, has always led to difficulties with self harm, self hatred and general feelings of “everyone hates me and this is a sign that they don’t want me to be alive anymore because I am so terrible”. Before you go for the job interview then, try not to build it up to be this majorly important thing on which your value as a person and entire future happiness depends. Don’t see it as something on which your life rests, as ultimately no job is worth that. Maybe even write out some bullet points in case rejection does come to remind you of the rational facts in the situation. When the rejection comes it is likely your thoughts will spiral into the irrational emotional side of the brain so get your pre-rejection rational thoughts in order first. If you don’t get a job it doesn’t mean you are a terrible person/rubbish at everything/doomed to fail in life. It likely means that there were a hell of a lot of applicants and even if you were more than skilled enough, perhaps you just weren’t right for the role or someone else was better suited. If you are a doughnut maker and don’t get a job as a doughnut advocacy speaker it doesn’t mean you don’t make good doughnuts. It might just mean that you were up against a talking doughnut, and lets be real, who is better to speak for doughnut advocacy than a talking doughnut? Nobody, thats who.

5. Be honest: This is the final tip I have to offer but it is also THE most important. When I used to be preparing for interviews I would debate whether or not to tell the potential employer about my mental health problems/how much to say. I always wanted to hide it incase my mental health would stand in my way, yet ultimately that just meant that by hiding my difficulties I made life more difficult for everyone involved. Eventually the truth would always come out, and it would have been a hell of a lot better simply to be honest in the first place. If your mental health affects your life in terms of abilities or availability, let the employer know. Otherwise you will find yourself lying about reasons you need a day off to go to an appointment and having to invent mythical physical diseases to request time off work when really you are having a mental health crisis. For the past few years I have even put my mental health problems somewhere on my CV or within any applications so that everyone is on the same page before I even get an interview. This then makes it easier to talk about in the interview and by being honest both I and the employer can see if the job will be possible/work out ways to make it possible. When I worked in a coffee shop I was open about my fear of touching the hoover and thus allowed to use it whilst wearing rubber gloves saving me a lot of anxiety and excuses to get out of having to use a hoover. Again, like the tip about being realistic, there is always a chance that being honest will affect your chances of getting the job, but if it affects your life so much that it will inevitably cause problems at work, again, maybe that is a job you shouldn’t be applying for.

So there you have it! My top tips for managing job interviews with mental health problems. Now of course I have the mission of managing the actual job itself… To be honest I haven’t figured out how to manage that bit yet, but I guess that is something I will learn along the way. If my experience over these next few weeks does teach me anything about mental health in the workplace though, I will be sure to pass on any helpful lessons to you later.

Take care everyone and good luck with any potential job opportunities. YOU CAN DO IT!

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Mind Media Awards 2016

Have you ever wanted to know what it is like to go to the Mind Media Awards? Yes? Well today is your lucky day!…Actually it isn’t…I wanted it to be…and I tried to film my experience there to share with you all…but I didn’t do a very good job…so…this isn’t a great advert is it…damn it just watch the video…

6 Tips For Managing Public Transport When You Have Mental Health Problems

As you read these words I will hopefully be hot footing my way to London. I say hopefully because, as the idea is so terrifying, I cannot be sure I will go through with the journey (I am writing this a week in advance. Call me Mr Organised. Actually don’t, make that Señor Organised…has a bit more of a flourish don’t you think?).
Going to London/leaving the house at all is scary for a multitude of reasons such as managing food, being in unfamiliar environments with uncontrolled levels of bacteria, generally being around people, but one of the top scary things on the list of ultimate London scariness (it is a very long list), is the fact I will have to use public transport, and I am pretty sure that will be on many peoples’ lists of scary things about leaving the house.
Therefore, today I thought I would write this blog post to help anyone out there who is overwhelmed with terror at the mere thought of bumbling along on a bus or trundling track via a train. I can’t say these are the best ways to manage public transport anxiety issues, but they are at least the tips I will be using to get me through…if I manage to leave the house to get to the public transport stage that is…All aboard the mental health travel tip train! Here we go!

1. Make alternative routes: If there is one thing you can rely on when it comes to public transport, it is the fact that it will be unreliable. Buses break down, flights have to stay grounded because it is cloudy and I am yet to have a train journey which hasn’t started with a good half hour wander up and down the platform listening to the woman on the tannoy tell me that my train is delayed in a frustratingly calm voice (she always says she is sorry to announce the delay but if you ask me she doesn’t sound sorry at all. HOW DOES SHE SLEEP AT NIGHT?). I once even had a train cancelled with the explanation that there were “slippery leaves”…That’s right, slippery leaves. Not even going to try and make a sarcastic joke about that. I think the phrase “slippery leaves” makes the point. Anyway, due to multiple reasons much like the aforementioned soggy foliage, it is likely that any route you plan to take will be interrupted. This is enough to make anyone frustrated, but when you are already anxious and stressed it can feel like the end of the world and make you run back to your home wondering why you ever bothered leaving the front door. For this reason it is always vital to have an alternative route to fall back on incase any slippery leaves rear their ugly heads to get in your way.

2. Customise your route: When trying to look up directions, pretty much all of us will turn to the internet (dear young readers, did you know that maps actually used to be things you could find on paper rather than apps on your phone with floating blue dots. They called these maps “The A-Z”. They were marvellous things, I really wish you could have seen them), and when you look up directions on the internet it will often tell you what it thinks is the easiest route. However, this “easiest” route is the route judged as easiest by a computer, it is a purely rational decision and unlikely to fit with what is “easiest” for the irrational fears in your head. Of course we must all push ourselves and challenge our mental illnesses lest they control every aspect of our lives and sometimes there is only one way to get from A to B. Nevertheless if there are options on a journey that may not be the quickest route on paper but that will help you manage anxiety better, go with them. Walking a few streets along may take longer than hopping on the London underground, but if the tube is likely to cause a paralysing panic attack in the end, walking may actually save time and a hell of a lot of stress.

3. Do not rely on the internet: Another thing in life that can be as unreliable as the number 44 bus is internet signal. It is all well and good to entrust your travel plans into the route calculating hands of an online computer but if you find yourself in the middle of nowhere with no internet, Siri is going to be of little use in helping you out of that predicament. Even if you do have signal, phones and other pieces of technology are always at risk of running out of battery (especially if you have spent too much time playing Pokemon go…ahem), so regardless as to whether you found your route online, make sure you take a paper copy. Paper doesn’t require signal and paper does not run out of battery leaving you in an anxious heap. In short paper is awesome, so don’t forget to use it.

4. Listen to audiobooks: When on a train or a bus I often find my anxious thoughts speeding around my mind faster than the mode of transport I am riding, so fast that they are little more than a blur that I cannot decipher. Every bump in the road is a potential earthquake to my terrified brain, every new passenger a potential murderer, and for this reason when anxious on public transport it is vital to have distractions. A lot of people listen to music in order to help soothe them and if you are one of those people then make sure any journey out of the house involves earphones to listen to your favourite tunes. Personally though I struggle with listening to music on public transport, as when you put music on shuffle it can be unhelpfully unpredictable. It is all well and good to be on the bus nodding your head to a relaxing ballad from Adele but seconds later you can find yourself being bashed about the ears with the drums of heavy rock which is not relaxing at all. For this reason then, I often listen to audiobooks which I find are a lot easier to get lost and calmed by, so I thoroughly recommend them as a distraction technique (especially Harry Potter books on trains. That way you get the dulcet tones of Stephen Fry and you can pretend you are on the Hogwarts express as you listen).

5. Buy tickets in advance and get money ready: To buy tickets you need to queue. Queuing is stressful. People with anxiety and mental health problems do not need added stress. The solution? AVOID QUEUING (by booking tickets in advance at quiet “non rush hour” times or online, not by whacking everyone else in the queue out of the way with your hand bag.) Personally when it comes to buying tickets I also find touching money to be a challenge, so if you also struggle with this may I suggest getting your fare ready prior to the moment some ticket officer asks for it so that you do not have to suffer the money touching stress with the “oh my goodness I cannot find the right change why is my purse full of pennies people are staring at me” stress. When I prepare a bus fare in advance I always like to antibacterialise it and then keep it in a separate pocket to lower anxiety further. It isn’t ideal in terms of trying to fight things like OCD, but if needs must, in my eyes it is better to do whatever you need to to get out of the house.

6. Give yourself time and plan every step that is difficult: The final thing that I would say makes travel difficult is the general panic and hysteria I find myself getting into when I am in a rush/under a strict time limit. For this reason to reduce anxiety I always leave a lot longer for my journey than might otherwise be necessary AND I plan in travel breaks whenever I need them. It makes more sense to hop from train to bus to train and on again until you reach your destination, but incase the anxiety gets too much it is important to plan pit stops to release some tension and take a break from all the mania. Personally, with planning breaks I also like to plan toilet breaks because the idea of an unplanned unexpected public toilet experience freaks me out, so if it scares you too, maybe find loos along your journey that would be easiest and fit them round your ticket times.

So there you have it! The six tips that I use to help me get through the fear of public transport and the six tips I will hopefully be carrying out right now on the way to London (like I said it is a week in advance but already I have planned every safe toilet along the journey. PREPARATION IS KEY.).
Of course they won’t take the fear of public transport away, but hopefully they will make it a little easier or at least doable.
I wish you all safety and relaxation during any upcoming travels and promise to keep my fingers crossed that you are never faced with the horror film inspiring added obstacle of “slippery leaves”.

Take care everyone x

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Why Halloween Can Be Difficult For People With Mental Health Problems

When I was five years old, I used to get so frightened at the prospect of people turning up to my house in costumes on Halloween, that my mum would have to take me out of the house and drive me around our neighbourhood with a jumper wrapped round my head so that I couldn’t see the hoards of trick or treaters passing by. I am now twenty four years old and a lot of things about me have changed (for example I can now tie my shoes and tell the time unlike my five year old past self), but my terror towards and unusual way of spending the pumpkin laden holiday of Halloween is still very much the same.

It probably sounds ridiculous to admit that when I am of course aware that a lot of the ghosts you see dragging their chains at Halloween are actually kids with bedsheets thrown over their heads as apposed to genuine supernatural beings. It is after all fairly easy to distinguish the two simply by checking to see if the creature in question is carrying a bucket of sweets (kids wearing old bed sheets tend to be more interested in seeking candy than seeking revenge, unlike the true ghostly counterparts on which they base their fashion choices). However my issues with Halloween are not because I am convinced that the trick or treaters appearing at my door are real monsters, but are due to a hell of a lot of mental health fears and stress that I am sure a lot of other people struggle with as well. So, if you have ever wondered how Halloween feels when you have mental health problems, sit back and rest assured, for I am here to tell you all about it…

Let us begin with trick or treaters. When you have problems with anxiety it is likely you will be anxious about a lot of things (ground breaking information right there I know), and with social anxiety these things are likely to involve pieces of general daily interaction like answering the phone or the front door. I know that for me, hearing the sound of the doorbell or the ringing of a telephone sends shivers down my spine/causes me to leap under the nearest blanket and clamp my hands around my ears until the noise stops and the person goes away…and that is when I am expecting a call from a friend. Indeed, I have been known to ask visiting chums to text me when they enter my road and then a second time to say when they have reached the door step.The vibration of my phone to signal the receiving of a text scares me too, but it is far better than the alternative hellish chimes of the doorbell. As you can imagine then, when the people turning up at the door are unexpected strangers, the anxiety is even more intense.

That is bad enough when it is general unexpected strangers, say a postman dropping off a parcel or a window cleaner asking to be paid, but on Halloween it is even worse because the strangers I am already in fear of are wearing goblin masks designed to make them look all the more terrifying!Some may even be dressed to look like the Grim Reaper or be carrying fake blood soaked foam axes to create the impression that they are a murderer on the loose, which, when you live in fear of terrible things happening on a day to day basis is a sight that will do little to calm any stresses already spiralling in your neurotic anxiety riddled brain.

It isn’t even as if you can just decide not to answer the door to avoid the unexpected goblin visitors, because if you ignore them they will threaten to throw eggs at your door! Who the hell came up with that idea as a means of celebrating a holiday that originated as a way to honour the dead? Which dead people have ever said that they wish for that to be the way in which they are remembered?
I know that it is all supposed to be “just for fun”, but I certainly don’t enjoy an evening of people turning up in horrifying attire, demanding I choose between the options of providing them with sweets or having my abode bombarded by the unfertilised albumen/vitellus of low flying poultry. That isn’t a choice! I don’t like either of those options! Whatever happened to the joy found in socialising with friends and celebrating any occasion over a cup of tea or a game of snakes and ladders?
Then again, even if you decide to brave opening the door despite the potential terror lurking on the other side and give your tormentors the sugary treats they require, you have the added stress of actually having to buy the candy, yet another nightmare for multiple anxiety related illnesses, most of all eating disorders.
Everyone knows that people with eating disorders often fear eating food themselves but for some, even walking into a supermarket to buy it in the first place is a difficulty. Personally, I know anorexia makes it hard for me to buy tins of chocolate or biscuits for presents at Christmas even though I am aware that I don’t have to eat them, and I have several friends who find that things you would potentially buy for trick or treaters are “triggers” which they would usually avoid having in the house. For some, there may be certain foods that they know they are likely to binge and/or purge on, so obviously it is easier to keep them on the supermarket shelves out of harm’s way and not in the next room, much like someone giving up alcohol rids the house of bottles in an attempt to remove temptation. If therefore, you have an eating disorder and this is the case, Halloween is a night where you either have to buy products that you know will potentially send you on an out of control rampage back home, or avoid the products and spend the evening scraping egg yolks out of your letter box.

Reading back all that I have just written, it is pretty easy to see how Halloween can be an utter nightmare for people with various anxiety laden mental health problems, and here I have only touched on the dread that comes with trick or treaters, which really is a small part of Halloween on the whole. I haven’t even mentioned the serious potentially frightening situations like Halloween parties, other social gatherings with people disguised as intimidating warlocks and of course the most petrifying festive activity…apple bobbing (cue dramatic lightening, crash of cymbals and the high pitched cackle of a hyperactive banshee).

If then like me, you have a mental health problem that sends you into a state on Halloween, my advice for managing this evening would be to try to hang out with friends or family who are not dressed to look like the Grim reaper, to distract you and help with any goblin like visitors. Either that or of course there is the option of hiding under a blanket with your hands over your ears waiting for the day to be over/getting a friend to drive you around the neighbourhood away from any doorbells with a jumper tied around your head. Remember, it is just one night of the year and if things really are terrible I hope this post has let you know that you are not alone in feeling scared of a holiday everyone else seems to look forward to. I am not sure how knowing that I am also terrified will help much when the doorbell rings and you are faced with the “say hello to a masked creature or clean eggs from windows tomorrow” dilemma, but I guess it is always nice to know that you are not alone and to have the knowledge that someone out there understands. Also if you don’t have mental health problems and none of these things are relatable, I hope I have at least answered any questions you may have wondered on in life about what it is like to have mental health problems on October 31st.
I hope you all have a fabulous/as anxiety free evening as possible. Happy Halloween!

halloweenpost

 

An Explanation Of Invisible OCD Rituals

When most people imagine someone with OCD carrying out a ritual, they probably picture them visually carrying the ritual out in the “real world”. Maybe some will picture a person repeatedly tapping a light switch, arranging books or washing their hands, but it is unlikely that the person pictured will simply be standing there with no obvious signs of ritualistic activity.
However, many people with OCD actually have rituals that can be carried out invisibly, and this is a side to OCD that I feel needs more discussion/awareness raised, partly to help others understand the condition better, but partly to help sufferers who do not realise that what they are experiencing is actually a form of OCD that can be treated.

Now I have started to write this blog post I have realised just how hard trying to explain a mental ritual is to people who may not have had them themselves (damn it past Katie why did you have this as an idea for a blog).
If trying to give a rough idea in terms of my OCD though, my personal thought rituals generally involve things like compulsively picturing certain events or people, thinking the same words a certain number of times, having to remember something in exact detail or ritualistic blinking (which I suppose isn’t really a thought ritual as if you know what I am doing you can physically see it, but in most circumstances people don’t notice and thus I count it as one of the lesser known invisible sides to the illness. Even when people do notice I am fairly good at covering it up anyway. You would not believe the number of times people have asked if I am ok because I am flapping my eyelids like the wings of a hummingbird and I have had to pretend I had an eyelash. I used to feel very bad saying this as I don’t like lying, but recently the guilt has gone as I realised that it isn’t actually a lie. It is indeed a true fact that I have eyelashes…just not in the specific eye location implied by my blinking…God this is a long set of brackets…sorry about that…I will close them now…actually wait…no it is ok that was all I had to say about blinking…today at least).

Some of these thought rituals mentioned above are fairly straightforward, as in the “repeating a certain thought over and over”. Okay it can take a long time but it is easy to understand and explain to professionals as a symptom. This is not however the case with all thought rituals, and in order to give some impression of just how complex they can become, I thought I would explain a specifically long and complicated one of mine (if you are able to follow this next bit and gain any sense from it then congratulations, you are a genius, please apply to Mensa immediately).

So, probably the most complex of my rituals is one that I carry out every night before I go to sleep in order to “keep my friends and family safe” (though I am of course aware that rationally there is no way that my thoughts prior to the land of nod are capable of such safeguarding. Nevertheless I still carry them out every evening without fail…GAH!)

The start of the ritual involves picturing a long mantlepiece (it is made of high quality mahogany in case you are interested), and it is lined with photo frames, each one containing the face of a loved one that I wish to protect. Over the years the photos of the people in these frames have changed as people have come and gone from my life, but it is rare that a picture is removed and more common for an extra one to randomly appear when someone becomes particularly special to me (bear in mind this is a very long mantlepiece that can hold an infinite number of frames. It is a nightmare to dust.)
Once all the pictures are imagined in their neat little line, the next step is to imagine a paintbrush with green paint on the end drawing a tick over the face of each person to confirm them as safe, much like an attendance sheet register thing that you have in school. What must not happen is that I picture a red cross being painted over each face. It sounds easy enough, after all they are my thoughts so surely I can think what I want (ha!), but it is very much like that trick when people ask you to imagine a scenario and not to imagine a white elephant, a statement after which you can think of little other than a trunked creature looming in the forefront of your mind. Once the green tick is imagined on the person’s face I then have to move on to the next picture and so on until all of the faces are adorned with a flourish of bright jade acrylic. However, if during this process one of the pictures goes wrong (aka they get a red cross), then I have to start the entire thing again from photo one. Even if I finally manage a line of perfect ticks though, the ritual is not over, as then I have to imagine staring at all these approved photographs for 100 counts without imagining a gust of wind blowing any of the pictures over which is incredibly stressful as if such a wind occurs I have to whip out the paint brush and start all over again. That little explanation from the painting of the green ticks is step ONE of this thought ritual.
There are ten steps overall. TEN.

Rest assured, I will not elaborate on the next nine steps as I fear I would be here all day. No matter what step I get to however, if there are any mistakes I am sent back to step one and hopefully this explains somewhat the difficulty, complexity and time consuming nature of rituals that may not be visible like those in which I wash my hands multiple times. I realise it probably sounds a bit weird to say that I get stressed and upset over imaginary breezes blowing imaginary photo frames off an imaginary mantlepiece, but if those breezes come and if those pictures fall then I fear I will put everyone I have ever loved in danger due to my negligence, an understandably scary thought for anyone.

You are probably wondering how on earth I concocted such ridiculously long mental routines, yet if you were to ask me how they appeared I honestly couldn’t tell you. They didn’t exactly appear overnight, rather they developed over time in a gradual process I cannot remember the beginning of. That said, if I had to pin the origin of my mental rituals it would probably be my first hospital admission to a psychiatric unit over ten years ago. With most people, OCD tends to evolve and morph over time as the person’s life and situation changes and it is often a dramatic change in environment or situation (like suddenly being inpatient in hospital), that can cause rituals to flick on stealth mode and turn invisible. Before my first hospital admission, all of my rituals were visible and involved things like showering for hours on end or repeatedly washing my hands. In hospital however, none of these rituals were possible as I was physically locked out of my bathroom and had to ask for permission each time I needed to use it, at which point I would be supervised and stopped from engaging in any behaviours. Now, on the surface, you would think this cured the problem. True, I was no longer showering for hours every day, but that wasn’t because I didn’t have OCD anymore, it was because I was physically incapable of getting to the shower despite best efforts (turns out I am rubbish at picking locks/kicking down doors of psychiatric unit shower rooms. I would make a poor criminal.)
By being physically locked away from the equipment needed to do my usual rituals then, my rituals changed and adapted. The OCD was too strong to just disappear at the first hurdle in the road and instead my compulsive behaviours became located in areas nobody could lock me out of, areas nobody could bar my access too, those areas being found in my own head (just left of imagination next to the frontal lobe to be specific).

The reason this invisible kind of thought ritual OCD is less talked about than its more apparent variants is probably because of how difficult it is to explain (let alone understand…seriously if you are following this get on that Mensa thing). Nevertheless, difficult or not I think it is a really important topic to raise awareness of as like I said near the start, some people may be suffering from OCD in this way and not really aware of it. I have been in treatment for years so when aspects of my OCD became internal I knew immediately what it was, yet I am sure there will be people out there struggling who never knew that this was a thing. Perhaps there are people out there silently suffering, in distress as they find themselves having to paint ticks and avoid imaginary gales without having any idea of why or how to stop it. Had I no knowledge of OCD and were I experiencing such things there is a good chance I wouldn’t tell anyone because even I can admit that thought rituals sound a bit “crazy” and are not something you would want to bring up voluntarily or admit to, especially if you didn’t know anyone else felt the same. Maybe people with thought rituals don’t even realise it is OCD because they think OCD is washing, and it is for those people (as well as any other lovely people reading this of course) that I have written this post.

If you are struggling with compulsively carrying out intricate thought patterns that cause distress if not performed correctly, you certainly are not alone and it doesn’t mean you are crazy. Obviously I cannot diagnose anyone online, but if you relate to this post there is a good chance that what you are struggling with is an invisible form of OCD. That probably sounds scary if you haven’t ever considered yourself as a person with mental illness in need of therapy, but hopefully it will provide some comfort knowing that your struggles are part of an illness that can be treated. It is not something to be suffered in silence even if your routines are performed in such a manner and I would urge anyone out there relating to this to go to the GP and ask for help. If they have any awareness of mental health issues they will NOT think you are “weird”, they will understand that this is a common issue for OCD sufferers and hopefully by speaking out you will be able to get the help you need. Also if there are any GPs out there or students training in medicine, maybe this post could help you identify these symptoms and help someone in the future. Either way I really think invisible thought OCD rituals need more discussion. The more we are aware of OCD, the more we can understand and most importantly of all, defeat it.

Take care everyone x

mantlepiece

Born Without Marbles Is Now On YouTube!

What is this? A born without marbles post on a Friday? What is going on? I thought they only came on Mondays? Someone contact the BBC and get Fiona Bruce to report this (actually don’t bother. I already contacted them. They weren’t interested). No, this is not actually the usual Monday blog post, it is in fact an announcement to let you all know that Born Without Marbles is now not just on my website…IT IS NOW ON YOUTUBE AS WELL! Are you thrilled? Now you can hear me waffle as well as read about it every Monday! Bless this happy happy day! Anyway, this is just to let everyone know that the channel is there so feel free to take a gander and subscribe if you fancy (and by if you fancy I mean please subscribe even if you don’t fancy. Trust me, All the cool kids are doing it so it must be a good idea). I won’t post on here every time I upload a video (unless that wouldn’t be annoying/you wouldn’t mind), so be sure to check on the Youtubes for my face whenever you can.

Hope you are all having a marvellous day, take care everyone x