It’s that time of the month again folks…PREPARE THE MUGS
Mental
Are People With Mental Health Problems “Really Disabled”?
If you live in the UK and follow the news when it comes to anything mental health related, you will probably be aware of a certain Tory MP named George Freeman (not the guy who made grills. That was George Forman. He was so proud of his grills that he put his name on them don’t you know). Anyway, this Freeman bloke has been in the news a lot this past week, due to his recent comments regarding the rights of people with mental health problems claiming benefits.
Initially I wasn’t going to make a post about this, as thankfully a lot of people were angered by what he said on the issue, and therefore there have been many posts on the internet addressing why his opinions are so misguided. Having read a few of these posts I couldn’t help but think “well I don’t need to say anything about it because at least one other person has said it for me”, but then I realised that when a crowd of voices chant the same thing, it is a hell of a lot louder than any noise made by a single individual (unless that individual is armed with a giant and extremely powerful microphone…Alas, such things are often reserved for people with power who have no idea what they are talking about…ahem…)
I also wasn’t going to post about it because since his damaging comment, our old buddy George (again, not the one with the grills), has retracted all of the nonsense he has been spouting. Maybe then I should forgive the poor chap, as clearly he regrets his statements (or just realised that everybody hated him for being such an idiot and thus backed down on opinions he was so passionate about, to avoid being glared at in the streets…I guess we will never know…).
However the damaging comments made by Mr Freeman are unfortunately not anything new, nor any revelatory belief shared by nobody else before him. They are comments that a lot of the public have probably felt and said in private themselves, it’s just those people didn’t have the microphones allowing everyone to hear. So I am writing this as much for them as it is for my buddy George (starting to wish I was referring to the other George as my buddy now…I could use a free grill.)
So what are these comments that have outraged so many and that are damaging to society’s view of those who suffer from mental health problems? Well, they are about people who are unable to work due to mental health problems claiming benefits, and how their payments should be stopped in order to save the money for the “really disabled”.
It is funny actually that this has come up at this time as it was just last week before this controversy started, that I filled out a form applying for benefits myself. For years therapists have encouraged me to fill out these forms and claim what they thought I was entitled to, yet I have always refused because even though I knew they were right, the thought of officially asking for support for being disabled made me feel incredibly guilty. I think over the years you cannot help but internalise some of the stigma lying around these days, just as if you tell someone enough times that they have a big nose they will eventually start to believe you even if their nose is the tiniest nose of all time.
Though I have always been aware of my inability to work, I have still felt an internal judgement and feel that maybe I am just being silly and that I am not “really disabled”.
A wheelchair user may not be able to open a door that is at the top of a flight of stairs because they are physically unable to walk. I however am physically able to walk up those stairs, yet still I am also unable to open that door. Physically I could, yet still, mentally, the fear is so strong that I can’t. Really the brain shouldn’t be viewed as any less “real” than your average limb as technically the organ of the brain is a physical part of the body as much as a leg is. Still I suppose it is a lot harder to remember that when it is hidden behind a thick skull and an “I am OK” mask, unlike a broken leg which is far more visible. If you can see a giant green face claiming to be the Wizard of Oz, it is infinitely easier to believe in that reality over the invisible little man controlling the illusion behind it (if your name is Dorothy at least. I saw through that Wizard all along. Dorothy was silly…and her little dog was too!).
This being the case then, my brain often being the cause of my inability to perform basic actions like feeding myself or opening doors, how is that not disabled? I don’t claim to be an expert in the English Language (although I did study english literature and I read Moby Dick which is a HUGE book with a lot of long words), but when you look at the definition of the term “disabled”, I think that it makes clear that George and those agreeing with his views do not really understand what the word means, hence their belief that someone with mental health problems is not “really disabled”. When you look it up, the dictionary states that to be disabled means to be a person who has a “physical or mental condition that limits their movements, senses or activities. So lets examine this:
1. Do I have a mental condition – Yes
2. Do these conditions limit my movements – Yes. I cannot open doors or move around in public without an aid supporting me through the anxiety, much like a wheelchair user may struggle to be mobile without their aid, aka the chair.
3. Do these conditions limit my activities – Considering I am often able to leave the house/partake in normal life, yes.
Yet according to certain MPs, I am not “really disabled”? I am sorry George, are you arguing with the dictionary? I totally support your right to free speech but are you sure you want to do that? It is a really big book (even bigger than Moby Dick), and if you start arguing with a dictionary then all the words in your argument technically lose all meaning and thus you will be making no sense…are you sure you want to do that George? Gibbering nonsense to a book would look awfully weird…people may start to think you were mentally ill!
If people without mental health problems are not “really disabled” then what are we? Just playing some sick game of dress up like I pretended to be a vet with my very own stethoscope when I was younger and made it my business to treat all of my teddy bears (rest assured, I may have been pretending then but I was very skilled and all my patients made full recoveries).
Tell me then, if I am unable to leave the house or touch things in public and spend most of my time fighting demons, a pastime that leaves me utterly exhausted and often a bit soggy with tears, what job would you recommend I try? What job would I be able to do effectively on the days that I am so depressed and suicidal that I cannot leave my house let alone contribute to society? Any ideas? The only job I could think of would be that of performer in a freak show, where people could come to my house and pay to see the hysterical sobbing mess in the corner who is so deluded they fear eating with a knife or fork. Is that what you want? (Even if that is the plan I would still need benefits anyway…If I have to be in a freak show I at least need a sequinned leotard. THOSE THINGS DON’T COME CHEAP FREEMAN.)
In a way, I suppose George being so vocal with his misguided opinions could turn out to be a good thing. Like I said, I am sure that he is by no means the only person who feels this way about people with mental health problems receiving benefits, and by speaking out about it, it has given us crazy folk an opportunity to respond publicly and tackle the stigma that before now has existed only in people’s homes behind closed doors. People make these statements all the time and are never challenged, yet now the words are out in the open, we have a public platform on which we can talk back and educate those who may not understand how debilitating mental health problems can be. Maybe we can use this as an opportunity to do good.
So here I am, standing on my public internet platform speaking into my megaphone as someone with mental health problems and for others with mental health problems. To Mr Freeman and all of his supporters, I have one thing to say.
*STEPS UP TO MEGAPHONE*
“As sufferers of mental health problems, I will admit that our disabilities may be invisible, but our struggles are real. The pain in our heads is real. Nobody is pretending, nobody is playing games and we honestly are, “really disabled”.
*DROPS MEGAPHONE AND STORMS OFF PUBLIC PLATFORM LIKE A BOSS*
Take care everyone x
My New Diagnosis
For well over a decade, and since my very first therapy session many moons ago, (aka JUST after the dinosaurs died out and at the time when there were Tyrannosaurus Rex bones still lying about EVERYWHERE after that rather inconvenient meteor), therapists and psychologists across the country have always said that there is “something” wrong with me. Obviously they have always known about my OCD, Eating Disorder and Depression, yet still many have insisted that there is “something else” lurking within me and playing general havoc with my brain.
I have always found this “something wrong” that nobody can put their finger on, (or any body part for that matter), to be rather confusing.
When I was 15 the it was banded about that this “thing” might be bipolar disorder, but after trial and error with a few medications, that suggestion was tidied away as well as all the others and I have tried my best to forget about it. I was doing pretty well with this forgetting thing in my opinion (I had placed the “there is something wrong with you that we do not understand” memory alongside Pythagorus’ theorem in the box of “things I no longer need to know after the age of 16”), but then my forgetting box was rudely ripped open again very recently.
If you have been following this blog for a while you may remember that I had an assessment with a new OCD service in October of last year, a three hour interrogation examining all of my mental health problems and experiences of the world throughout my life. I mentioned nothing of any extra “bonus” diagnosis that nobody was sure of, so for this reason I was surprised when the psychologist I was speaking to randomly asked if I had any other diagnoses, as yet again I was showing signs of this “something else”, that something possibly being a “personality disorder”. I didn’t mention this when I had the assessment all those months ago because I imagined it would go away like all those other conversations of mysterious mental health problems in the past.
When I was told that the OCD service may not be able to facilitate my care if I had a personality disorder and I may need to see another service first however, I was unable to forget it again and became increasingly frustrated. Here I was potentially having issues with receiving treatment because of a mysterious something that I wasn’t even diagnosed with, and it was at that point that I knew I needed answers.
Like I said in my “why I like being diagnosed with mental health problems” blog post a few weeks ago, I like having the labels and diagnoses of my conditions in black and white because it helps me to deal with them and means I know what enemy I should be fighting. If you want a full understanding of why I like being diagnosed with (NOT HAVING) mental health problems, then I fully recommend checking that post out before this one (Why I Like Being Diagnosed With Mental Health Problems – it really is a great read. Trust me it involves a picture of a monkey banging a gong and singing Bohemian Rhapsody), but as a brief summary for all those with an aversion to classic song performing primates, my argument was that I like being diagnosed with mental health problems because it is only when you name a problem and pin it down that you can figure out how to overcome it. It is useless for a person working in a garage to simply say “there is something wrong with your car” because then they can’t fix it. They need to specifically identify the issue that there is a gaping hole in the front tyre, as only when they know that, do they know where they start tinkering and what equipment they will need.
Consequently, after my OCD assessment, I went to each of the three therapists I see in turn and asked them to tell me if there was something wrong and if so, what the hell it was. I can’t remember who first brought it up, but rather quickly a condition (we will call it Penguin condition for the time being), was suggested as the answer to all the questions I have had over the years. From that suggestion I had many appointments discussing the condition and as instructed, I researched it, learnt about it, and I watched a DVD given to me by a therapist, of various people being interviewed about their experience of Penguin condition.
Of course I didn’t relate to every single person on the DVD nor did I agree with some of the explanations of Penguin condition online, but on the whole, when learning about it, something clicked. As I heard people talking about what it was like I was astonished to hear them basically describing things I do/have experienced in life, and although scared and not eager to add a new diagnosis to my list, I was at least a little relieved. Finally I wasn’t just “weird”, I had Penguin condition and maybe if I started dealing with it, things would improve across the board. Perhaps the underlying issue of Penguin condition was the reason for the OCD and eating disorder, perhaps none of the treatment has cured me yet because we were actually treating the wrong parts first, like trying to eat the chunks of brownie at the bottom of a sundae glass before you have tackled the ice cream piled on top of it (ALWAYS SAVE THE BROWNIE BITS FOR LAST. ALWAYS. THAT IS THE RULE. ICE CREAM FIRST, BROWNIES LATER).
For this reason I became eager for the diagnosis to be put in place so that I could finally know where I stood. As well as answering my need for answers I also wanted it made official so that future therapists or medical professionals would know the full story if ever reading my notes, without me having to always add into new introductions the explanatory “I know you have read my notes but just so you know Penguin disorder is also on there but it is not written down”. I wanted it in black and white to be neat, to be clear, and partly because when things are in black and white, they look a little more like a penguin without the beak.
Then, a few weeks ago, I had a session with my psychiatrist and it was decided that we would make it official and the diagnosis would go on my records. At first I was relieved, but then he started to warn me about the consequences of it being made official. Suddenly I wanted to forget all about it and fall back into blissful ignorance again.
Apparently this condition is one with a lot of stigma to it, stigma that can lead to some therapists refusing to see you if you have the diagnosis. This wasn’t really a problem for me. If a therapist isn’t going to see me because I have a certain mental health problem then clearly they aren’t a good therapist or a person that I want to associate with anyway, but the constant reinforcement of judgement that could potentially befall me freaked me out a bit. I am not ashamed of having mental health problems, I talk about them openly on the internet for this reason and to hopefully help others be less ashamed about their disorders, yet with Penguin condition I really was rather scared and embarressed. My psychiatrist said he could treat me for the condition and just not put it on my notes if I would prefer, yet as easy as that would be, I still felt uncomfortable. Yes I wouldn’t have the “shame” of being diagnosed with a condition that faces a lot of stigma, but on some level I would also be admitting that there was shame in the condition and that I should keep it on the down low which is not how I feel about any other mental health problem I have. I am a firm believer that if you have a problem, keeping it on the down low is only going to make it worse and will not raise any of the positive awareness that could potentially be spread with honesty. Nevertheless I am a little afraid, and so for now it is on my notes as “under revision” incase I change my mind by the next appointment and want it removed (apparently without the under revision bit this is something that once on your records, will not come off no matter how much scrubbing or Cilit Bang you apply. Bang and the dirt is gone? Yeah, but the disorder will still be there!).
I have a few days until my next appointment now, and by that next session I have to decide whether or not I want to specify that mysterious something wrong or just sweep it under the carpet again. As well as debating whether to let it on my medical notes I have been debating whether or not to bring it up or “come out” with it in my blog. Again, my initial reaction was no. Even my mum agreed that it might not be the best idea. If you google the condition or do any surface level research on it, people with this disorder are painted as crazed monsters who are unbearable to be around. Reading the articles even I admit that I started to think that I would never want anything to do with someone suffering from the condition, and that was when I made my decision to get over my fear, come clean and talk about it on my blog like I talk about everything else, regardless of whether anyone else is interested. If everyone thinks people with Penguin condition are dangerously insane, then I want to talk about it and I want to raise awareness of the fact that that is not the case and what the people with it are really like. As you can see I am still scared of saying it on here (hence the code name Penguin condition), as I do fear the judgement, but they say feel the fear and do it anyway, so here it goes.
My most recent mental heath update then? After all that waffle what has happened? Well dear friend, I have been diagnosed with Borderline Personality disorder. I am still exactly the same blogger you have been following for however long you have been, with exactly the same issues. It’s just that one of the hidden ones now has a name (sort of like when some women on TV seem to name one of their boobs…it is something that has always been there only now it can be addressed formally in a letter or serious conversation). As you can see this post is long enough as it is so I won’t go into what that means and what myths need debunking here, but for now I feel like telling you is a big enough step. (That said I know many people do not know what this disorder is or have many misconceptions so, before I can provide an explanation of my personal experience I have linked a PDF below from the charity “Mind” which I feel is the best and least stigmatised description around, so if you want to learn more, dear god please go there rather than to a general google search).
Maybe I will delete this post before I upload it but I hope I don’t, and if you are reading it then I guess I have been brave. Nobody should be ashamed of their mental health problems, and I for one am going to live by that, even if doing so is something that scares me right now.
Take care everyone x
The “Lental Health Challenge”
Are you brave enough to accept…THE LENTAL HEALTH CHALLENGE?! Come on…I dare you…LET’S KICK MENTAL HEALTH BOOTY!
The Difficulty Of Losing A Therapist
Over the past few weeks, I feel that I have been going through what is commonly referred to as “a break up”, one of those horrible experiences that, in popular culture, is often portrayed as a situation that can only be remedied by much crying into tissues and several tubs of ice cream. Now I know what you are thinking, “but Katie, how can you be going through a break up when you yourself admitted the day before Valentine’s Day that you haven’t been in any kind of romantic relationship for over two years” (alright don’t rub it in guys…Jeez).
Well if you thought that, you would be right, no, I haven’t been in a romantic relationship for a very long time (aside from the one I am in wth Helena Bonham Carter that she isn’t aware of…yet), but in the world of mental health there is a common experience that is very like a break up, that being the loss of a therapist.
Now, before I go on I would like to preface this by saying that I do not mean for this to imply that I am caught up in any romantic entanglements with the therapist I am referring to and who is currently in the process of “leaving me” for a new job.
Indeed our relationship is very much the standard “patient/psychologist” affair (perhaps affair wasn’t the best choice of word there…). However, what I don’t think a lot of people understand is just how attached one can get to a person who only hangs out with you every week because they are paid to do so.
It a very odd situation, and whenever a therapist leaves I feel I should deal with it easily, without being particularly bothered. This is after all not a new experience for me, as I have literally lost count of the number of therapists that have left me over the years, (seriously if you rounded them all up you would have more than enough of a cast to put on a performance of Les Miserables and trust me, from someone with a theatre background, you need a lot of people to perform that show). That said I know a lot of people find this a very difficult thing to go through, and rather than it mean we are clingy or weird, I think it makes a lot of sense.
Yes, a relationship with a therapist is strictly professional and should, on paper, be the equivalent relationship to someone you have hired to be your private chef (who is paid for by the NHS because you are mentally unable to sustain yourself alone….I need to work on my analogies…)
The chef turns up at your house because it is their job just like my therapist turns up for our appointments, but when you are talking about your deepest darkest secrets and fears rather than how you like your eggs cooked, it can’t help but become more personal whether you intend it to or not.
In every other professional relationship you have with someone who is being paid to spend time with you, like a chef or a plasterer in your house, the reason for their being there is in reference to something separate, aka food or dodgy walls. With a therapist though, unsurprisingly, a lot of it is about talking about your life. How can that not be personal?
Ok other professional relationships have personal aspects to them as well, a private chef for example may eventually grow to know how much milk you like in your cup of tea without asking every time, yet with a therapist there grows a level of intuition that is less about knowing how you like your tea and more about being able to simply look at your face and know automatically that it is time to put the kettle on (although I would like to clarify that my therapist has never actually made me a cup of tea at all…if you are reading this dear therapist, maybe work on that in your new job). It is that deep connection of being understood as a person, and for that reason of course it can be like a relationship break up when a therapist retires or leaves to get a new job.
Again, of course I am not saying that it is in any way romantic and unlike romantic relationship endings we are not going to be left wondering who gets custody of the kids (we already decided in our first session that I get them Monday to Friday and then she has them over the weekend). Nevertheless I am left wondering what I will do without this person who is currently a big part of my life.
When you see a therapist for a long period of time, discussing your mental health problems/building a therapeutic relationship is sort of like building a house. In the beginning you have an empty plot of land and the patient has a hell of a lot of bricks (bricks that in terms of this analogy represent secrets/thoughts/things that make you as a person). The patient is standing in the middle of this messy pile of bricks without any idea of how to deal with it, so the therapist is there as a sort of builder/tidier to help sort it all out. Every week you both turn up at this plot of land and gradually, the patient hands the bricks individually to the builder. Together you try to construct something that is a little less of a mess, and a little more something you can work in. The more you talk, the more bricks that come out, and eventually the house is finished at which point you can go inside and start trying to make the place liveable. You try things out, experiment with fuchsia walls, checkered wall paper or new therapies and you see what works for you.
Then finally you get to the point where you can both walk into the house (aka brain), and know the insides and outs of it so well that one of you can reference something within the house and the other will know exactly what they are talking about. Refer to the “plant thing in the bathroom” and they know what that plant thing is as well as when in your life you bought it and why it is in the house, just as a therapist will eventually grow to know all about the way your mind works as well as any life events you simply reference to as “that time with the giant squid”. If anyone else comes in the house and you reference the plant thing, they don’t understand exactly what you are talking about. Even if you take them to the room to point it out they cannot have the same level of understanding as the person who helped you build the bathroom in that particular way and find that particular plant at the gardening centre. You can tell a new therapist about what happened during “that time with the giant squid”, but to them it will just be a story rather than an experience you have lived through together.
Getting a new therapist then is not as simple as the professional transition involved when you get a new plasterer for example (I have just realised there are a hell of a lot of interior design analogies in here which I think is in reference to my love of 90’s TV show Changing Rooms. I miss Carol Smiley. Where did she go. She was so Smiley). No, instead of a new therapist coming in to help you in the house you had made earlier, it is like having to smash all of that “brain internal understanding relationship” stuff to the ground and having to start again. Once again you need to start passing them all the individual bricks they have never seen before, so you actually have a long time of simply building up enough of a rapport/understanding before you can get on with any of the serious stuff.
Like the end of any romantic relationship you find yourself wondering if you will ever find someone you will get on as well with or who will understand the way you work in the same way, and the first sessions with a new therapist are very much like all the first dates you have to go on to try and find a new partner. Conversations go from deep personal investigations into the meaning of life to the cookie cutter “so what is your job”, “where do you live” standard statements that you have to go through before you can get to anything of real interest or value.
Unlike a first date of course, a new therapist will probably have all of your notes from the previous one and thus a rough knowledge of your history, but nevertheless, with or without these notes they will always say that they want to hear about your history “from you”. Admittedly this is a good idea. Obviously I can explain something that happened to me when I was eleven better than a therapist was able to jot down in a word document, but having to go through all that stuff is exhausting. Maybe if you don’t have a huge mental health history this “tell me about you” question can be answered relatively quickly, yet for me it is a question that is incredibly daunting. Tell me about your experiences with mental health services?! How can I do that? We have nearly 14 years of appointments to catch up on! I can’t get through all that in one hour!? DO YOU HAVE ANY IDEA HOW EXPENSIVE HOSPITAL PARKING IS?
This entire blog is probably just one long incoherent ramble so half of you reading will be probably wondering what the hell I am talking about and who the hell Carol Smiley is. I guess I just wanted to raise some awareness of how difficult it is when a member of your therapy team has to change and why it feels so much more impactful than a change in any other strictly professional relationship. If I was ruler of the world I think I would probably make it law that therapists are unable to ever get new jobs, retire, change jobs or go on maternity leave (sounds ridiculous I know but in terms of fair/rational leadership I would still be doing a better job than Donald Trump.)
Luckily as you will know if you have been around my blog for a while, I do have a whole team of therapists so it isn’t a total break down of my psychological support and only one person is changing. I also know and like the replacement very much so it is as “good” and manageable a “break up” as it can be. Nevertheless I can’t help but feel as though in a few weeks when it is time for our last session (on the 21st of March, put that in your diary folks), I will be losing someone very important, someone who I can trust and rely on, so naturally, this isn’t going to be easy.
Take care everyone x
The Difficulty Of Dating When You Have A Mental Health Problem
If you have walked into any shops or restaurants in the past few weeks, you may have noticed a lot of brightly coloured hearts in various shades of fuchsia splashed about all over the place. Cards with hearts on, posters with hearts on, even giant teddy bears holding hearts (which is biologically confusing as without the heart how is the bear able to breathe and thus hold the heart at all…unless he is holding someone else’s heart in which case that is pretty damn sinister if you ask me). Funnily enough this is not because February is a month in which humans feel the need to celebrate the life giving aortic pump caged within our ribs (or in the hands of a rather terrifying and possibly murderous teddy bear), all this heart shaped nonsense is because tomorrow is Valentine’s day. Personally I have never understood why you should need a holiday to remind you to let your partner know that you love them, but I suppose it is better to have a day dedicated to love than something horrible like punching puppies in the face. Nevertheless, I still find it quite a difficult holiday as it is one that reminds me all too loudly of the detrimental effect my mental health has on my love life.
To sum up my current “love life” I guess you could simply say that it is non existent and has been this way for several years. During my life, in times in which my mental health has been better, I have somehow managed to have two “proper” relationships thus far, both of which it can be argued ended either because my mental health problems were actively getting worse or because they simply became too overwhelming for my partner (which was totally understandable in both situations.)
I guess in a way it is good that the main reason for both of my relationships collapsing is centred around an illness because at least an illness can be cured and could potentially disappear one day. Had the problem been a weird habit of belting out ABBA’s greatest hits in my sleep, that would perhaps be more frustrating, as to my knowledge there is no cure for that kind of thing. When it comes to OCD, depression and anorexia however, I know there are people who have got better and hopefully one day I will be able to count myself among them.
Truthfully though, I cannot see that happening. I would love it if it did and I will never stop working towards that goal, but realistically the chances are pretty slim, and even professionals have admitted that I am going to struggle with my illnesses for the rest of my life, maybe not to the same extent as I do now, yet chances are they will always be there. Assuming these predictions are right then, any relationship I ever have is going to involve my mental health problems having some kind of an impact, and that is the kind of thing that inspires the classic “I am going to die alone” worry considering my mental health problems have been the destruction of all former attempts at having a partner. I can’t even do what most people who fear this do and resign myself to the identity of being a “crazy cat person” because I don’t think I could handle four little paws spreading potential bacteria around my house let alone a whole litter’s worth… What back up is there to the “crazy cat person” back up plan? The only option is to be simply “the crazy” person…That doesn’t sound fun…
I think relationships are actually one of the biggest struggles faced by people with mental health problems but it is a struggle people rarely talk about because admittedly it feels a little embarrassing. Nevertheless, it is because nobody really talks about it that I think it is so important to talk about it. If I struggle with and worry about this kind of thing whilst feeling totally alone in it, amongst other people my age who are doing things like getting married and giving birth, then there is a high chance that there are other crazy people out there who feel the same and need to know that it isn’t abnormal. Indeed, I think the impact mental health can have on relationships is seriously under reported. The instability of my mood, the inability to touch most things, the compulsion to clean obsessively, body image issues blocking the way to physical intimacy, trust me, the list of obstacles in my way is endless, and those are the problems you face when you have actually managed to get into a relationship in the first place.
Nowadays before you can even get to that stage you have to go through the terrifying minefield that is otherwise known as “dating”. I know that a lot of my friends have been on these “dates”, but mental health wise I cannot get my head around the idea. For one thing, where are they meeting all these people with whom they go on dates?
Usually people come into contact with potential romantic entanglements during social events or hobbies, but because of my mental health I am rarely at social events and my only hobbies are things like repeatedly tapping doorhandles which is a relatively solitary pass time. The only places I tend to go regularly when I leave the house are therapy appointments, so the only people I meet are mental health professionals, and I think it is pretty frowned upon to start dating your psychologist.
Considering we are currently in the age of internet dating you may think that my lack of social skills in real life are no longer an issue as I could easily meet someone on one of these websites like match.com or an app like “Tinder” (WHAT THE HELL IS TINDER. Everyone has it and from what I gather it is just a lot of swiping…what are we swiping…where are things going when we swipe them out of view…should I want to be swiped? WHAT IS GOING ON).
Thing is, though I have never been on any of these websites myself, from what I gather they involve putting pictures of yourself online as well as a brief description of your personality. A brief description of my personality? What the hell can I write there? “Totally bonkers”? Who would look at that and think “well I want to spend the rest of my life with that insane creature”. Of course I could easily lie and write something like “I am a totally sane and calm human who is not crazy at all and likes long walks on the beach” (massive lie. I HATE the beach), but that seems far too much like false advertising. Ok, people false advertise in adverts all the time (like with that mermaid Barbie I wanted when I was 7…she wasn’t a real mermaid! I threw her in the bath and she didn’t even float let alone swim. What kind of mermaid sinks? LIES I SAY), yet despite its acceptability in general life the idea of putting myself online without mentioning my mental health issues isn’t just false advertising, rather it is dishonest. The truth is that at the moment there is no aspect of me that does not involve some kind of mental health complication, and were I to ever get into a relationship again, that would be something that I would have to be open about from the start.
Then even if you have mental health problems and manage to somehow get a date with your restricted daily schedule and unattractively marble free online profile, how the hell do you actually go on the date you somehow acquired? Usually a date will include something like a meal, but with my eating disorder a meal out is basically impossible and in terms of OCD any other activity like bowling is ruled out too. YOU CAN’T BOWL IF YOU ARE UNABLE TO TOUCH THE BALLS. Then there are the obvious issues caused by general anxiety, social anxiety and depression making everything more complicated, as well as OCD worries like the fact I wouldn’t be able to hold open a door for anyone which would look very rude, and that isn’t getting into the inability to hold someone’s hand or touch their skin without panicking. How can you advertise all that on an online dating profile or ask someone on a date in that situation? “Hi, my name is Katie, I would love to go on a date with you…but there can be no food involved or if there is food I will just have to watch you eat…also we can’t do any activity that involves touching objects in public or each other…and I need you to be aware that I might cry at random moments without warning…yeah…thats about it…CALL ME!..but not on my phone…phones are scary…CONTACT MY MOTHER.”
Maybe I am panicking a little too much about all this as I know everyone worries about the whole “dying alone” thing, but I have to say that with mental health problems the whole dating world and romantic stuff does get a lot more complicated. If I put on my optimist’s hat (it is purple with a penguin on), I like to think that in the end I will read this post back one day with my future wife and laugh at what a fuss I made worrying about something that really will be ok in the end.
Reading this back I now realise that I haven’t actually given helpful or constructive advice on how to date or manage a relationship with mental health problems. Instead I have simply splurged my anxieties all over you (apologies for splurging), but I hope that I have started some kind of discussion or raised some awareness as to the impact mental health problems can have on one’s love life. Right now I don’t think I am qualified to give any romance advice anyway, yet if ever I find myself able to manage the dating world rather than panic at the thought, any tips I do learn will be passed on to you. For now at least I have helped my fellow relationship worriers out there know that they are not alone and not a freak for being unable to go on Tinder or go on dates and have fun like everyone else this Valentine’s day.
Even though none of you are my other halves I still send each and every one of you a lot of love this Valentine’s day and every day of the year…You can thank me by getting me a date with Helena Bonham Carter, or at least getting her to call me (and by me, I mean my mother).
Take care everyone x
Valentine’s Loneliness Tea Party Date
It’s that time of the month again folks, and this time, we are going on a very special loneliness tea party date! Prepare yourself for love! Prepare yourself for romance and get ready, because I AM GOING TO WOO YOU…
10 Ways To Support Someone With An Eating Disorder
Living with an eating disorder is hell, but I think it is underestimated just how horrendous it can be for the people living with people who have eating disorders. I know many parents, families, partners and friends tend to feel pretty hopeless when watching someone they love slowly drowning, without knowing how to stop it. Almost every day my mum will ask me what she can do to help, like there is some problem solving action she can perform as easily as changing a lightbulb.
I know for a fact that if there were an action she could carry out, my mum would do it in an instant no matter how inconvenient or unpleasant (I think she would even play Pictionary and she HATES Pictionary…weirdo). Unfortunately, eating disorders don’t have quick solutions and no matter how much a loved one wants to help, they cannot fix the problem. They can however support the person, and often these little offerings of support are nowhere near as dramatic as people seem to think. Supporting someone with an eating disorder doesn’t require grand complicated acts of kindness, often you can support someone with little things that don’t take much time or effort at all. So today, I am going to share with you a list of things that I find help me at home aka 10 simple ways you can help someone with an eating disorder.
1. Don’t get angry with the person, get angry with their disorder – When you have an eating disorder in the house/in any relationship, you can guarantee it is going to cause some conflict. I have lost count of the number of arguments I have had with my mum with regard to eating disorder issues like what I am eating for dinner. I honestly don’t think we have ever had an argument about anything that wasn’t mental health related (bar one argument we had in 2002 because she wanted Will Young to win Pop Idol when I was firmly on the side of Gareth Gates. I would like it noted that I can now lift my hands up and admit I was wrong on that one). Just yesterday I am ashamed to say I had an argument with my mother and yelled at her for about half an hour because she tried to help, and unknowingly put my kidney beans in the “wrong pan”.
Afterwards I felt incredibly guilty/like the worst person in the world. This guilt would have eaten me up and is the kind of thing that makes me feel that I don’t deserve food, but after we had all calmed down and I had apologised, what I found helpful is the fact that my mum made it clear that she understood that I hadn’t meant to yell about a bean pan. She knew it had just been the eating disorder taking control, and though I need to work on managing that myself, the acknowledgement that I wasn’t this terrible person who worried more about what pan my beans were in than my mother’s kind attempt at assistance, made me feel more able to continue with the meal.
2. If you are eating with someone with an eating disorder, keep them distracted and don’t make the food the sole focus of the experience – Meal times with someone with an eating disorder are not the most relaxing of situations and can be pretty intense (like one of those awkward dinner parties you see on Come Dine with me only less bitchy and without a voiceover man commenting on every little thing that occurs). For this reason, when I have to eat a meal with someone, I find it really helpful for them to help keep me distracted and not make it all about the food. Silence allows thoughts to creep in at the table, so I would recommend conversation if the person is able or, if they are unable (sometimes I cannot talk very much/think of words because I am so anxious), have the radio on in the background or play a game. Sometimes in hospital we would even do things like crosswords or little quizzes which really helped keep your mind occupied by working on something else (my favourite thing about this was that when there were bank staff they would go through the pile of quiz questions without realising which ones we had already done so we were all able to provide correct answers instantly and looked like geniuses.)
3. Allow them to take baby steps in their recovery rather than expecting miracles overnight – When people are in recovery from any mental health problem, there is often a lot of pressure for progress to be quick so that the problem can be solved and forgotten about as soon as possible. However, recovery is a very slow process and this pressure is often detrimental as it can make a sufferer more anxious and stressed. To help someone who is struggling, allow them to make progress at a steady pace they are comfortable with rather than forcing them to make dramatic changes which ultimately will not be sustainable.
4. Praise them…or don’t praise them at all – I have many friends who appreciate a little “well done” or similar nudge of encouragement after a meal to make them feel supported and like their hard work hasn’t gone unnoticed, so offering those words of praise can be a great way to support a loved one. That said, I know there are others, (me included) who actually find this more unhelpful, as they like to leave the table and forget everything rather than acknowledge the meal that has just been consumed. Denial may not be the best way to deal with mealtimes, but at the moment denial is how I cope, so I am helped by nobody commenting on how fantastic it is that I have cleared my plate. For this one then, maybe ask the person you are supporting to see whether praise would be helpful to them before whipping out the party poppers to celebrate an empty bowl of cereal.
5. Try to be as relaxed as possible at the dinner table – When I sit at the table, I am always anxious, and when I can see that other people are anxious, it makes me more anxious. This then makes them more anxious and before you know we are left with a table of people panicking about a meal that hasn’t even happened yet. For this reason when supporting someone at a meal time, if possible try to be calm and relaxed to show that the situation isn’t anything to be afraid of, rather than freaking yourself out and condoning the “THE TABLE IS A SCARY PLACE” fear.
6. Seek support for yourself – People with eating disorders need support and so do the people around them. As important as it is for carers to have an outlet somewhere to discuss their concerns and worries though, it is helpful to make that outlet someone other than the person who is struggling. When you feel that you are a terrible person who is ruining everyone’s lives because you cant eat normally, emotional outpourings condoning that are only going to make things worse. Ultimately then for this one, support someone by finding support and seeking help for yourself too.
7. Keep diet talk to a minimum if you are on a diet – Obviously when you have an eating disorder, people being on diets can be rather triggering. That said you cannot dictate that nobody who lives with someone who is struggling is allowed to have any say in what they eat. Naturally we all have needs and some people may be prescribed special diets from a doctor which of course they should follow. If this is the case however, the best way to help the sufferer manage the situation is to not make a song and dance about it (aka no conga lines for the fact you have switched to low fat yoghurt and if possible none of those “I LOST THREE STONE” certificates which diet clubs award people plastered all over the fridge).
8. Know their meal plan – Again this one depends from sufferer to sufferer but personally I find it helpful when those around me know what is on and what is expected of me in my meal plan as it makes me accountable in some way. Obviously the goal is to get to a point where I don’t need people to know what I should be eating and am able to be responsible myself, but right now my mum having a copy of my meal plan supports me every day. That way, when I am struggling and want to miss things out, I know that it is not a case of “nobody will notice so just throw the bread out of the window” as my mum would immediately wonder where the soft wholemeal has gone (and why there is half a loaf of Hovis stuck in the garden hedge)…
9. Don’t treat them like a disorder – When people see or think of me, I always feel they think of me as “the one with the eating disorder” and that I have no other identifiers to me as a person. It is therefore helpful when living with someone with an ED, to treat them as a normal person with other interests and hobbies so as to remind them that they are more than their disorder and will ultimately still have an identity left, even when the disorder is gone.
10. Do not comment on their meal plan or their body weight – This last one is probably fairly obvious but nevertheless very important so I had to include it. Whatever you do and if you only follow one of these tips as to how to support a loved one, make it this one and for the love of all that is holy NEVER comment on how much weight someone has gained on their recovery meal plan and NEVER comment on how big someone’s meal is. Eating disorder recovery meal plans may look totally normal but there are some that may perhaps be bigger than normal. Whatever the meal plan though, the person will need all the food prescribed to treat their malnourished body and repair all of the damage that has been done internally. If someone is soldiering through their meal plan trying to reassure themselves of this, the last thing they need is a comment like “blimey that is a lot of food, I couldn’t eat that”. Hand on heart a bank HCA in hospital with no experience in eating disorders sat next to me one meal time and after I had finished my main/was picking a spoon up to dive into my rhubarb crumble with custard, they commented “I don’t know how you can eat that. My main course was half the size of yours and I am already too full to eat another bite”…THAT IS NOT HELPFUL INFORMATION.
So there you have it, ten ways in which family/friends can support people with eating disorders (at least in my experience), without actually having to do much at all. Being desperate to help a loved one and wanting to support them doesn’t have to be carried out in dramatic acts like white water rafting or playing Pictionary, Sometimes all you need do to be the most helpful and make the biggest difference, is the little things like asking them for help with a crossword over their cornflakes or giving an encouraging nod at lunchtime.
Take care everyone x
“But You Don’t Look Depressed”
Have you ever played real life Where’s Wally but instead of a man in a bobble hat and a striped jumper you had to find someone with depression? Hopefully you answered no, (if you answered yes I would advise you to make some changes to games you play for recreational purposes and would suggest Scrabble as an alternative). If you did answer no though, it is a game I do not recommend because playing such a game would be practically impossible (again, maybe try Scrabble).
Despite the fact that we now live in a time where there is a fairly wide understanding that depression is a “mental” illness, I still feel like there is the idea that somehow it is as visible as a broken leg. In fact I have lost count of the number of times someone has discovered I have depression before responding in surprise with that oh so familiar phrase to anyone with depression, “but you don’t look depressed”.
To be fair, no, no I often don’t. Then again Ralph Fiennes didn’t look like Ralph Fiennes when he was playing Lord Voldemort in the Harry Potter films with his nose all squished out of recognition, but underneath all that make up/genuine wizardry, he was still Ralph Fiennes.
Much like Ralph Fiennes, people with mental health problems like depression are often great actors, dare I say even better than the ones you see on TV to be honest, as we don’t even need green screen or CGI fake noses.
Whenever people say that I “don’t look depressed” I almost want to ask what exactly someone who has depression should look like considering I am clearly not living up to their expectations.
I think the traditional depressed person is supposed to look like the pictures you see when you search depression on google images or look at any of the pamphlets they hand out at doctors’ surgeries. In the majority of these images, the people are curled up in a corner somewhere with their heads in their hands, but like the images you see of skeletal anorexics in the media, this is not always the case, and it is dangerous to think so.
Admittedly sometimes in my life living with depression, there is a lot of curling up in a ball for a good cry (often with Celine Dion – “All By Myself” playing in the background), yet that is not my constant state of being and not something I allow many people to see.
Inside I may feel like staying in that soggy ball all the time, but at family occasions or social events for example, I always put on my “sane” face and play the part of “human who has life together” as required by expectations upon me, much like many other people do at work or when they are in front of their children.
Contrary to portrayals in the media, often both I and other sufferers of depression really do just look like “normal people”. However well disguised a depression suffer is though, it doesn’t mean they are any less ill or need be taken any less seriously than those who are visibly struggling. Indeed, what a person looks like on the outside will tell you nothing of the severity of their condition, and you cannot compare sufferers based on the number of tears they have cried in the last fortnight.
Depression may be one illness, yet it expresses itself and feels different to every individual who suffers from it, so how one depressed person behaves could be totally different to someone else who also has the condition.
Even single individuals can present the illness in totally different ways depending on what day you come into contact with them so you can’t even classify people in groups of “loud person with depression” or “quiet person with depression”.
Like I said there are some days where my depression means that I physically cannot talk or get out of bed, and then aside from the days I have to pretend to be a certain way in front of family members, I have days at home in private where I am so depressed that I spontaneously burst out into hysterical laughter despite being alone and “allowed” to show how I really feel without upsetting anyone. It is almost like those situations in which people without depression hear a piece of bad news and instead of reacting with tears as would be appropriate, they just start laughing because their brain physically cannot cope with the shock/that amount of sadness. Truthfully I have had days where I can be so depressed that I spent half an hour hysterically guffawing (I believe the kids today call it “LMAOing”/“Loling”) at a pencil. Yes, you read that right, I laughed for half an hour at a pencil (not even a particularly funny pencil. His jokes were terrible. No idea of timing when it came to landing a punchline).
Much like the problem I discussed in my post about people with eating disorders not always being underweight, this misconception that someone must “look depressed” to be depressed is actually a mistake that puts many people at risk as well as being frustrating.
It is often due to this “depressed people must look depressed” problem that sufferers may feel unable to “come out” and be honest with family members about their issues for fear that they won’t believe them or take them seriously. Admitting to someone that you have depression is hard, often embarrassing and can take a lot of courage as it is, but to do so and then be told that you must be mistaken because “you don’t look depressed” is a sure fire way to make someone feel more devalued, ashamed and deluded than ever.
It is when people feel the need to keep their illnesses quiet and not seek help for fear of this response that they end up feeling more alone than they already did and in some circumstances take their own lives. How many articles about a suicide victim have you read where the family conclude by saying “we knew this would happen. Too much crying/head holding in the corner”? Most likely none, as usually such columns end with the far more unfortunate “we had absolutely no idea”.
When it comes to those with depression, in this post I really want to urge people to see them/us, not as head clutching Celine Dion fans, but instead as ninjas, masters of disguise who can pop up anywhere without people realising (only without the resulting violence that often ensues around ninjas).
That jolly person who served you in the supermarket? They could have had depression. That milkman that never shows any emotion at all? They could have depression. That girl you saw cycle past your house this morning? They could be a penguin in disguise, which isn’t exactly the same as depression but it just goes to show that you cannot make any judgements based on appearance alone.
Literally the only way it would ever be possible to play Where’s Wally where the aim is to spot the person with depression would be to make every sufferer of the aforementioned condition wear a Where’s Wally jumper at all times, and thankfully, that is never going to happen… At least I hope it doesn’t… I really don’t suit horizontal stripes.
Take care everyone x
Anxiety Curing Smoothies
Can a fruit smoothie with an abundance of healthy vitamins and minerals cure you of anxiety? Let’s find out…
Born without marbles 