OCD

Why I Wish Mental Health Problems Came In Boxes

/ bornwithoutmarbles / 7 Comments

Whenever a doctor or health care professional looks at my notes for a brief overview of my mental health, they will see three separate words:

Depression
OCD
Anorexia

The words may not be on separate lines as I have illustrated above, but there is always some kind of gap between them, even if that gap is only in the form of a comma or perhaps a space bar. As a brief summary of my mental health, I suppose those three words can give you a reasonable idea of my struggles. Nevertheless, the idea gathered from those three words is only a reasonable idea, as my illnesses are far more intertwined than many people realise. If I were to write the three diagnoses in a more accurate form, they would look like this:

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Now granted, that wouldn’t be as easy to decipher as the former example (although doctors are used to examining messy handwriting…), but it would be a lot closer to the truth and what mental illnesses feel like.
I think that some professionals, even those working in mental health, have a a problematic view of the illnesses that they treat by thinking that they can be separated into neat tidy boxes as easily as I can separate these words just by hitting the space bar. Don’t get me wrong, I would LOVE it if they were right and that mental illnesses really did come in boxes, much as the title of this blog post suggests. For one thing, if mental illnesses came wrapped and caged within physical cubed objects it might be possible to operate on a person and physically remove the cause of any problems with the ease with which they remove a tonsil (or tonsils…I think people have more than one tonsil…I really need to get round to counting mine one of these days. It has been on my to-do list for years). More importantly though, were mental illnesses to be so easily distinguished from each other, it would make treatment far more straight forward.

In terms of treatment I get for my mental health, I have several very separate teams of people in several very separate buildings. There is the hospital for my eating disorder which always smells of cauliflower cheese, there is the general mental health centre for my depression (which doesn’t smell much of cauliflower or cheese), and if I get accepted to the new service I was assessed for two weeks ago, I will have another building to attend appointments in regarding OCD (I haven’t been in that building yet so I am afraid I cannot document how much this place smells of either cauliflower or cheese but I will be sure to inform you the moment I know).
When I walk into each building every week, I am expected to talk about and deal with the illness that has been designated to that service. It’s as if they think I can leave my other mental illnesses by the door still packaged in their neat little boxes, without realising that the three are inextricably linked in a complex mesh even I cannot understand, so if one comes into the room with me, the other two cannot help but tag along.

For example, because of my mental health problems I have a lot of behaviours. One of these is that I tie my hair up repeatedly before a meal in a routine that can take as short as five minutes or as long as several hours. Now, if asked, I would say that this behaviour is an eating disorder behaviour as I only carry it out prior to a meal. If I wasn’t about to eat something, I could tie my hair up in seconds so I would say that as the anxiety is more about preparing for the impending meal, the hair tying is a part of anorexia. That said, there are many professionals who have argued with me that it is in fact an OCD behaviour, an obsessive ritual of repetitive compulsions that make no sense in rational terms. Who is to say which one of us is right in our conclusion? Both have fair points and it is easy to argue either way. What about the fact that I cut the majority of foods into four separate pieces? It is related to food so it could be my eating disorder, yet the numbers and rigidity with which I handle a knife is far more akin to the OCD. So what is the answer? Who is the culprit in causing each of these rituals? Who can solve this mystery? Someone find Poirot immediately! (Finding Miss Marple or Sherlock would also be helpful but they are second choices because they don’t have fancy moustaches.)

It isn’t that I particularly care which of my diagnoses is causing the problem, I just want them to go away, yet without knowing the specific name of the villain in this situation it is hard to find a professional able to help me. When I talk to the eating disorder services they tell me to talk about the ritualistic eating behaviours with the OCD team yet the OCD team tell me that is a job for the eating disorder hospital and as a result, treatment for these behaviours tends to slip through the cracks without ever getting a chance to materialise because they don’t fit into the neat boxes everybody wants them to. In this example it isn’t really that big of an issue as in spite of not fitting into the neat boxes all the time, I still receive treatment for both OCD and anorexia even if is is unable to solve the issues where behaviours are a combination of the two. The biggest issue however, is when this lack of mental health diagnoses tidiness doesn’t just get in the way of someone’s treatment, but gets in the way of them being accepted for treatment at all.

All over the world people including myself who are seriously struggling with mental health problems are referred to services that turn them down not because treatment is not needed, but because the case doesn’t exactly fit into a specific list of criteria. So why not broaden the criteria? Obviously I realise that the issue causing all of these problems is a lack of funding for mental health services and thus the need to have specific criteria to narrow the case load down (don’t worry, when I become prime minister I am going to be chucking so much funding at mental health services that this problem will be solved. I am also going to chuck in a lot of funding to investigating the invention of a mug that keeps a cup of tea at exactly the right temperature for hours on end, but that is a story for another time).
Still, issues with funding or not, it makes absolutely no sense to me seeing the complex soup that is mental health being separated into neat little blocks. I myself have been turned away from services for being “too complex”, which is basically like saying “yes you are crazy and in need of help but you do not fit into our definition of crazy so we are going to have to send you elsewhere only to be told the same thing and referred somewhere new all over again”.

Labelling a mental health problem with a diagnosis like “OCD” or “anorexia” is of course incredibly useful in terms of narrowing down a problem, but even then every person with OCD will experience the illness differently and that needs to be taken into account with the way they are treated as each experience is equally valid. If you go to the supermarket there will be a whole aisle of baked beans, tin upon tin all labelled “baked beans” and sure, they are all “baked beans”, but each one is slightly different just as each person with a diagnosis is slightly different. Nobody should be refused treatment for being the “wrong kind” of crazy, the fact that there is any kind of crazy should be enough.

That is why I wish mental health problems came in boxes, but alas I fear that is one wish that won’t ever come true (much like the wish I made on my 4th birthday to become a penguin. It has been 20 years and I am still waiting. Haven’t even got a sign of a flipper yet.) However, if it is a wish that won’t come true then we need to change the way we see mental disorders and indeed treat them rather than acting as if things are far simpler than they are in reality. It is time we realised that mental illnesses don’t come in boxes and the people who suffer from them don’t either. Rather than refusing to help those of us with a bit of a confusing mess going on, we need to roll our sleeves up and dive in anyway. Everyone is different, yet all are equally worthy of support.

Take care peeps.

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Why It Can Be Scary Having People In The House When You Have OCD

/ bornwithoutmarbles / 4 Comments

In two days time, on the 5th of October 2016, I am having an assessment with a new OCD service that I have been referred to (just clarifying the exact date incase you have invented a time machine and are reading this somewhere in1912 which would make “two days time” a lie. I don’t want to ever lie to any of you. Also if you are in 1912 maybe warn the Titanic to look out for icebergs). I have been waiting for an assessment date for several months now so it should be a relief that the day is finally near and more intense support on the horizon, but my God I am terrified.
Funnily enough, none of that terror comes from the fact it is an assessment where I will be meeting two strangers and having to talk to them openly about my mental health. Over the years I have had hundreds of assessments, I have even had assessments to see if I am suitable for other assessments (seriously, mental health services LOVE assessments. They even sprinkle them on their cereal in the morning), but there is something slightly different about the assessment that is only a few days away. Normally an assessment involves going to a new building, getting lost for several hours down some poorly labeled corridors, and then turning up in a stark room with chairs, a psychologist and a table topped with a box of tissues which I think is supposed to look friendly and welcoming but to me it is intimidating, more a threat of “I WILL MAKE YOU CRY”.
With Wednesday’s assessment however, I don’t have to go anywhere, the two assessors are coming to my house, and THAT is the reason for my currently heightened levels of anxiety.

Like many people who suffer from OCD, I really struggle with people coming to “my” house. I am sure for each individual, the reasons for this vary, but for me it is because my house is my “safe” place. Leaving the house is difficult because I am entering an environment that I have no control over. I do not know who has touched the door handle to whatever building I am in, or when the chair I may be required to sit in was last occupied. Maybe the floor was mopped with antibacterial industrial cleaner minutes before my arrival, maybe it has never seen the bristles of a broom, either way I don’t know, hence why for me, touching things out of the house is more difficult than in my own home. I can’t actually remember the last time I opened a pull door in a public place and I have lost count of the hours I must have spent standing on the side of a road, waiting to cross yet unable to press the little button to alert the traffic light of my presence and inspire an appearance from the little green man. We need more Zebra crossings in this country!

In my house then, it is easier, because I know when everything was last cleaned, who has last used it and I also know that cleaning products are mere moments away should I challenge myself too far and need to whip out the bleach. When other people come into my house however, an element of that control slips from my grasp. For the duration of their visit I cannot control what is touched, moved or anything else people may do with items in my home.

These OCD people (I am sure they have names but for now that is what I shall call them) have said that they want to do the assessment in my house because they need to see me in “my natural habitat”. To be fair that makes sense (although it does make me sound a bit like a tortoise on a nature program being visited in its personal hovel), and as a lot of my rituals take place in my household it will help for them to see the “scene of the crime”, yet in anticipation of their arrival all I can think about is what they will touch during their stay and where they will sit. I have honestly been having nightmares that one of them will have been drinking a lot of tea that morning and need to use the bathroom, aka the holiest of holies, “my tap” (please God let the OCD people be dehydrated just for October 5th).
Of all the people I should be able to be honest with about these kind of difficulties, people from an OCD service would logically be high on the list. If anyone is going to understand my fears it is them, and they are the least likely to come back at me with a dagger of stigma that leaves me feeling like a total freak. Nevertheless I feel I can’t say anything out of the fear that it will be inhospitable.

If it was up to me, whenever anyone comes to my house I would like to put them in one of those little carts you get on a roller coaster, where the bar comes down and you hear that voice asking you to “please keep all arms and legs inside the vehicle at all times”!…I wonder if you can get those installed within less than 48 hours…or maybe I could just tie their arms to their sides with tape…is that legal?…I feel like that would be illegal…or at least frowned upon…
Even if it wasn’t frowned upon though I couldn’t do it because like I said it seems too rude. I want to greet these people with the gratitude they deserve for coming all the way to see me for the afternoon, but how can you do that or appear hospitable when you are terrified of the people you are supposed to be greeting? What am I supposed to say? “Hello lovely OCD people, welcome to my humble abode, please make yourself at home but for the love of all that is holy in this world please don’t touch anything because I don’t know where you have been”. Oh dear God what if they want to shake hands. AHHH.

I find it stressful even when friends come over to the house too, but at least my friends know “the rules” prior to their visit. I really hate having to issue guests with a list of requirements alongside their cup of tea, yet I know that if I were not to do so I would be crying hysterically within five minutes which would be even more embarrassing.
Thankfully I am incredibly lucky to have friends who accept my difficulties and respect my level of anxiety. It is a tough balance, as obviously people can’t give into everything when it comes to my OCD. That would be inconvenient for them and would arguably perpetuate my beliefs that their germs are a genuine risk. Nevertheless, there is a distinct difference between following the dictations of my illness, and challenging me whilst not pushing me past my breaking point. My friends know not to take their socks off in the house, not to sit in “my” safe chair, and they know that I will probably take a ridiculously long time if I go to the bathroom due to the necessary washing routines that entails (picture a surgeon preparing to remove someones kidney, soap up to the elbows etc.)
They know that none of my requests are personal, that I don’t think they are dirty people who are infected with a contagious disease, because they know me. Some friends have been in my life since the day of my diagnosis so they grew up with a knowledge and acceptance of my conditions that few would comprehend. One friend was even on holiday in Greece last week and she literally texted me from across the Atlantic (is that right…is Greece across the Atlantic…screw it lets keep it this way, it sounds dramatic), to tell me at 10pm to stop fiddling with my hair as she knew that I was home alone and probably stuck in a hair routine that often takes place during that time (which I was). With friends then, it is ok to tell them not to touch anything, but with strangers no matter how kindly you say it there will always be (in my eyes at least), a little resentment on their part. I know if I went to somebody’s house and they told me to keep out of the lounge for fear of contamination I would probably feel a little offended myself.

It really is a tricky balance trying to be a friendly host whilst trying to manage my anxiety and for this reason I know many people with OCD refuse to allow people into their houses at all, just one reason as to how this illness can be incredibly isolating. If my friends weren’t aware of my mental health I know wouldn’t be able to manage them in the house either.

I guess what I am trying to say is that when it comes to OCD, it isn’t always the behaviour of the sufferer that causes the anxiety, but also the behaviour and actions of those around them. It isn’t just my hands I worry about when it comes to germs, it is everyone nearby. Most importantly though, in feeling this way about others, it is in no way a suggestion that a certain individual is dirty and no personal judgement on a bystander’s levels of hygiene.
Equally then, if you struggle having people in the house, you are not a bad person or rude, just as I am trying to convince myself now that I am not a horrible person for wondering if it is socially acceptable to tie my assessors up with tape in order to restrict movement. Obviously I am not going to do that, I am as always just going to deal with it and hopefully get the courage to speak out so that they are aware of my anxieties rather than suffering in silence, which would consequently make them worse.

If for some reason my assessors are actually reading this prior to our appointment, please know that if I appear inhospitable at any point in your visit I truly am sorry and trying my best. I really do appreciate you making the effort to come to my house and hope you feel welcome and relaxed in my home…JUST PLEASE DON’T TOUCH ANYTHING OR I WILL HAVE TO TIE YOUR ARMS TOGETHER AND WRITE THE NOTES ON MY MENTAL STATE FOR YOU.

Cheers… See you Wednesday!

ocdhouse

Why It Is Important To Be Aware Of Your Mental Health Triggers

/ bornwithoutmarbles / 2 Comments

During every moment of every day, everyone’s experiences in the outside world trigger an inward, mental response to that event in that person’s head. Seeing a penguin could cause someone to feel happy for example, or seeing someone kicking a penguin could cause someone to feel a rage more powerful than can be possibly imagined. Either way, what happens on the outside will flip some kind of switch on the inside, and, if a person has a mental illness, that switch may be the one that controls their disorder/sets it off on a rampage. Daily life with a mental health problem is a struggle in general, but pretty much everyone will have things that trigger their disorders more than usual, and for this reason people will avoid thinking about these things.
In terms of OCD I know there are certain words or smells that make me particularly likely to engage in compulsive behaviours, and I know that hearing people talk about weight loss, exercise or calories pushes the buttons of my eating disorder. Consequently, I do my best to stick my head in the sand when it comes to things like that and I avoid thinking about those topics as much as possible. On the surface it seems like a good idea, surely if I avoid thinking about things that make my disorder worse, I will avoid the distress they cause and I won’t have to deal with it. However this head in the sand method tends to fall to pieces if I ever find myself in a situation where I cannot avoid my triggers, because by never thinking about them, I have not prepared a way to manage my response. It is all well and good to turn off TV programs about topics in which my OCD trigger words are likely to arise, or avoid people following the latest diet trend and pretend that they are not a problem for me, but say for instance I was ever kidnapped by my local troop of Weight Watchers (not that I am suggesting that people who belong to the aforementioned diet club are at high risk of kidnapping people), I would be screwed.
For this reason I would say that thinking about your triggers and planning ways to cope when confronted with them is actually vital in terms of living with a mental disorder, and if for some reason you do not believe me when I say this (which I would understand; it is after all asking a lot for you to trust the words of a stranger on the internet without explanation), then allow me to illustrate my point with a story about my good friend Bert…

Bert is a very famous athlete, his sport being the javelin throw. He is 28 years old and has been training since the age of five after he found his first ever Javelin waiting for him in a stocking one Christmas morning (this was back in the day when Santa was not very good at picking out gifts for the under tens and Health and Safety were less on the ball than they are nowadays). Due to many years of training and a natural talent for throwing long pointy objects, Bert excelled at his sport and was thus invited to attend the Olympics in Rio this year. Bert was thrilled. He immediately packed his bags, stepped on a plane and set off to Rio (I don’t know how exactly he got through airport security with a massive javelin when most people aren’t allowed more than 100ml of shampoo but just go with it).
Upon arrival, he went to the stadium in which his sport was to be held, but prior to reaching the changing rooms, a strange man in a top hat came up to him with news that shocked Bert to his very core. For some unknown and mysterious reason it was confirmed that Bert was indeed to compete in the Olympics…BUT NOT IN THE JAVELIN. No, because of some kind of spelling mistake on behalf of an overworked secretary, Bert had been entered into the dressage, an understandable error as we all know how often one will accidentally find oneself writing “dressage” when meaning Javelin. Whoever wrote the dictionary really should have made those words less similar to save us all the stress we face in daily life… ANYWAY. Bert cried out and pleaded with the top hatted man for the error to be changed but there was no way, and thus it happened that Bert found himself as a competitor in the dressage event Rio 2016 despite having no knowledge of dressage whatsoever. With two hours to go before the competition started, Bert rushed off in a panic to try and find someone with any knowledge of dressage, but alas though he looked in every nook (he forgot to check the crannies), he found nothing, and had to turn up to the event as clueless as the moment he had stepped off the plane. Only when it was his turn to perform did he realise the problem even bigger than having no knowledge of dressage. He had no horse. Therefore poor Bert had to compete without a noble steed, resorting to galloping and prancing around the paddock tossing his imaginary mane all alone. It was a catastrophe.
Now, let’s just imagine that story again, but with one very important detail changed. In this second version, instead of finding out about the unfortunate spelling error in the stadium, he found out in a phone call from the man with the top hat before he packed to get on the plane. This way the situation awaiting Bert was to be exactly as it was the first time, but in this version Bert had time to prepare. By knowing about the mix up beforehand, he was able to run to the fields prior to his flight and purchase a horse from an old farmer called Frank, to accompany him on his journey (again I have no idea how he got a horse through airport security but to be honest if the unrealistic portrayal of airport security is the only thing you are finding hard to believe in this story then I feel I am doing rather well.) When it came to the dressage event Bert still had little knowledge of dressage, but having read a pamphlet on the plane and with his horse, he was able to compete considerably better than he had in the alternate universe where he had been forced to gallop around the paddock himself. Did Bert still come last in the event? Yes. Did he score the lowest mark in the history of dressage at the Olympics? Of course he did, but by anticipating the sudden event change before getting on the plane, Bert was able to prepare the best he could for the inevitable difficulty in his future and thus able to manage the situation far better.
Now, if we read this story and interpret participating in a sudden dressage competition as being forced to suddenly face one of your triggers without ever having thought about how to deal with it first, I think we can all agree that it was better for Bert to be aware of the upcoming problem so that he could prepare, and therefore better for people to anticipate and think about ways to manage their triggers before they are sprung upon them unexpectedly.
Did Bert having a horse stop all of the distress and anxiety when performing? No, but he was at least better prepared than in the first story and was able to do all he could to make the best of that situation/gather a horse together.

Knowing your triggers will not cure you of your illness, but there are times in which it can help manage the surprise bouts of anxiety when these triggers come up in situations you hadn’t expected them to (say for example a sudden kidnapping from a band of rogue members of your local Weight Watchers).
Obviously by simply being aware of what situations or things trigger you, you are not going to change the affect those triggers may have or lessen any distress they may cause. Even when you are aware of what makes life difficult those difficulties will still affect you, but when you are aware of what sets your disorder off, you are at least able to anticipate ways of dealing with it.
Thinking about triggers is always going to be hard, yet I can assure each and every one of you out there that doing so is a lot easier than encountering them unawares, just as it is much easier to perform in Olympic dressage when you have a horse…

Take care everyone

2horse

How To Fight Fear With Fear In Recovery From Mental Health Problems

/ bornwithoutmarbles / 4 Comments

When you are in treatment for a mental health problem, one of the questions that comes up a lot is the query of “What do you want?”. Many people find this helpful, and in thinking about what they want from life, they find motivation and strength to recover. For example, I know a lot of people with eating disorders who want to have children, are helped to eat by the thought that they need to be healthy to have a nice comfy womb (that is the scientific term for “be fertile” I believe).
When you know what you want from life, it doesn’t make recovery easy, but it gives you a purpose, something to fight that nagging voice in your head with, an argument as to why you are forcing yourself to do things like challenging pieces of therapy that make you feel uncomfortable. With an end goal, the stress and pain of recovery make sense, like running a race and focusing on the finish line with a giant gold trophy at the end of it, whether that trophy represents kids, a passion to travel the world or a desire to pursue a difficult career that wouldn’t be possible with insanity by your side.

To be fair I think “What do you want?” is a really important question for anyone to ask themselves in life, or indeed an important question for waiters to ask customers prior to bringing them food. Imagine if every time you went to a restaurant the chef just always assumed you wanted oranges and served everyone who ever sat at a table a bowl crammed with citrus wedges without finding out if the person liked such a thing first. WHAT A MAD WORLD THAT WOULD BE!
Clearly then, the aforementioned question is vital for sanity in the mental health world and the restaurant trade, but the problem with it is how you answer such an inquisition when you are unsure of exactly what you want, what your goal in life is, and it is an issue that can leave you feeling a bit stuck. That is how I feel, like I am running in a race where I can’t see a finish line or big shiny trophy to aim for, and considering that a loss of interest in things is a symptom of depression, I imagine it is a feeling that many are familiar with.

The only thing that I can hand on heart say that I actually have a desire to do, or a want to achieve, is to be a published author one day. That idea is the thing that gets me out of bed in the morning, but I am tentative to make that my overall focus for recovery. Becoming a professional author is a notoriously difficult thing to achieve and I am fearful of basing my entire recovery on such a risky goal that is really quite out of my control. Of course I realise no career or dream is straight forward and nothing anyone would ever really want is easy to reach. After all, if dreams weren’t a little fantastical and difficult, where would the appeal be? The point of dreams is that they have that element of the unattainable surrounding them to make them special. That said, wanting to be a writer is probably up there in the top ten dreams that are seldom realised.
When you want to be a writer, there are no directions, no post code to put into google maps and no yellow brick road giving you a little route to follow to your desired destination. You want to be published and can write all you want, but getting anywhere with it is a little out of your control and a lot of it is based on luck. It really is a case of writing and then keeping your fingers crossed, a particularly difficult combination of actions to do together as when one’s fingers are crossed, it makes it infinitely more difficult to hold a pen to write anything with.

In terms of concrete and definitely attainable things I want then, my pocket of ideas is empty. I suppose I should count myself lucky that I have the want to be a writer at all, as like I said, when you are depressed or caught up in a mental illness, you are so wrapped up in your mind that you can’t want anything other than for the pain to stop.
Coincidentally, when psychology professionals and therapists ask me what I want, that is pretty much my answer. I don’t know what I want, so personally I find focusing on what I don’t want is easier, as I know I don’t want to feel the way I do. I don’t want to feel the weight of sadness on my shoulders when there is nothing rational to be sad about, I don’t want to be anxious about touching doorhandles, I don’t want to shower for ages and I don’t want to care about what food I will be eating in the next few weeks. At the same time though, it has been such a long time since I lived in any other way that I don’t know what the alternatives to those things are. When you have been out of the real world for so long, how can you remember what it is like there, let alone what things you would want to get out of it?

It sounds pretty negative to focus on things you don’t want rather than the things you do, but recently I have to say that actually thinking that way has been a bigger help and more of a motivation than any potential desires on the horizon.
When in hospital and indeed now I am back home, at every meal time I am scared and I do not want to eat. It isn’t a case of not wanting whatever food has been place in front of me (please let it be known that my mother is a fabulous cook and all of her concoctions are a delicious treat for all the senses…if you don’t have an eating disorder screaming at every mouthful). No, rather than a case of unappetising culinary creations, when I do not want to eat, it is a case of feeling so sick with terror that I fear consuming the food as I know it will only make that anxiety worse which, clearly, I do not want. If anyone was placed in front of a plate of something that scares them, who on earth would dive in with joyous anticipation of the spine tingling sensations they knew would ensue?
Say someone was scared of spiders and they were presented with a plate of little arachnids performing a traditional waltz around a dinner plate (fun fact, 8 legged insects are fantastic at and passionate about ballroom dancing. You won’t find any evidence of it online or any book so you will have to trust me on that. Seriously though, they LOVE it.)
When presented with these graceful creatures using crockery as their own professional dance floor, who with a fear of spiders would offer a hand to one of the many limbs scurrying before them in the interests of dancing a jive or having a cheeky go at a tango? More importantly, who would want to? Probably no-one. The only way I can think of getting someone to want to do such a thing would be to make an alternative which they wanted less. For example, if it was a a case of dance with a spider for ten minutes or marry a spider for life, I imagine a lot of arachnophobes would want to give the insect tango a try.

That is in essence how I manage to eat at home and how I motivate myself to do a lot of challenging things treatment requires of me in terms of anorexia, OCD or indeed depression. I do not want to eat, I know that I will feel anxious and an agonising guilt just from picking up the fork, but I know that if I don’t there will be consequences I want even less and fear even more, such as my CTO having me hauled back into hospital before I can say “why are there nurses banging at the door?”.
I guess what I am trying to do is play fear at its own game. I know that I am going to be scared every day and I don’t have a positive idea of what I want in life to override that. Therefore instead of being cornered by the fear, I come back at it and use fear to make me do the things I am scared of by creating a far more horrifying alternative, by making whatever action scares me in recovery the “lesser of two evils” as it were. I am scared to eat dinner this evening, but I am more scared of being taken back into hospital and made to gain more weight, so I know I will get on and chow down no matter what.

I would love to write a Disneyfied post instead of this, one that reassures any readers out there that dreams can come true, can conquer any mental torment and that focusing on the positives like answering the question as to “what you want” in life is the key to recovery. I want to tell people who are struggling that all you have to do is find your passion as the way to overpower your demons once and for all, but answering that question as to what you want is a challenge in itself. Of course it would be infinitely better if I were able to eat a steaming bowl of spaghetti without any anxiety because I had goals and passions in life stronger than the fear flowing through my veins, but it is I suppose better to use fear to manage the scary things than to not do the scary things at all.

If you have a mental illness that is taking over your life and you don’t feel a burning desire to dance like Billy Elliot or paint like Van Gogh pushing you forward, don’t let that lack of knowing what you want hold you back and don’t let the fear of making changes bind you in chains. Play fear and lack of interest at their own game, take advantage of them. Rather than being dominated by an OCD or anorexic fear of touching a door handle/eating pasta, think of the alternative to challenging that behaviour and find a fear of living your whole life being controlled by your neuroses that inspires a greater terror than any door handle/Italian carbohydrate ever could. I can’t promise it will work and I can’t even be sure whether or not this will make sense to anyone out there, however this post is at least an attempt to explain how I am dealing with the fear and apathy involved in the struggle for sanity.
Nobody ever wants to feel fear, but often when it comes to mental illness, fear is all you have, so I for one am going to use what I have got until I can find something better.

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Six Tips For Going Home After A Hospital Admission For Mental Health Problems

/ bornwithoutmarbles / 8 Comments

You know that feeling when you go to the cinema, watch a film, then leave the pitch black room of the movie theatre and step out into the light? Usually, if you have been seeing a film in the day time, the sunlight outside will be such a contrast to the dimmer environment you inhabited previously, that you end up blindly staggering around in a daze wondering where you are, how to deal with the situation, and why on earth that small bucket of popcorn you purchased cost £50.
That overwhelming sudden change in environment and resulting confusion is pretty much what it is like when you leave inpatient treatment in a mental health hospital for the real world after several months (though I admit, in that situation, you are a little less concerned about the price of popcorn in cinemas than the analogical version suggests), and this is one of the reasons so many people relapse the moment they leave 24 hour care.
In hospital, you are helped to manage your mental health problem in a very specific environment which, once changed, can make someone feel like they are mentally back at square one, home in the house with the same ghosts that haunted them prior to admission. Everyone knows that going into hospital is hard, but at the same time, there are moments when leaving and going back home doesn’t feel any easier. There is a lot of support out there for people who are due to be admitted, but not a lot of help for those on the brink of freedom, and when on the brink of anything (e.g a cliff or freedom), it is vital to have a parachute, a safety net, a plan, and that is what I hope to help you lovely people with in this post. So as someone who left hospital a mere six days ago themselves (it is a very long story that I won’t bore you with here, but in summary I kicked up a right fuss about being in hospital and have been allowed home on a Community Treatment Order, a full explanation of which can be found via this link to my post about the Mental Health Act…https://bornwithoutmarbles.com/2016/07/11/demystifying-the-mental-health-act-with-penguins/) here are a few nuggets of advice for how to deal with leaving inpatient treatment after a lengthly admission:

1. Make a plan and stick to it: When you are in hospital, there are usually a lot of rules and staff who enforce them. Your days are structured, and going from this very regulated, controlled environment to total freedom where you can do as you please, can be a frightening shift in responsibility. Therefore it is vital to make a plan and rules to stick to at home so that the change is less dramatic and you still have boundaries, rather than the secure bars of safety falling down around you and allowing your mental illness to run wild. Create a basic timetable to follow (not religiously, just to give you a sense of how to structure the days you are suddenly free to spend as you choose), and implement any non-negotiable rules from the ward at home. Follow the plan of recovery that you have been working on in hospital and don’t let your days be filled up by the to-do lists scribbled on the walls of your mind by your anxieties.

2. Take it one day at a time: Before going home it is important to acknowledge that making the transition is never going to be perfect. There are new challenges to face, and with that it is likely there will be little slip ups along the way (If you watched hurdles at the Olympics this year you will know exactly what I mean. Seriously those people were professional hurdlers and they still kept falling over and sending hurdles flying all over the place). The key however is to not see every set back as permission to revert to relapse or give up the race. If you mess up one day, start afresh the next morning and don’t let a bad hour spiral into another bad year. Treat mistakes like sand castles, make them, acknowledge them, whack a shell on top, and then watch the tides of time wash them away.

3. Keep Moving forward: Whenever I leave hospital I often find myself feeling that the geographical move signals a mental move in terms of recovery. When inpatient you are constantly being pushed to move forward, but when you go home it is easy to halt all progress and remain static because your head tells you that you are “not in treatment anymore”. The truth is, wherever you are, you are in treatment and progress in recovery is possible, so to avoid getting stuck, make a list of goals or challenges for each month to keep progress going.

4. Ask for help: Bottling up thoughts and keeping how you feel a secret is a lot harder in hospital than at home because in hospital there are people constantly following you around and shining a torch in your face at night to check if you are sleeping, which, funnily enough you were until someone rudely shone a torch in your face (if you have someone doing that at home then you should probably bring it up with your landlord). Asking for help when inpatient then is not really necessary, because help is often following you around even when you don’t want it. At home however, it is easy to isolate yourself, pretend you are ok to please others, and fall down a slippery slope greased with eels and vaseline because you fear letting others know that you need a little assistance in scrambling back up aforementioned eel ridden slope. Admitting you are struggling is tough, but it is tougher to fight your battles alone. If you can call the hospital to speak to staff from the unit you were in, do that. If not, call a friend. Either way, reach out, be honest and don’t be ashamed of needing people to hold onto.

5. Use your imagination: Whenever I have been in hospital, then go home and struggle, I often find it helpful to imagine I am back in hospital. It doesn’t sound like particularly great advice to help someone in their journey to mental stability by telling them to imagine they are in a psychiatric unit (in terms of signs of insanity that one sounds pretty high up the list), but I like to remind myself of the fact that though things feel so different and so much harder at home, really the only difference is location. If you have managed to eat your meal plan/not self harm/resist compulsive behaviours within hospital walls then going home and doing the same is, in practical terms, no different. The hurdles as it were have not got higher, they are on a different track, so if you can leap them in one place you can leap them in another. Don’t let your head spiral out of control and make you believe that doing what you have been doing for months is as drastic as it feels.

6. Acknowledge that you are still unwell: One of the biggest mistakes when leaving inpatient treatment is to see yourself as “better” and able to thrust yourself back into hard core “normal life”. Just being at home will take a lot of energy and mental effort, so don’t force or pressure yourself to going straight back to a stressful job full time when you have been out of action for a while. Allow yourself to still see the journey to recovery as your full time occupation and ease yourself back into things gradually. If you have a job, maybe go back part time at first so that you still have time to look after yourself, and find your feet back home. Then when you have found your feet (and we all know how much easier life is when one is aware as to the location of all body parts), you can try full time again, but take it steady and prioritise mental health.

So there you have it! Six delightful tips to help keep you on track when making the difficult transition from hospital to home. Maybe calling them delightful is a bit of a stretch, but they are at least what I am trying to use to help me as I find myself suddenly back in reality after several months of being locked away behind a very high and unscalable green fence.
On a more personal and honest note, I know that discharging myself from inpatient treatment six days ago was probably not the best idea, and I know I did it for the wrong reasons, but hopefully it will work out OK in the end. Whether or not these tips are any good of course will be determined by how things go over the next few months of me carrying them out myself back at home.

I guess that is something we will find out together…

Leaving inpatient tips

Preparing For University With A Mental Health Problem

/ bornwithoutmarbles / 8 Comments

In a few short days it will be September, aka the month in which all of the leaves turn orange and everyone takes this as a sign that everyone should probably go back to school, or, potentially, to university. What with leaving home, meeting new people and learning to use a frying pan, going to university for the first time is stressful for anyone. With mental health problems however, the experience can be a whole new level of terrifying, and although your chosen institution may provide a handy welcome pack with maps and phone numbers of who to call when the oven explodes, they never seem to offer any advice on how to deal with the whole thing when you are a new student without marbles, a situation I found myself in several years ago.

I think part of the problem is that before people have even stepped onto campus, they have built up an image of what their first year at university is “supposed to be like” and anticipate having to be involved in various situations they may not be comfortable with.
People expect that they will have to drink copious amounts of alcohol, attend wild house parties where somehow everyone ends up naked, make best friends with everyone living in their accommodation, share a kitchen with people who never wash any dishes so that by month three the sink is covered in plates that have rapidly been growing some kind of blue fungus, carry out crazy pranks with their hilarious roommate Colin, get entangled in a passionate one night stand with a mysterious moustachioed stranger, live off kebabs/Pot Noodles/Pizza, experiment with drugs, and capture all hilarious moments on a polaroid camera to place carefully in a scrapbook which will then provide unforgettable memories of the university experience that will forever be heralded as the best three years of your life.
That university image, so often portrayed on social media, is understandably a nightmare concept for various mental health conditions. People with depression and social anxiety may fear attending all these wild parties when they are often unable to get out of bed, let alone party and interact with strangers. People with OCD may struggle with the wild unstructured “anything goes” attitude and questionable hygiene or lack of ritualistic order associated with student living, or people with eating disorders may fear having to drink alcohol and eat pizza to fit in at any social gathering.

Well, if that wild carefree party life described above matches your expectations as to what you think university will be/require you to live up to, I would like to invite you to place those expectations or ideas of things that are “supposed to happen” in a box, and then smash that box with a fairly large mallet. Nay, lets go wild. With a flipping colossal mallet.

Admittedly, my description of what people envisage before they go to university, really is the experience had by some students (bar the bit about hilarious pranks with roommates called Colin…people called Colin don’t tend to like pranks), but it isn’t the experience that you have to have or feel pressure and stress to be involved with. I would love to say that going to university with a mental health problem is easy, and it is true that some people find the new environment beneficial to recovery, but that doesn’t happen for everyone and it is important to acknowledge that so we can deal with it.

Indeed, when you embark on your university journey whilst dealing with a mental health issues, it is likely that it is not going to be straight forward and you may not have the same experience as everyone else. It isn’t pessimistic to think this way, it is realistic, and being aware of potential difficulties from the outset is a far better way to go about things than charging forth unprepared with deluded optimism, pretending you don’t have mental health issues in hopes that they will just go away. Denying them will not make university any easier and not dealing with them could make difficulties you thought wouldn’t be an issue come as quite a shock. The key is to accept early on that you are going to university in perhaps a different situation to most people (after all it isn’t every student that goes to get a degree whilst fighting an unrelenting mental health gremlin), and that is ok, not something to feel ashamed or guilty about.
You don’t have to pressure yourself to live the “expected” university life of gay abandon if that is something you cannot manage right now…

…That said, I am not trying to tell you all to go to university and allow your mental health issues to take over entirely, as whilst you must acknowledge the issues are there, it is good to challenge yourself and try new things. TO AN EXTENT.
University can provide opportunities for millions of new experiences, and though you may not be able to join in with all the things that are on offer, if there is something you would like to try that challenges your mental health problem in a manageable way, (whether that be going to a society, or saying hello to someone in your accommodation), go for it. I know I avoided all challenges in the early weeks by totally isolating myself (aka I lived under my desk for a month covered in a blanket in fear another student might see me through the peephole in my door and want to say hello), and it made things a hell of a lot worse for me in the long run.
Eventually however, I came out from under my desk, and over the three years I managed to go clubbing/ to a party a few times and live with some lovely girls in a shared house. I didn’t want to do any of these things and was terrified for various OCD, anxiety, ED reasons, but on days where I felt a little stronger, I pushed myself to try and join in with others. Of course it was difficult and I can’t say it always went to plan, but by dipping my toe into the waters just outside of my comfort zone occasionally, I managed to have some fun that I would have missed out on had I kept myself locked away in my rituals and bubble of safety.
What I mean then by saying you should challenge yourself to an extent, is to be aware of your difficulties and know when a challenge is manageable and when one is not. It is great to give scary things a go, but do not blindly leap so far out into the waters of your comfort zone that you end up drowning if you are not ready, just because you feel you should/feel pressured to. It is not weak or boring to say no to things everyone else is doing, so don’t be too hard on yourself. Nobody “fails at life” just because they didn’t manage to go to that foam party with UV paint being splattered into the crowd and needed to spend the night curled up under a blanket for a good cry instead.

It really is key that people remember the fact that when going to university with a mental health issue, you are ill, and have to put as much time into prioritising care for your mental health as you do for prioritising attempts at socialising or writing essays.
For example, if you have an eating disorder, it is important to make time to eat, follow any prescribed meal plan you have and not let things slip just because you are away from people at home who “know”, so if you miss bits nobody will notice. If you have depression and can’t get out of bed for a few days, take care of yourself and keep yourself safe rather than beating yourself up or feeling guilty about it. Prioritise taking your medication, make time to go to the Doctor, seek out mental health services available to you and take up offers of appointments. Equally, inform lecturers of your issues so that they can support you if you miss a lecture or require essay extensions, as although scary, being honest with staff and the support I received in return was vital for my experience.

Most importantly and the most difficult thing to accept though, is to know when enough is enough. It would be great to go to university with mental health problems and for it all to go swimmingly, but if that doesn’t happen and if you going to university has such a dramatic impact on your mental health that you find yourself becoming increasingly unwell, accept that this might not be the right time for you to be there. Allow yourself to drop out or defer until another year. Maybe in a few years time when you are in a better place you can try again, or maybe university just isn’t right for you, but either way it is fine, not a sign of failure, and no degree is worth sacrificing your health for.

There are a million other things I could probably go into when it comes to university and mental health or more specifics in terms of how to deal with it with specific illnesses, but I have waffled on too long and as a basic overview, I guess this is my advice:
It will be hard, it will be scary (much like an old toffee wearing devil horns), but the most important thing is to just try your best, take care of yourself first and never give yourself a hard time for being unable to live the “typical student” lifestyle.

That said if anyone would like more specific information or tips on managing university with certain illnesses or situations, feel free to comment or message me privately and I will do my best to help. To all those going to university in a few short weeks, good luck, I will be thinking of and supporting all of you. Take care.

University

Unveiling The Secrets Of Life As A Mental Health Nurse

/ bornwithoutmarbles / 13 Comments

As you are probably all aware, this blog is a blog about mental health.
If you weren’t aware and thought this was actually a blog offering gardening tips, then I am sorry to disappoint you, but I really have no advice to offer in that department so you may want to look elsewhere for tips. All I know is that you should water your plants…but not too much…and plants need sunlight…but then some like to be in cool dark cupboards…yeah like I said I really am not qualified or experienced as a gardener…ANYWAY, browsing the titles of my current collection of posts I have noticed that most of them are aimed at people with mental health problems, but what about a post centred around the people who spend their lives trying to treat those without marbles? How do they feel about working with the mentally ill? What do they like about the job and which parts make them wish they had steered clear of the anxious and the depressed inhabitants of this godforsaken planet, to pursue a career in fish mongering instead? What makes them dream of swapping therapy for cod and medication side effects for a nice piece of haddock? What advice do they have for people thinking about becoming a mental health professional and how does one go about following that dream? If the mentally ill are plants, who are the gardeners providing enough warmth for seed germination and growth? (Please note I just used the word germination…that is a gardening term…maybe I am more qualified in that department than I realised). Well, if you have wanted to know the answers to any of these questions and even if you haven’t, I am here today to give them to you anyway in a hard hitting interview with a real, qualified mental health nurse working on the ward in which I currently reside. Prepare yourself for the secrets of the mental health professionals, the story behind the shift work and a very confused nurse wondering what on earth I am talking about…

LIGHTS GO UP.

[The nurse and I are seated in blue chairs in a place known as “the quiet room”. The conversation begins whilst the sound of the cleaner mopping slops rhythmically in the background]

Me: Hello Nurse Gertrude Potatobucket, thank you so much for joining me today for this interview.

Gertrude Potatobucket: What interview? Who is Gertrude Potatobucket?

Me: This interview. I want to know about the life of a mental health nurse for an article on my blog. Also you are Gertrude Potatobucket for the duration of this interaction because I am hiding your real name in the interest of confidentiality, so you can be brutally honest as nobody will know your true identity.

GP: I will agree to the interview but can’t I pick another name? Why does it have to be Gertrude Potatobucket? That sounds ridiculous.

Me: I will have you know it is not at all ridiculous but is an underused name that deserves more recognition, so no, you cannot pick an alternative. Anyway, I’m supposed to be the one asking questions here so please just accept your new identity and lets get to the good stuff.

GP: Katie I really think…

Me: [In a loud and interrupting manner] QUESTION ONE. WHAT DOES BEING A MENTAL HEALTH NURSE ENTAIL?

GP: [Sighs…there is a long pause during which the sound of mopping appears to increase in volume until Nurse Potatobucket realises that she is going to take part in an interview whether she likes it or not and gets on with answering the question at hand]. The role of a mental health nurse is different depending on what kind of service you are working for but in terms of my responsibilities on this Eating Disorder Unit, I am in charge of co-ordinating health care assistants on shift, running support groups, working with patients in 1:1 sessions, supporting them at meal times and I am in charge of handing out any medication prescribed by Doctors or psychiatrists.

Me: What a busy bee you are! I can almost hear you buzzing, your face is practically aglow with black and yellow stripes. So tell me Gertrude, how did you earn such responsibility? How does one go about becoming a mental health nurse? What training is required?

GP: To be a mental health nurse you need to have at least 5 GCSE’s including maths, English and Science and then go to university for three years to study mental health nursing. You don’t have to go to university to work in mental health though. If someone wanted to be a Health Care Assistant they would need to have something called a care certificate, but it is possible to get a job as an HCA without any official training. If someone has experience in mental health and does a good interview for a job, they may be offered a position and then have the opportunity to do the care certificate whilst working.

Me: Well to qualify alone sounds like a lot of fun but how about the job itself? What would you say is the best thing about being a mental health nurse?

GP: Supporting people and helping them to make positive changes in their lives.

Me: How nice. I don’t want to paint a misleadingly fluffy picture about the job though so tell me, what is the worst thing about being a mental health nurse?

GP: You see some really sad and upsetting stuff. Also shift work can be difficult as you never have a fixed schedule or routine and can be working at day or night depending on your rota. That said I know that “Bertha Potatonose” likes shift work as it enables her to be flexible when looking after her children, so it is different for everyone. Oh God I have just used her real name, can you cut that bit out?

Me: No need, I will simply hide her identity by replacing her real name with Bertha Potatonose.

GP: What is it with you using the word potato in fake surnames?…

Me: [Even louder and more interrupting than the first time the interviewee started to question the interviewer] QUESTION FIVE: HOW DOES BEING A MENTAL HEALTH NURSE AFFECT YOUR DAILY LIFE AND WHAT ADVICE WOULD YOU GIVE TO SOMEONE WHO WANTED TO BE A MENTAL HEALTH NURSE?

GP: [Sighs. Despair at the situation is visible. The cleaner is still mopping in background]. First off I would advise someone to get some life experience or experience as an HCA. Secondly I would say that in terms of daily life you really need to learn to leave work at work and look out for your own wellbeing at home. You can’t look after someone else unless you have first looked after yourself.

Me: Does this mean there any people then that you would advise to avoid looking into being a mental health nurse? Are there any people you feel would be particularly unsuited to the role?

GP: No. It can be a difficult job but anyone can be a mental health nurse. Different people bring different life experiences, skills and character to the job and I think that is important. Mental illnesses don’t all fit into a neat box and neither do the people who are able to be great Mental Health Nurses.

Me: Inspiring. Truly inspiring.
Now Ms Potatobucket, I know that the people at home often worry when speaking to a mental health professional in candid honesty about their condition that they will be thought of as “crazy” or “weird”. Answer me honestly, do mental health nurses ever judge patients regarding what they say in a session?

GP: No, there is never any judgement. All I feel towards people talking about their difficulties is empathy and I want to show compassion towards the difficult time they are having in life.

Me: Well that is a relief. I am sure we will all rest easier in our beds tonight knowing that we can spill our inner most thoughts without fear of being thought to be “weird”. In addition to worries like that, a lot of people in treatment out there may also be struggling at the moment and feeling like things will never get better. Do you think recovery from a mental illness is ever really possible?

GP: Definitely. All mental health nurses hold the hope and belief that the people they are treating can get to a better place. I think everyone is capable of building the strength and determination not to let their mental health problem rule them forever, and in learning skills they can gain confidence they may not have had initially in fighting their issues.

Me: Fascinating stuff Gertrude. Truly fascinating. Now finally. The question everyone at home has been waiting for and the most important piece of information in all of this. Tell me, has being a mental health nurse in any way altered the opinion you hold with regard to penguins?

GP: What does that have to do with working in mental health?

Me: [Incandescent with rage at being asked a third question during the interview] MS POTATOBUCKET

GP: Oh for goodness sake ok, yes, being a mental health nurse has given me a new found appreciation for penguins.

Me: Aha! Just as I expected! Gosh! Looking at my watch it appears we are all out of time! Thank you so much for answering these questions Nurse Potatobucket. Your honesty and words will touch millions. On behalf of all my readers please know that we are eternally grateful.

GP: Can I go now?

Me: Absolutely

[Interview ends. The sound of mopping in the background has stopped. Upon leaving the room the cleaner is nowhere to be found and only a mop lies in the corridor. The cleaner has not been seen since…]

FADE TO BLACK

Well there you have it! The hard nitty gritty truth about what it is like to work as a Mental Health nurse, how to become one, and how such a career can affect one’s opinion on monochrome birds who refuse to comply with society’s expectations and use their wings to fly. I really hope that this helped people out there either if they are thinking about becoming a Mental Health Professional or those in treatment worrying about what carers in an inpatient setting may be thinking. It appears there is no judgement when it comes to working with the marble-less hoards and no matter how it feels at the time, it seems there is always hope and the potential to recover.
Now if you don’t mind me I am going to abandon my job as journalist for the day and turn to a little detective work. I really am getting worried about the case of the mysteriously disappearing cleaner that took place during this interview…any witness statements would be appreciated in the comments.

I will speak to you all next Monday, take care x

 

Gertrude Edited

Delayed Maturity In People With Mental Health Problems

/ bornwithoutmarbles / 23 Comments

In a few weeks time, my parents are flying to Malaysia for a fortnight’s holiday whilst I stay in my slightly less exotic summer holiday home of the English psychiatric unit (note I say only say slightly less exotic. Malaysia may have rainforests and tropical climates but I will have you know we have pineapple juice in the fridge here as a breakfast beverage option). The prospect of two weeks without my Mum and Dad here is terrifying. As a 24 year old I feel I should be past such anxiety when separated from my parents, but I can’t help it. In terms of maturity, I am ridiculously behind other people my age, in terms of development into an adult (whatever the hell that is).
Rationally, I suppose most people would miss their parents whilst they go galavanting off around the world and I know nobody feels prepared for becoming an adult. A lot of my friends for example are a rather taken aback with things like moving out or paying electricity bills, and like me often very much feel like retreating into a blanket fort to watch a Disney film. That said, because of all this mental health nonsense, I feel I am so extremely behind that it is as if I am in a giant swimming pool with all the other people my age, and that I am the only one who still has arm bands on. Heck I am not even in the pool with them, I am sitting in a paddling pool on the outside, splashing about and wondering how on earth these people are performing the front crawl with such ease.

This feeling of being behind my peers in terms of growing up used to worry me a lot, but “delayed mental ageing” or “stunted development” is very common in people with mental health problems. I have no idea why exactly this is, but if I were to guess I would say it was because when you are riddled with an illness of the mind, you kind of step out of the world and get lost/trapped inside of your head. Your neuroses and anxieties become your universe, they consume your entire being in terms of thoughts and behaviour, and it is very easy to forget that there is any other planet out there at all.
With things like OCD, your world is your rituals, every action requiring such concentration and focus that you have no senses spare to be receptive to anything else. When you are depressed you are too busy trying to motivate yourself to keep breathing to have time for real life stuff, and then there are eating disorders where your entire universe is food. No wonder then that people often describe people with severe mental health problems as “totally out of it”. Sometimes, they really are holidaying on the outward planet of insanity with whatever anxieties that involves, and in being this way they miss a lot of what is really happening in the real world, not because they are self obsessed, but because they are not there.

This wouldn’t be as big an issue as it is, and it wouldn’t potentially “stunt” or delay development and maturity at all if the world would just stop spinning whilst us marble-less creatures were otherwise engaged. If the world waited, people could just get better and pick up their lives and development from where they left off before the insanity creatures whisked them away, but that is the problem. The world doesn’t stop turning (sometimes Earth can be so inconsiderate). Even if you are living on a different planet, time in the real world still passes, so when you try to recover and return to normality it can be quite a shock to the system.
This shock is a really difficult thing to explain to people who haven’t experienced it, so in classic Born without Marbles style I am going to try to make some sense of it via some kind of analogy. The analogy? That coming back into the real world after being trapped in a mental illness is sort of like the feeling you get when you watch a TV program for several months, miss a few years, then try to pick it up again only to be baffled and confused as to what on earth is going on.

In this analogy, sane people have been watching a daily television show, lets call it “The Life and Times of Percy The Penguin”, a soap opera style show about a community of penguins living in the Arctic (think Coronation Street with more waddling). The sane people have never missed an episode, so they have seen the story grow over the years, and learnt things about the world that have changed and enhanced their lives. Each episode actually helps people develop in life.
Now, the person with mental health problems starts off watching this program too, but then, just in the middle of an episode in which Percy is getting married to his childhood sweetheart Patricia, the mental illness kicks in and whisks them to a world where there are no televisions. Whilst they have the illness they are trapped in this other world, anxious, alone, repeating rituals, hearing voices and experiencing a whole other load of things that most people never do. Despite their absence however, in the real world, the television show continues on without them.
Say they are then stuck in this mental world for a decade but then finally break free, back to reality. One may assume that they can join back in watching the program, understanding life in exactly the same way as everyone else, fitting in just like before, but unfortunately that is not the case.
They turn on the TV and are immediately confused by the image that confronts them on the screen. Where the hell is Patricia they wonder? Why does Percy have a wooden flipper? Who is this Polly he is married too? Why are Percy and Polly crouching in a bunker looking terrified and why have all the other penguins in the village been replaced by seals? It makes no sense.
To everyone else the answers are obvious. By staying in the real world they never missed an episode and have grown up over the years alongside the program, their understanding and knowledge continuing to grow as the program progressed. They are all well aware of the fact that in “The Life and Times of Percy the Penguin”, Patricia actually turned out to be an evil seal in disguise who ripped Percy’s fin off in the middle of their wedding, resulting in the rather splinter ridden replacement. They all saw every other penguin in the village reveal themselves to be evil seals working for Patricia, with the only real penguin other than Percy in the area being a hidden gem named Polly, who Percy then fell in love with, married, and is now hiding in an ice cave with planning how on earth the pair will overcome the wrath of Patricia the dictator and her fin flapping minions. The mentally ill person can try and catch up, scrabble around for any video tapes or use Google to find out all the things they have missed, but it isn’t the same. The lessons learnt over the missed years and development in everyone that the program inspired, happened in a time that cannot be retrieved, leaving the mentally ill person understandably behind and immature in comparison.

That is how I feel right now, and considering I first got ill when I was 11, I feel that mentally I am still that age, not even a teenager, yet in recovery everyone is trying to force me into this world of the 24 year old. It is terrifying. “Getting better” from any mental illness is quite a challenge as it is, but getting better AND trying to cram 13 years worth of growing up into a couple of months is a bit much to ask. I am just not ready to be 24 yet, I haven’t had all the years leading up to it to prepare myself and I haven’t learnt the lessons you are supposed to learn alongside friends who are going through the same thing, friends who are now rather far ahead of me.
Whilst all the other people at school were leaving the beanie babies behind, hitting puberty, getting hormones and falling into relationships, I was too busy calculating the calories in an apple to join in with all the developing. When they were learning to drive, I was off counting the number of times I had washed my hands, and when they began to move out of their family homes I didn’t notice because I was too upset or anxious to come out from under a blanket.

I feel silly and embarrassed by these things, but at the same time I want to talk about them openly so that more people can understand and fewer people have to feel ashamed. It is easy to judge someone for living in their parents’ house past the age most people have moved out, but I think it is important for people to be aware of the fact that this whole stunted development thing is a real issue and yet another complex reason to add to the list of what makes recovery from any form of insanity such a scary, and difficult process. Maybe one day if I “get better”, spend long enough in the real world, then I won’t feel so alienated and distant from friends my age living adult lives. Maybe one day I will understand the friends I have who are considering getting a mortgage (what the hell is that?), whilst I consider which starter Pokemon to pick (Squirtle every time), and maybe one day I will have the answers as to how to sort your life out when your mental age feels so disconnected and underdeveloped compared to everyone else. I certainly hope so, and as soon as I find those answers, I will be sure to let any of you others out there who are struggling with this issue know exactly what they are. Until then, I guess I will just have to keep my arm bands on as it were. Force myself out of the paddling pool, keep jumping in the deep end where the other 24 year olds are, splash around a bit and hope to God there are some good life guards or at least a rubber ring floating around.

Stunted

Why Friendship Is Important When Battling A Mental Health Problem

/ bornwithoutmarbles / 7 Comments

A few months ago I read a quote stating that when “I” became “we”, mental illness became mental wellness. Now at the time I will admit I thought that statement was a nice thing to write on the wall of a psychiatric unit (as in properly artistically written as a message, purposely placed there by the authorities rather than some crazed crayon scrawl of a patient with too much time and too many crayons), but other than that I didn’t believe the statement very much. It felt like one of those things that is all well and good to say like “the sun will come out tomorrow” and other similarly cheesy phrases sung by red headed orphans who have no experience, knowledge or authority in weather forecasting to make any such predictions, but I have to say that over the past few weeks, I have realised that this quote is actually pretty accurate. Okay, it is not flawless, but there is a lot more truth in it than the words of a deluded 10 year old who thinks no outfit is complete without a smile, a very inappropriate thing to wear to a relative’s funeral.

I think I can say on behalf of many, that having a mental health problem is very lonely.
For one thing there is the actual physical distance created by mental illness. Maybe your difficulties restrict your ability to take part in life so you lose touch with friends leading “normal” lives and end up pretty isolated. Maybe you have to take time off work to go into hospital or to have treatment which separates you from the community in which you may have played a part. Maybe you fall out with acquaintances who cannot understand why you can’t “just be normal” when “it’s all in your head” and there is “nothing physically wrong with you”, but the biggest distance is the unseen emotional distance that nobody really talks about. When you are so trapped in thoughts spiralling around in your head, you feel as if you are a million miles away from people who may be sat right beside you, simply because you can’t relate to them in anyway. You watch them laugh, eat or open a door without washing their hands afterwards, you wonder how they do it, and you feel like a lesser underdeveloped species. Furthermore there are the thoughts that come with mental health problems, the low self esteem, feelings that everyone must hate you, the shame and inability to be honest with people incase they think you are crazy, and general emotional detachment from reality.

Both these physical and emotional distances can make you feel like you are the only person in the world who thinks the way you do, and this in turn contributes to the overwhelming sensation of being alone. Don’t get me wrong, being alone is nice sometimes, but when you are feeling alone and trying to battle a mental illness that is hitting you on the head with a mallet every five minutes, it can make your individual feeble attempts to fight against it weak and futile in comparison to its all controlling power. What you need is an army to help you, people on your side to support you in battle, in short, you need to call in the troops to face your demons with you, troops who will preferably bring a large number of rather large mallets with them. For this reason, friendship, community and kindness should never be ignored as ways of treating any disorder, for they are pretty much as important as all the therapy and psychiatric drugs in the world.

I guess my attitude to all this has changed fairly recently and has been during my time in hospital. When you are stuck in unfamiliar surroundings with unfamiliar people, anyone is going to feel alone, and that in turn made me feel pretty alone with my problems. Fighting them felt futile and every second pointless. It was like I was a tortoise lying upside down on my back waving my legs around, unable to roll back over, yet being asked to wrestle with a lion, a crocodile, three tigers, and a bear who had somehow developed the use of opposable thumbs and managed to get his hands on an armoured tank complete with canon. As I lay there flailing pathetically, I couldn’t help but think “why bother trying to fight this? I can’t stand on my feet let alone battle a pack of vicious animals with the use of military style transport and machinery”. However, I then received a sudden onslaught of kindness both from friends, family and strangers, and it made me wonder whether or not there might actually be a point in giving it my best shot.
When people feel emotions caused by kindness shown by other people, they tend to say things like that they were “touched” and “moved”, but to say that is to vastly underestimate what I felt. Indeed I was so touched I was practically black and blue all over with the force of it, and so moved that one morning I actually found myself several thousand miles away in the sahara desert, where it took staff on the ward a very long time to find me again (they say they the reason for the delay in locating me was a dodgy sat nav but I am suspicious that they got distracted by the abundance of sand and started building castles…nurses love sand castles). I felt like a gigantic boob with the worlds strongest wonderbra supporting me, and though I never imagined anything positive ever coming from feeling like a boob, here I was proved wrong.

Knowing I had all these people supporting me made me feel empowered and suddenly trying to wrestle all those animals seemed a lot less daunting. I had back-up, and if I joined forces with them then my beasts could be overcome. Furthermore, actually engaging in the battle suddenly seemed worthwhile. When flailing on my back (remember the analogy, I am a tortoise here), not only did I see the fight as impossible, but I saw it as something that didn’t matter because I didn’t care what happened to me. I didn’t care if the lion ripped off my head or the bear flattened me to a pancake in his armoured vehicle. To be honest, when I was admitted, I just wanted for it all to be over. With the support I received though, I realised that it wasn’t just my vote that counted in all of this, it wasn’t just a case of me not wanting to fight and that being the end of it. For some bizarre reason, a lot of other people did think it mattered. They did care, and they did want me to win the fight. There were people who didn’t want to see me torn to pieces, there were people rooting for me, people who wanted me around, so when it came to facing a challenge, lunch for example, I couldn’t help but think “Even if I don’t care and don’t want to do this right now, there are a lot of people who do care, and I am not going to let them down, so for now I will do it for them”.

The confirmation in the quote that when “I” becomes “we”, illness becomes wellness and the important message I want to get across here then, is that when it comes to fighting mental health issues, knowing you are not alone in your recovery can be as important as any other aspect of treatment. If you don’t have mental health problems yourself but know someone who does and you want to help but don’t know what to do, helping them doesn’t have to be as hard as you may think. You don’t need to study all the psychology books in the library to try and understand what they are going through. You don’t have to move in with them, rally them each morning with an inspirational speech and skip encouragingly beside them throughout the day. Trust me, just letting a friend know that you are there for them if they need, that you care about their battle and other simple acts of kindness will do more for them than you will ever know.
Alternatively, if you yourself are sitting there reading this and you have mental health problems, feel that nobody understands, are unable to talk to friends and family in real life about your struggles and feel completely alone, know that this is not the case. I may not know you personally, but I can assure you that I care about your battle and I am more than happy to support you in it. When you know you are not alone you gain power, and that is what I want to give to you. I want you all to know that I am one your side, and that I have three tanks with canons so big that those bears and lions don’t stand a chance. If simply knowing that is enough then great, but if you still feel alone and ever want someone who understands, email or message me. I may not give the best advice and hearing from a stranger may not be what you want right now, but if you need a hand to hold in this darkness, I am more than happy to lend you all mine.

Take care everyone.

Tortoise

Why “Self-Care” Is Important And How To Get Better At It

/ bornwithoutmarbles / 8 Comments

Pretty much every time I part from someone who knows that I have mental health problems, they will tell me to “take care” of myself. It is a lovely thing to say, and an instruction I very much wish I could follow, but for some reason I, much like many other people with mental health problems, find the act of self care incredibly difficult.
It isn’t a matter of being incompetent, if you asked me to take care of someone else I could do it very well, but being kind to myself is another story.

As you are all probably aware, I am currently in hospital trying to battle anorexia, but this week on top of all that going on in my head, I have the added joy of having developed shingles. To be honest when I was first informed of this I was rather excited, for it is not every day one is diagnosed with an illness that rhymes with jingles. As an impulse buy I ordered four large boxes of bells to be delivered to the ward because I really wanted to be referred to as “the patient with shingles who jingles”, but since they have arrived the novelty of shingles has very much worn off and I have lost the ability to go anywhere or do anything discreetly around the hospital anymore, because every time I move it sounds like the ward is being invaded by a troop of morris dancers or Santa’s reindeer.
Practically every hour staff are telling me to sit down, rest and take it easy, when I am anxious or upset and struggling they advise me to do something they know I used to and sometimes manage to enjoy like watch a film, read a book, play a video game or draw, but allowing myself to do these things feels selfish, indulgent and like a waste of time. It is like I always feel I have to be doing something productive, no matter how I feel, something of use to someone else or something to tick off of a to do list, for the act of “relaxing” serves no tangible purpose that I can use to justify it. This problem of self care is especially apparent here in hospital because I can see it in all of the other patients I am surrounded by, they all feel the need to do “something”, without realising that relaxing is “doing something”, it isn’t wasting time but is something vitally important that everyone should do a lot more often.

Whether you have mental health problems or not, everyone in this world has some level of stress and needs to allow themselves a bit of self care and a break for their overall wellbeing. Maybe one of the many reasons the number of people developing mental illnesses is on the rise, is because we are all so busy these days that we have forgotten the fundamental basics of taking care of ourselves. Doing things you enjoy (or if you have depression and find enjoyment difficult, doing things you used to enjoy/not giving yourself a hard time for lying on the sofa when thats all you feel able to do), taking time out, resting and, in short, being kind to yourself, is as important for your wellbeing as all the other crazy things people do in the name of healthy living, like getting enemas or taking cod liver oil tablets.

For this reason then, I have come up with an ingenious piece of advice to all people with mental health problems who struggle with self care, whether that be not allowing yourself to sit and rest because it feels lazy, not feeling worthy of taking a shower/getting dressed/putting on make up/ decorating your room to make it a little brighter, or even letting yourself take a nap. Actually even if you don’t have mental health problems and struggle with allowing yourself to slow down from the hectic stress of daily life in any sense, I would like to urge you in the name of both your physical and your mental health, to do one very important thing for me. That thing? To treat yourself like a puppy. I will even allow you free reign on the decision as to what breed of puppy you would like to treat yourself as (I would say the fluffier the better), and that is not a decision I would trust everyone with, so please, handle the responsibility wisely.

Now of course, by treat yourself like a puppy I am not advising you trot off to the vet to be neutered, microchipped, nor would I suggest entering yourself into Crufts. Trust me, it doesn’t work. (I tried to convince them I was a cocker spaniel to get into the agility round but they didn’t believe me. Told me that I was clearly a poodle and I was so offended I left). No, what I mean when I tell you to treat yourself like a puppy is to do for yourself and be kind/take care of yourself as you would do for a puppy. If you need to rest, allow yourself to nap, if you are hungry, allow yourself to eat, if you are dirty, allow yourself to wash, allow yourself to just sit, to be, to play, whether that be with a rubber ball, some sticks you found in the garden, or the human equivalent in recreational entertainment. Every time your head tells you not to do an act of self care like resting, washing, eating or playing because you don’t deserve it, take the former concept of you and remember that you are a puppy, and if you had a puppy, what would you do? Leave it to starve and force it to round up sheep without a break or rest or play? (For the duration of this post you also might want to imagine you are a shepherd with sheep to herd). Would you treat it so badly that the RSPCA were forced to come round, seize your canine companion and put you in prison for puppy cruelty of the first degree, never allowed to own a dog again in your life? No! You would let it rest and play and eat and wash without even thinking it was indulgent or selfish to do so and it is exactly the same as the right and need to take care of and be kind to yourself.

Obviously in an ideal world you would tackle your issue with self worth so that you felt able to be kind to yourself without having to pretend you were a cocker spaniel, but self worth can take a long time to develop, and it is important to have a way of managing a little self care whilst that self worth is germinating. No matter how low your opinion of yourself, you deserve to be kind and take care. Even the declaration of human rights states we have the right to be treated to a certain standard, and that includes the way in which we treat ourselves. It is illegal for someone to imprison someone without food or shelter, or to keep them from the things they love and hobbies that bring them happiness (that is my interpretation of “The right to your own things” anyway), so don’t let a voice in your head neglect you and treat you like some evil dictator.

One of the groups in the hospital I am in at the moment is all about learning to be kind to yourself and self care, so this isn’t even me telling you to try to experiment living in this crazy way of treating yourself nicely off the top of my head, taking care of and being kind to yourself is officially NHS approved and declared as important. Yes ok the group at the hospital isn’t telling me to pretend that I am a cocker spaniel, but for now that is how I am trying to manage self care until I have worked on the ability to be kind to myself as the mentally troubled, shingles ridden human that I am. So, for now, if you struggle with self care and find the concept of it too hard because of low self worth, please don’t be so hard on yourself. Join me, be a puppy, and treat yourself as such, with love, care, and maybe even with a little belly rub thrown in.

Self care puppies