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Is It Possible To Be Too Open About Your Mental Health?

/ bornwithoutmarbles / 11 Comments

TRIGGER WARNING: This blog post contains reference to certain medical treatments that can be used with people with eating disorders, so if that is something you would find unhelpful then please do not read it for your own safety. If you are like the witch in the Wizard of Oz who melts when coming in contact to water, THIS is your warning to STEP AWAY FROM THE FLUME.

In both the mental and physical health worlds, confidentiality is a BIG thing. When it comes to your wellbeing, there are a lot of rules between professionals, your medical notes and what can or can’t be said in front of friends and family.
Want to keep that random extra hand sprouting from your lower back a secret from Aunt Enid so that she doesn’t start knitting you an extra mitten every winter? No problem, medical confidentiality has got you covered (unlike your third hand which is now not going to have a mitten for Christmas).
Don’t want people at work to know that you have a condition that causes you to temporarily morph into a teapot whenever stressed? That’s fine. Tell the doctor and they will keep that tidily hidden away on a computer protected with lots of codes and National Health numbers that would make your deepest medical secrets hard to find, even if people were looking for them.
You see, when you are dealing with hospitals, everything is kind of like some kind of James Bond spy film, it is all very hush hush, very top secret, very “who can we talk about your bunions in front of” (which, coincidentally was the alternative title for the 1964 classic “Goldfinger” but Shirley Bassey didn’t want to sing about Bunions).
Not only is medical confidentiality important though, it is also fragile, and like all fragile things, this unfortunately means that it can very easily, even accidentally, get broken.

My question however, is if it is YOUR personal medical confidentiality, is it ok/are you allowed, to break it yourself? Are you allowed to be “too open” about matters that other people would usually keep private, in the interests of raising awareness of those issues?
Not to talk about any single person or specific situation in particular or anything (THIS ENTIRE BLOG IS ABOUT ME AND MY VERY CURRENT AND SPECIFIC SITUATION), but is it possible I ponder, for one to be too open say, about a mental health condition and the treatment that may be involved as a consequence?

Like I said, we are not talking about anyone in particular (THIS IS ALL ABOUT ME), but as a very rough, vague and unspecific example, lets go back to Monday the 27th of November 2017 at 10:01am when a link to a post on this fabulous mental health blog you might have heard of, was uploaded to try and give a rough update to readers of said blog regarding the situation (or rather, the colossal mess of a situation) of the writer.
Oh screw it, I cant keep the secret anymore. Ok yes! You are right! I am talking about my blog aka this blog and my situation last Monday when I tried to write a post to tell everyone the latest news and was incredibly vague about everything, which is unusual for someone who usually speaks honestly and openly about everything personal and mental health related. Why was I incredibly vague? Well, because I was scared after staff had raised concerns about me sharing certain things on my blog, which really freaked me out and had me very worried and confused.

Thing is, when it comes to medical confidentiality, I kind of see it like you see a piggy bank, it belongs to you, you can look after and protect it, but at the same time, you and you alone are allowed to break it.
Were you to go over to someone else’s house, find and destroy their piggy bank and run off with all the money inside (or say medical details), that would be wrong on many levels. It would be theft, it would be a breach of someone’s privacy, destruction of their property and the murder of a perfectly good ceramic piggy. If however you have your own piggy bank and, after several years of amassing various coins of experience, decide that you don’t mind sharing those experiences and spending those coins out in the world in the hopes of making a difference, and consequently smash your own ceramic oinker to smithereens with a mallet…I think that is ok, because it is your property, your information to share, your little piggy to destroy (and then mourn over appropriately of course).

It is still important to be responsible for your information of course, and I don’t believe people should, as it were, shove their information coins into other peoples faces whether they like it or not.
There should always be warnings to alert people when someone is talking about a sensitive issue that could be triggering or harmful to others, so that they as a reader can use their own personal responsibility to choose to remove themselves from potential harm. Nobody should be forced on a flume and plunged into a bath of emotions without the opportunity to get their rubber duck out but similarly, if you know you melt when you come in contact with water, maybe don’t go on a flume.

Admittedly this is more complicated with things like mental health problems which can sometimes cause you to do things, read things and get involved in things you might know deep down are harmful, but we can’t all be silent about everything, and if Donald Trump is allowed his own twitter account then I like to think I can spout my nonsense freely and use my free speech on my blog in my little corner of the internet.
That is how I see all this, all the drama that I have been caught up in over the past week about what it is and what it is not ok to share, whether there are some things that should be kept confidential and whether you can or can’t be “too honest” about personal matters, and it is that opinion that has led me to just throw caution to the wind and write this post being honest about things anyway.
This is of course merely my opinion, and I am sure there are many people out there who will disagree, but there we go, we can’t all like mashed potatoes made by the same recipe, opinions vary, some people don’t like lumps, some people don’t like pepper and others don’t like to read blogs about people who talk about mental health (weirdos). End of.

So what is going on? What has been happening? What have I been skirting oh so daintily around for the past fortnight? Well I will tell you because like I said, this is my piggy bank and if I want to take a mallet to it then I damn well will.
Basically, as you know, I have been in a psychiatric unit being treated for my eating disorder for the past 10/11 weeks, but things were not going well and I was not managing mentally or physically with any of this recovery business. It was then decided that we had reached a point where it wasn’t safe to keep me where I was anymore (which feels so weird and confusing to write as I still adamantly believe that I am perfectly fine and do not need any of the things going on around me, but that is a topic for another time). Anyway, as a consequence of various decisions regarding my mental and physical health last week, I had a week or so away over to a medical ward, and, if this post is going up in time and all the professionals stick to the current plan, I will hopefully have been transferred back to the mental health place on the Friday before you are reading this.

When you have an eating disorder there are a lot of physical complications that can happen as a result and there are sometimes a lot of things that may need to be medically treated as well as mentally, but the main reason for this transfer was so that I could be fitted with an Nasogastric tube (aka a tube that goes up your nose and then down into your tummy so that you can be given nutrition without having to eat it yourself if needed).
Some eating disorder units can do this procedure on site themselves and many do, but the one I am in has been unable to until now (hence why a few weeks ago I was talking about maybe being sent to Glasgow or somewhere else across the country). With no beds becoming available in time though, I had to just pop off to get it done on the medical ward and have some treatment over there. Like I said though, if all goes to plan, by the time you are reading this, I will be back on the mental health ward, still with my tube for a bit now it is safely up and running, but working to have it out as soon as possible which would be nice, as I am not thrilled about this new accessory (I would have preferred a bowtie but alas you cannot give someone nutrition through a bow tie. Not even a sparkly one). It was this whole tube thing that caused the staff to get a bit over excited with the “shushing” (picture a librarian after several hundred cups of espresso).

If I am trying to see from their point of view, I guess I can kind of sort of understand on some level. For example, I know there are some people who might find talk of NG tubes triggering, and unfortunately there are occasions and certain sufferers/people who see them as something to take pride in, something that proves they are “really ill”. This is of course ridiculous as every eating disorder is equally severe and serious and everyone is “really ill” regardless of whether they have been through certain treatment options or not. Even if you have never received any treatment for an eating disorder you are as ill as someone who may have been in therapy for years, and the last thing I would ever want is to give a message on my blog contradicting that.
However at the same time, whilst a tube is something I do not think one should be proud of, I do not think it is something to be ashamed of either and that was what stressed me out so much last week. I was all there ready to go ahead and write as per usual, and suddenly everyone was telling me that what I wanted to talk about was inappropriate, which had me paranoid that I should be ashamed of what was going on or that this happening meant that I had let everybody down by “failing” to get better, and thus not say anything at all just to be on the safe side. To be honest I don’t think a tube is anything to feel particularly anything about. It just is. Sometimes they just happen to get fitted to people who have eating disorders to help them try and get out of being rather stuck in a highly sticky syrup/velcro/superglue bound/sellotape/plaster situation.

If you are reading this and think that me admitting any of this is to be too open about mental health/confidentiality breaching then I am honestly sorry, but like I said, talking about mental health and my experiences within the realm of mental health treatment is something I am passionate about both in terms of reaching out to others, raising awareness, breaking stigma and misunderstandings about various illnesses and overall making people feel less alone and not as weird and isolated as I did when I kept all of my problems bottled up and never had anyone to relate to. Maybe I am breaking a piggy bank, but it is my piggy bank to break and it has been my decision to be honest about it.

I won’t go on about it any more now because writing this much is scary enough as it is, but I hope in the future I will be able to write about how this experience and tube feeding in general has affected me and how it can be used in treating people with eating disorders. It isn’t a nice topic, nor is it a nice experience, but it happens.
Now if you don’t mind, I am off to hide under my bed as I do when I post all scary blog posts that could potentially make someone angry with me/get me into trouble (I also need to hide from the cleaner…that is one thing nobody warns you about when you get a tube…when you have one in there is a genuine risk of being mistaken for a Henry hoover and dragged across a carpet snorting crumbs for three hours…) I hope this has been ok, I hope having this tube doesn’t mean you feel that I have let you down and if not I really am very sorry. I promise I am still trying.

Take care everyone x

PiggyConfidentiality

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The Difficulty Of Trusting Psychologists When You Have Mental Health Problems

/ bornwithoutmarbles / 17 Comments

Trigger warning: This post mentions the eating disorder behaviour of distorting your weight from professionals, so if that would trigger you then flee! Flee I say!

When I was younger, I was always taught not to trust someone who promises to give me sweets if I climb into the back of their van (unless of course those sweets involve any kind of combination of chocolate and peanut butter in which case who cares about potential kidnap, get in the damn van and don’t let those beauties drive away).
Unfortunately, somewhere in my brain as I have got older, “don’t trust strangers with sweets in a van” has morphed into “don’t trust psychologists” (regardless of whether or not they drive a van containing a portable candy heaven). Turns out however that when psychologists say they are going to do something and give you ultimatums, you should believe them.

Since coming out of hospital post “appendix explosion gate”, every week in my eating disorder appointments my psychologist has been telling me that I need to increase my intake in order to regain the weight I lost. To be fair, I have been trying, but a problem I have is that unless someone gives me specific deadlines for things I am scared to do, I will procrastinate until my arms fall off and tentacles grow in their place (not eight tentacles like an octopus though…that seems a little excessive…four is enough for me thanks.)

Every time my psychologist would tell me to increase I would hear her, try, but ultimately think “it is fine, she will just say the same next week and I will do it then”. Two Tuesdays ago though, my psychologist gave me a proper ultimatum with proper dates and deadlines by which I had to carry out her instructions. I was given one week to gain a certain amount of weight with the alternative being that I would be recalled back into hospital under the Mental Health Act. Seeing as how my brain works, you would think that this fairly clear statement would be easier to adhere to than the alternative casual “you need to eat more”, but still my head found ways to procrastinate, not because I wasn’t listening, but because I didn’t believe her. This was a mistake.

As much as I know I am mentally not very well at the moment in some aspects, physically I am finding it hard to see that there is a problem at all. Hearing threats and statements about my health that are designed to scare me, therefore make little sense. It is like telling someone over and over again that they are going to die of alcohol poisoning and that their liver is failing because of alcohol when they know that this can’t be the case because they haven’t touched a drop of liquor in their lives.

Back home I tried to increase but I was so scared of gaining weight that it didn’t go well, partly because I didn’t believe the “consequence” I was told about were I to fail to do so. Still, I didn’t want my psychologist to be disappointed or angry with me for failing her, so on the morning of weigh in I drank the weight I had needed to gain in water so that the scales would show the increase required and keep everyone happy. I hate “water-loading” before weigh in (aka the behaviour some people with eating disorders do whereby they drink a lot of water prior to weigh in to manipulate their weight on the scales and prevent therapists from knowing their true weight). It always freaks me out because even though I can know that I have just drunk water, whenever I see the number go up on the scales, my head will convince me that it is real weight and not just excess fluid swishing about in my bladder.

Thus I stepped on the scales prepared to be triggered, but somehow, it didn’t work, and I saw that I had not reached the goal set for me at all. Initially I didn’t really panic because I thought as always that my psychologist had been lying and that I could get out of it. I thought I could easily insist that I would just “meet the target” next week, but she hadn’t been lying and to my utter shock and horror, I couldn’t get out of it. What happened next? Well, considering I am writing this at a hospital desk in an inpatient eating disorder unit, I think you can guess. That’s right, that is the update this week, Born Without Marbles is back in the loony bin, and to be blunt, it sucks.

People keep saying things like “at least you know the place” and “you have done it before” but that doesn’t serve as much comfort because even though I know that, this time it feels different, so unnecessary and therefore scary. If you believe there is a physical problem it is easier to understand the need to take the medicine needed to cure it (in my case that medicine being “Food/general nosh”), but this all feels like one terrible mistake. I don’t need to be here and thus I do not need the medicine.

I am almost waiting for ward round on Tuesday where everyone discusses how things are going and for them all to turn around, apologise for the inconvenience and send me on my way.

The scales may say that I am under my CTO weight (a full explanation of the Mental Health Act and CTO’s can be found here: Demystifying The Mental Health Act…With Penguins, but basically a CTO is a legal document under which you are sectioned but allowed to live in the community as long as you adhere to certain conditions aka in my case, stay above a certain weight), but I don’t think I have actually lost any weight. I can read the scales and everything so I know that the number is lower but I am 100% sure that this is purely because I had my appendix removed and thus the weight of a whole organ has gone. If you chop someone’s arm off their weight is obviously going to go down but it doesn’t mean they have lost “weight” all over, it just means that there is some rude reckless person running around cutting people’s arms off.

I am so scared in here and I don’t know what to do. I am trying my very best to work with people and “listen to the professionals” but it is harder than I thought. Trusting them feels the same as trusting all those terrifying people with vans and sweets when I was a child (especially that particularly frightening lollipop obsessed child catcher in Chitty Chitty Bang Bang…seriously if you ever need to teach kids that “don’t get into vans with sweets lesson” just show them that film and you will be sorted…of course they will also learn that cars can fly and that dressing up as a Jack in the box will get you through security at a royal palace, but I think the worth of the sweets lesson trumps the potential misinformation spread by the latter).

So yeah…Mental health awareness lesson of the week: trusting professionals with medical degrees and things who should technically know more than you is hard when you have mental health problems. Very hard.

Other than that, I don’t really know what to say today. I just want to go home. I feel I should write an extra good, extra long blog today considering I am in hospital and certainly have free time to write but the words won’t come. Maybe I should offer them some sweets as encouragement.
I am also struggling to keep this update upbeat rather than explode all over you, so I think I will sign off for now and hope that I am a little bit more coherent in the next post. Sorry.

Take care everyone x

ChildCatcher

A Message To All The People Out There Who Are “Pro-Ana”

/ bornwithoutmarbles / 5 Comments

Before I get on with the main bulk of this post I just want to preface it by clearly stating the fact that eating disorders are not a choice and are horrible illnesses that barge into and take people’s lives without those people having a chance to stop the aforementioned barging. However, as involuntary as eating disorders are, there are some people out there who for some reason see them as a glamorous and desirable life choice/thing to aspire to. It is to THESE people and not all involuntary sufferers out there, to whom I address this post. All clear? Cool, let’s get on with it…

In life, there are many types of people that I do not understand. For example, I do not understand people who eat a piece of Christmas cake and leave the icing/marzipan behind (THAT IS THE BEST PART WITHOUT THAT IT IS JUST RAISINS), neither do I understand the people planning to vote for Donald Trump in the upcoming election. Possibly the most confusing people to me however, are those who frequent “pro anorexia” websites online (yeah. That’s right. They confuse me even more than Donald Trump supporters. At least Donald Trump has floppy hair you can laugh at when he is spouting bile. Anorexia has no floppy hair and therefore no room for visual comedy). If you didn’t know already, pro-anorexia websites are basically as horrendously sick and disturbing as they sound. Having avoided them like the plague myself, I cannot provide an in depth image as to what they show, but from what I gather it is pretty much a lot of pictures of skeletal bodies that people stare at in order to inspire them to achieve the beauty of collarbones that make you look like you have swallowed a coat hanger. There also may be forums where people can discuss diet tips, encourage each other not to eat and who generally see anorexia as something that is desirable, that they want to have (hence the ‘pro’ in the name).

Now I am not one to tell people what to do. When I do not understand someone’s life choices I am not going to stand in their way and insist they change their deepest desires. Though I do not understand people who leave the icing and marzipan from the top of Christmas cakes (or indeed people who choose to eat Christmas cake when the other option is chocolate log…there is no decision there…obviously it is chocolate log every time), I have never spied an icing abandoner, approached them in outrage and chased them down the street waving the forgotten almond paste and fondant. This is because although I do not understand this behaviour, I trust that they have tried icing before and following the full experience and all the knowledge available, they know that cake without icing is really what they want.
When it comes to people who want eating disorders however, I simply cannot allow myself to sit back and let them make these life “choices”, as in my eyes the only person who would ever make such a decision as to get an eating disorder would be a poor uninformed soul who doesn’t really know what they are getting into. For this reason then, today I thought I would just write a little post to all those people who want eating disorders, in order for them to realise what life with an eating disorder really is like. Basically I am enlarging the font of the little set of “terms and conditions” that accompany the joy of being thin and not eating, so that people can be sure it is what they want. So to all people who want to have an eating disorder, that is cool, but before you go ahead and seek one out, here are a few things that I want you all to know:

1. Eating Disorders are not great for your physical health: Not eating is great and all but it is important to be aware that not eating is potentially fatal and is the reason that eating disorders are the number one killers in terms of mental health problems. Even if you don’t die they will definitely wreck your body, so before investing in an eating disorder you may want to say goodbye to your health first, as lord knows you wont be seeing it for a while. For one thing your hair is going to fall out in clumps, your skin is going to become dry and pale and you will probably have bags under your eyes so big that you can fit a week’s food shop in them (no more paying 5p for a carrier from Tesco for you! Bargain!). You are also going to be freezing cold all the time no matter what the weather, so in preparation you may want to purchase forty to fifty hot water bottles, blankets and thick thermal fleecy undergarments (sexy). This does have the benefit of making you a good pastry chef (as all bake off fans will know, cold hands are essential to a good apple pie), but on the down side you won’t be able to eat that pastry without agonising guilt afterwards… Also you may want to buy a wheel chair or walking stick as eating disorders love to screw with your bones (picture anorexia as a dog having a good old gnaw on your elbow until most of the bone has chipped away, leaving an osteoporosis filled powder). Oh yeah, and if you want kids anorexia will probably render you infertile too, but hey, who cares! You will save a tonne on child care and you get to be thin right? Wrong…

2. Eating Disorders do not make you thin: This disclaimer is a tricky one but allow me to explain. Basically there seems to be this idea that when you have an eating disorder attacking your mind, this will be physically evident in a lot of weight loss. For one thing, not all eating disorders involve weight loss, and for another thing even if they do, you will not be able to appreciate it. Sure you will be able to get on the scales and see the numbers go down but when you look at the reflection in the mirror it is likely you will not see that weight loss at all. Interestingly, when you don’t eat enough and become underweight, self perception becomes more and more distorted, so you may even see yourself as having gained when really the opposite is true. Its just a fun little game eating disorders like to play (the jokers!), so if wanting an eating disorder to “look thin” then maybe look elsewhere in terms of life goals and ambitions as looking thin is not a package deal with an eating disorder. The physical complications mentioned above are a package deal no matter what though, so no worries there.

3. Eating Disorders do not make you happy: Much like the myth that eating disorders make you thin, there is the idea that they will make you happy (probably because there is the association that being thin makes you happy but the happiness idea remains nonetheless). Yeah, if you want an eating disorder because you think it will make you happier, once again I would advise you to reconsider, as being undernourished is actually a way to encourage our good friend depression to join the party rather than the desired eternal bliss. Often anxiety will pop round too, so again be aware that those two delights are part of the package deal. You will often note that in these pictures on ‘thinspiration’ websites there will often be “models” without a face (primarily the images show thigh gaps and rib cages), and the reason for this is because were consumers to see the full image, the whole thing wouldn’t look so appealing. After all it is a lot more difficult to sell the idea of how beautiful a hipbone is when the owner of said bone is crying and waiting for the pain inside to end.

4. Eating disorders will mess up your social life: Aside from the effects eating disorders will have on your body and mood, it is also important to note that they affect your social life, and by “affect” I mean utterly destroy it until you are left all alone. You can have the best friends in the world but ultimately with all the “catch ups over drinks” and “dinner reservations” you will constantly find yourself avoiding them as you cannot join in with any activity whatsoever. You may be thinking “Ok I will ruin pizza night but I can still go out to play mini golf with friends”. That is a really nice thought, yet alas this will get ruined as well. Even if an activity is not revolving around food, you will still not want to go either because you have exercises to do or because you are too miserable, anxious/hate yourself and are too self conscious to socialise.

5. Eating disorders will/are likely to cause some issues in the workplace: Much like socialising with friends, working or holding down a job will also become impossible with an eating disorder, even if your job is not food related. Again we have the classics of depression and anxiety making it hard to leave the house, as well as the required sick days for your battered physique (you may pick up virus’ and illnesses a lot easier than most people due to damaged immune system, so stock up on the cough syrup). Bigger than that however will be the issue of concentration. Yeah…with an eating disorder your ability to function mentally will spiral away faster than water down a plug hole (especially water down the plug hole in your bath remember as all your hair will have fallen out and blocked the pipes with soggy wodges of entangled strands). Ahh, nothing says “living the life” like a Saturday night spent in the house pulling hair bundles the size of kittens from your drain (top tip: if you put goggly eyes on those bundles they look even more like kittens. They are adorable. Great Christmas presents too and December is coming! Get malting!). With mental functioning at an all time low then, it is likely you will lose any job you do have and money problems will likely follow as well as our old pals who love to join money problems for a party, depression and anxiety!

So that is only five of the terms and conditions important to be aware of when wanting an eating disorder (there are millions, trust me), but I think that for now I have made my point/ helped potential eating disorder investors to be a little more aware of what they are desiring/encouraging when scrolling through those pro anorexia websites. Like I said, I am not one to tell anyone what to do so if these points don’t diminish the glamour of the thigh gap photos, then go ahead and have fun. I just want you to know what you are getting yourself into so you can make an informed decision. There are people out there who want eating disorders, but I doubt they would find the unwelcome surprises that come with them as appealing.

Take care everyone x

pro-anorexia