Why It Can Be Scary Having People In The House When You Have OCD

In two days time, on the 5th of October 2016, I am having an assessment with a new OCD service that I have been referred to (just clarifying the exact date incase you have invented a time machine and are reading this somewhere in1912 which would make “two days time” a lie. I don’t want to ever lie to any of you. Also if you are in 1912 maybe warn the Titanic to look out for icebergs). I have been waiting for an assessment date for several months now so it should be a relief that the day is finally near and more intense support on the horizon, but my God I am terrified.
Funnily enough, none of that terror comes from the fact it is an assessment where I will be meeting two strangers and having to talk to them openly about my mental health. Over the years I have had hundreds of assessments, I have even had assessments to see if I am suitable for other assessments (seriously, mental health services LOVE assessments. They even sprinkle them on their cereal in the morning), but there is something slightly different about the assessment that is only a few days away. Normally an assessment involves going to a new building, getting lost for several hours down some poorly labeled corridors, and then turning up in a stark room with chairs, a psychologist and a table topped with a box of tissues which I think is supposed to look friendly and welcoming but to me it is intimidating, more a threat of “I WILL MAKE YOU CRY”.
With Wednesday’s assessment however, I don’t have to go anywhere, the two assessors are coming to my house, and THAT is the reason for my currently heightened levels of anxiety.

Like many people who suffer from OCD, I really struggle with people coming to “my” house. I am sure for each individual, the reasons for this vary, but for me it is because my house is my “safe” place. Leaving the house is difficult because I am entering an environment that I have no control over. I do not know who has touched the door handle to whatever building I am in, or when the chair I may be required to sit in was last occupied. Maybe the floor was mopped with antibacterial industrial cleaner minutes before my arrival, maybe it has never seen the bristles of a broom, either way I don’t know, hence why for me, touching things out of the house is more difficult than in my own home. I can’t actually remember the last time I opened a pull door in a public place and I have lost count of the hours I must have spent standing on the side of a road, waiting to cross yet unable to press the little button to alert the traffic light of my presence and inspire an appearance from the little green man. We need more Zebra crossings in this country!

In my house then, it is easier, because I know when everything was last cleaned, who has last used it and I also know that cleaning products are mere moments away should I challenge myself too far and need to whip out the bleach. When other people come into my house however, an element of that control slips from my grasp. For the duration of their visit I cannot control what is touched, moved or anything else people may do with items in my home.

These OCD people (I am sure they have names but for now that is what I shall call them) have said that they want to do the assessment in my house because they need to see me in “my natural habitat”. To be fair that makes sense (although it does make me sound a bit like a tortoise on a nature program being visited in its personal hovel), and as a lot of my rituals take place in my household it will help for them to see the “scene of the crime”, yet in anticipation of their arrival all I can think about is what they will touch during their stay and where they will sit. I have honestly been having nightmares that one of them will have been drinking a lot of tea that morning and need to use the bathroom, aka the holiest of holies, “my tap” (please God let the OCD people be dehydrated just for October 5th).
Of all the people I should be able to be honest with about these kind of difficulties, people from an OCD service would logically be high on the list. If anyone is going to understand my fears it is them, and they are the least likely to come back at me with a dagger of stigma that leaves me feeling like a total freak. Nevertheless I feel I can’t say anything out of the fear that it will be inhospitable.

If it was up to me, whenever anyone comes to my house I would like to put them in one of those little carts you get on a roller coaster, where the bar comes down and you hear that voice asking you to “please keep all arms and legs inside the vehicle at all times”!…I wonder if you can get those installed within less than 48 hours…or maybe I could just tie their arms to their sides with tape…is that legal?…I feel like that would be illegal…or at least frowned upon…
Even if it wasn’t frowned upon though I couldn’t do it because like I said it seems too rude. I want to greet these people with the gratitude they deserve for coming all the way to see me for the afternoon, but how can you do that or appear hospitable when you are terrified of the people you are supposed to be greeting? What am I supposed to say? “Hello lovely OCD people, welcome to my humble abode, please make yourself at home but for the love of all that is holy in this world please don’t touch anything because I don’t know where you have been”. Oh dear God what if they want to shake hands. AHHH.

I find it stressful even when friends come over to the house too, but at least my friends know “the rules” prior to their visit. I really hate having to issue guests with a list of requirements alongside their cup of tea, yet I know that if I were not to do so I would be crying hysterically within five minutes which would be even more embarrassing.
Thankfully I am incredibly lucky to have friends who accept my difficulties and respect my level of anxiety. It is a tough balance, as obviously people can’t give into everything when it comes to my OCD. That would be inconvenient for them and would arguably perpetuate my beliefs that their germs are a genuine risk. Nevertheless, there is a distinct difference between following the dictations of my illness, and challenging me whilst not pushing me past my breaking point. My friends know not to take their socks off in the house, not to sit in “my” safe chair, and they know that I will probably take a ridiculously long time if I go to the bathroom due to the necessary washing routines that entails (picture a surgeon preparing to remove someones kidney, soap up to the elbows etc.)
They know that none of my requests are personal, that I don’t think they are dirty people who are infected with a contagious disease, because they know me. Some friends have been in my life since the day of my diagnosis so they grew up with a knowledge and acceptance of my conditions that few would comprehend. One friend was even on holiday in Greece last week and she literally texted me from across the Atlantic (is that right…is Greece across the Atlantic…screw it lets keep it this way, it sounds dramatic), to tell me at 10pm to stop fiddling with my hair as she knew that I was home alone and probably stuck in a hair routine that often takes place during that time (which I was). With friends then, it is ok to tell them not to touch anything, but with strangers no matter how kindly you say it there will always be (in my eyes at least), a little resentment on their part. I know if I went to somebody’s house and they told me to keep out of the lounge for fear of contamination I would probably feel a little offended myself.

It really is a tricky balance trying to be a friendly host whilst trying to manage my anxiety and for this reason I know many people with OCD refuse to allow people into their houses at all, just one reason as to how this illness can be incredibly isolating. If my friends weren’t aware of my mental health I know wouldn’t be able to manage them in the house either.

I guess what I am trying to say is that when it comes to OCD, it isn’t always the behaviour of the sufferer that causes the anxiety, but also the behaviour and actions of those around them. It isn’t just my hands I worry about when it comes to germs, it is everyone nearby. Most importantly though, in feeling this way about others, it is in no way a suggestion that a certain individual is dirty and no personal judgement on a bystander’s levels of hygiene.
Equally then, if you struggle having people in the house, you are not a bad person or rude, just as I am trying to convince myself now that I am not a horrible person for wondering if it is socially acceptable to tie my assessors up with tape in order to restrict movement. Obviously I am not going to do that, I am as always just going to deal with it and hopefully get the courage to speak out so that they are aware of my anxieties rather than suffering in silence, which would consequently make them worse.

If for some reason my assessors are actually reading this prior to our appointment, please know that if I appear inhospitable at any point in your visit I truly am sorry and trying my best. I really do appreciate you making the effort to come to my house and hope you feel welcome and relaxed in my home…JUST PLEASE DON’T TOUCH ANYTHING OR I WILL HAVE TO TIE YOUR ARMS TOGETHER AND WRITE THE NOTES ON MY MENTAL STATE FOR YOU.

Cheers… See you Wednesday!

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How To Fight Fear With Fear In Recovery From Mental Health Problems

When you are in treatment for a mental health problem, one of the questions that comes up a lot is the query of “What do you want?”. Many people find this helpful, and in thinking about what they want from life, they find motivation and strength to recover. For example, I know a lot of people with eating disorders who want to have children, are helped to eat by the thought that they need to be healthy to have a nice comfy womb (that is the scientific term for “be fertile” I believe).
When you know what you want from life, it doesn’t make recovery easy, but it gives you a purpose, something to fight that nagging voice in your head with, an argument as to why you are forcing yourself to do things like challenging pieces of therapy that make you feel uncomfortable. With an end goal, the stress and pain of recovery make sense, like running a race and focusing on the finish line with a giant gold trophy at the end of it, whether that trophy represents kids, a passion to travel the world or a desire to pursue a difficult career that wouldn’t be possible with insanity by your side.

To be fair I think “What do you want?” is a really important question for anyone to ask themselves in life, or indeed an important question for waiters to ask customers prior to bringing them food. Imagine if every time you went to a restaurant the chef just always assumed you wanted oranges and served everyone who ever sat at a table a bowl crammed with citrus wedges without finding out if the person liked such a thing first. WHAT A MAD WORLD THAT WOULD BE!
Clearly then, the aforementioned question is vital for sanity in the mental health world and the restaurant trade, but the problem with it is how you answer such an inquisition when you are unsure of exactly what you want, what your goal in life is, and it is an issue that can leave you feeling a bit stuck. That is how I feel, like I am running in a race where I can’t see a finish line or big shiny trophy to aim for, and considering that a loss of interest in things is a symptom of depression, I imagine it is a feeling that many are familiar with.

The only thing that I can hand on heart say that I actually have a desire to do, or a want to achieve, is to be a published author one day. That idea is the thing that gets me out of bed in the morning, but I am tentative to make that my overall focus for recovery. Becoming a professional author is a notoriously difficult thing to achieve and I am fearful of basing my entire recovery on such a risky goal that is really quite out of my control. Of course I realise no career or dream is straight forward and nothing anyone would ever really want is easy to reach. After all, if dreams weren’t a little fantastical and difficult, where would the appeal be? The point of dreams is that they have that element of the unattainable surrounding them to make them special. That said, wanting to be a writer is probably up there in the top ten dreams that are seldom realised.
When you want to be a writer, there are no directions, no post code to put into google maps and no yellow brick road giving you a little route to follow to your desired destination. You want to be published and can write all you want, but getting anywhere with it is a little out of your control and a lot of it is based on luck. It really is a case of writing and then keeping your fingers crossed, a particularly difficult combination of actions to do together as when one’s fingers are crossed, it makes it infinitely more difficult to hold a pen to write anything with.

In terms of concrete and definitely attainable things I want then, my pocket of ideas is empty. I suppose I should count myself lucky that I have the want to be a writer at all, as like I said, when you are depressed or caught up in a mental illness, you are so wrapped up in your mind that you can’t want anything other than for the pain to stop.
Coincidentally, when psychology professionals and therapists ask me what I want, that is pretty much my answer. I don’t know what I want, so personally I find focusing on what I don’t want is easier, as I know I don’t want to feel the way I do. I don’t want to feel the weight of sadness on my shoulders when there is nothing rational to be sad about, I don’t want to be anxious about touching doorhandles, I don’t want to shower for ages and I don’t want to care about what food I will be eating in the next few weeks. At the same time though, it has been such a long time since I lived in any other way that I don’t know what the alternatives to those things are. When you have been out of the real world for so long, how can you remember what it is like there, let alone what things you would want to get out of it?

It sounds pretty negative to focus on things you don’t want rather than the things you do, but recently I have to say that actually thinking that way has been a bigger help and more of a motivation than any potential desires on the horizon.
When in hospital and indeed now I am back home, at every meal time I am scared and I do not want to eat. It isn’t a case of not wanting whatever food has been place in front of me (please let it be known that my mother is a fabulous cook and all of her concoctions are a delicious treat for all the senses…if you don’t have an eating disorder screaming at every mouthful). No, rather than a case of unappetising culinary creations, when I do not want to eat, it is a case of feeling so sick with terror that I fear consuming the food as I know it will only make that anxiety worse which, clearly, I do not want. If anyone was placed in front of a plate of something that scares them, who on earth would dive in with joyous anticipation of the spine tingling sensations they knew would ensue?
Say someone was scared of spiders and they were presented with a plate of little arachnids performing a traditional waltz around a dinner plate (fun fact, 8 legged insects are fantastic at and passionate about ballroom dancing. You won’t find any evidence of it online or any book so you will have to trust me on that. Seriously though, they LOVE it.)
When presented with these graceful creatures using crockery as their own professional dance floor, who with a fear of spiders would offer a hand to one of the many limbs scurrying before them in the interests of dancing a jive or having a cheeky go at a tango? More importantly, who would want to? Probably no-one. The only way I can think of getting someone to want to do such a thing would be to make an alternative which they wanted less. For example, if it was a a case of dance with a spider for ten minutes or marry a spider for life, I imagine a lot of arachnophobes would want to give the insect tango a try.

That is in essence how I manage to eat at home and how I motivate myself to do a lot of challenging things treatment requires of me in terms of anorexia, OCD or indeed depression. I do not want to eat, I know that I will feel anxious and an agonising guilt just from picking up the fork, but I know that if I don’t there will be consequences I want even less and fear even more, such as my CTO having me hauled back into hospital before I can say “why are there nurses banging at the door?”.
I guess what I am trying to do is play fear at its own game. I know that I am going to be scared every day and I don’t have a positive idea of what I want in life to override that. Therefore instead of being cornered by the fear, I come back at it and use fear to make me do the things I am scared of by creating a far more horrifying alternative, by making whatever action scares me in recovery the “lesser of two evils” as it were. I am scared to eat dinner this evening, but I am more scared of being taken back into hospital and made to gain more weight, so I know I will get on and chow down no matter what.

I would love to write a Disneyfied post instead of this, one that reassures any readers out there that dreams can come true, can conquer any mental torment and that focusing on the positives like answering the question as to “what you want” in life is the key to recovery. I want to tell people who are struggling that all you have to do is find your passion as the way to overpower your demons once and for all, but answering that question as to what you want is a challenge in itself. Of course it would be infinitely better if I were able to eat a steaming bowl of spaghetti without any anxiety because I had goals and passions in life stronger than the fear flowing through my veins, but it is I suppose better to use fear to manage the scary things than to not do the scary things at all.

If you have a mental illness that is taking over your life and you don’t feel a burning desire to dance like Billy Elliot or paint like Van Gogh pushing you forward, don’t let that lack of knowing what you want hold you back and don’t let the fear of making changes bind you in chains. Play fear and lack of interest at their own game, take advantage of them. Rather than being dominated by an OCD or anorexic fear of touching a door handle/eating pasta, think of the alternative to challenging that behaviour and find a fear of living your whole life being controlled by your neuroses that inspires a greater terror than any door handle/Italian carbohydrate ever could. I can’t promise it will work and I can’t even be sure whether or not this will make sense to anyone out there, however this post is at least an attempt to explain how I am dealing with the fear and apathy involved in the struggle for sanity.
Nobody ever wants to feel fear, but often when it comes to mental illness, fear is all you have, so I for one am going to use what I have got until I can find something better.

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