The Frustration At Not Getting Better From Mental Health Problems

I like to think of myself as a fairly calm person (watch as my anxiety laughs hysterically in the corner), but lately, I have found myself getting angry, like proper smoke coming out of the ears angry, and the same is happening with my mum. Nay, maybe angry is the wrong word for I am not exactly angry right now but frustrated, and this frustration is aimed entirely at my mental health and the fact that no matter what I do, no matter how hard I try, my mental health is not improving/is sliding further and further into the abyss of insanity, and now even the professionals are at a loss as to what to do.

You see, ever since I left inpatient, things have been going in a downward spiral, and I am finding myself becoming hysterical and requiring my “emergency” medication to calm me down practically every night. Hell the other night things got so terrible that even my mum took some of my emergency calm down medication just to stop her from going completely bonkers herself and all in all it is getting out of hand. We have been phoning the crisis team almost daily in our attempts to manage my latest series of breakdowns and it has just got me asking, staring up at the sky and shaking my fist asking why, why is all of this happening?

It isn’t even as if I am one of these people who thinks life is supposed to be fair, far from it, I am one of those people who, when others protest “life is so unfair” ask them “my dear, who on earth ever told you that it was?” but this is ridiculous. I just don’t understand it. I have been in mental health treatment for almost 15 years now, 15 long years. Think about how many hours of 1:1 sessions with psychologists that includes, think about how many months as an inpatient in hospital that involves, the number of different medications tried (so many that when you shake me I rattle like a bottle of tablets and a leaflet of side effects falls out of my left nostril), and all for what? For me to still be completely insane…IT DOESN’T MAKE ANY SENSE.

What frustrates me is that I know how lucky I am and I know how grateful I am and should be for all the help I have received over the years. There are people across the country who have been suffering for as long as I have, maybe longer and they have not been given the support or access to help that I have been blessed with, they have not had the supportive family that I am lucky enough to be a part of, so logically I should be ok. Logically I should be doing better than most people out there, but I am not and it has me sitting here feeling angry and asking what the hell is wrong with me. What is it about me that seems so untreatable and why are my mental health problems so resistant to every form of treatment?

I think when you live with mental health problems you are expected to feel sad about them and to be fair I have felt sad about my sorry state of affairs many times but this anger is new, this rage at the fact that I have been ill for such a long time with no improvement and I wonder if this is an experience common to people with mental health problems out there. I have to ask, is it? Are there other people out there who, like me, have stopped feeling despair at their situations and have started feeling angry? Angry that no matter what they do or no matter how hard they try, their brains will not co-operate?

I have heard it said that it isn’t until you get angry at your disorders that you can actually get better from them because you need that anger in you to fight, but at the moment this anger doesn’t feel like it is doing anything constructive, rather it feels like a block that is holding me back in my therapy sessions and appointments. Rarely do I meet with a psychologist now with an open mind, now it is always a case of me going in enraged that things haven’t improved after the last session and show no sign of changing any time soon. I think I wouldn’t mind this anger so much if somebody else knew what to do with it, but I find I am dragging it around with me in a bin bag wondering where on earth to put it and the professionals don’t know either.

Today I went to an appointment with my ED support worker and the rage was bubbling, so I asked her what to do. I asked what we could do to treat me, where we could go from here, what new treatments we could try over the next few weeks to see if they help, and you know what she said? “I don’t know” or to be more specific “I don’t know what to do with you at the moment”…She doesn’t know what to do with me? Doesn’t know what to do with me? What am I supposed to do with that!? What is anyone supposed to do with that? Indeed, what on earth is one supposed to do when even the professionals are at a loss as to how to help or resolve the situation? What do you do when the person with all the answers tells you that they do not have any more answers, or even rough guesses, to have a go at answering your question? When I left that appointment I felt like a grocery shopper who had gone to a bakery and asked a baker how to make bread only to be told that the baker had no idea. What use is that? What use is a baker who doesn’t know how to bake? What is the point in a baker who just slaps flour around the place and wears a funny apron and chef’s hat? Sure it may be entertaining to watch someone slap flour about (for we all know that much hilarity can take place when a person is gallivanting with flour), but what use is it?
What do you do with that?

I think the main thing that is frustrating me however is the fact that whilst other people don’t have the answers, I don’t have them either, and if anyone should know how to help a person it is the person who understands the problem better than all others. I don’t mean to sound arrogant, but I would say I understand my mental health problems pretty well, I have explored them so much over the years that I am familiar with every nook and cranny (particularly the one in the far left…damn that is a tricky cranny), yet I am no more familiar with how to solve my problems than anyone off the street who has never spoken to me a day in their life.

Truth be told here, as I am writing this I am starting to think that maybe I am not angry, maybe my mother (who has also been getting frustrated at my current decline – not angry with me you understand, rather like me angry with the fact that no matter what we try we are not seeing any improvement) isn’t angry, maybe we are just scared because we cannot see the answers and when you are being stared at in the face by a pretty massive problem it is scary not being able to see any way around it. It is scary to be stuck in a vice getting tighter and tighter by the day with no sign of relief and hell, maybe some of that fear is what I am writing about rather than anger because in reality I don’t think I am angry with anyone in particular. I am not angry at my psychologist for not knowing what to do with me at the moment, I am scared, I am scared that if she doesn’t know what to do then nobody ever will and I will be stuck like this forever. It just doesn’t make sense to me. I have friends who have received the same levels of treatment as I have, who have been to the same hospitals as I have and they have recovered and that is another thing that scares me. If I have had the same treatment why have I not had the same outcome? Why am i different? Why do the answers for one person not serve as the answers for another? Is there something wrong with me or am I just one of those people who is doomed to never get better? How will I know? Will I ever know or am I just going to find myself sitting here asking these same old questions for years until I am blue in the face (and then indigo followed by a vibrant shade of violet).

To be honest I feel I have lost track of what I am even talking about and barely know what I am saying anymore but I had to get this out, this anger, this fear or whatever this is that is bubbling up inside me like the contents of a witches cauldron. Everyone knows that living with mental illness is sad, but I think today my message is that sometimes, when you don’t have the answers to your problems, that sadness turns to rage or maybe fear. Who knows, like I said I am confused myself, but I at least wanted to write about it in the hopes of finding some sense in all of this. Maybe I haven’t made sense here, maybe I have, but either way if anyone has the answers to any of my questions or feels the same as I do now, I would really appreciate knowing about it. I hope you are all well and know I am thinking of and supporting you all.

Take care everyone x

Frustrated

How Physical Health Problems Can Trigger Mental Health Problems

Last week I talked about a recent incident where my mental health, more specifically my eating disorder’s obsession with drinking a lot of water, had a detrimental affect on my physical health and in a hilarious twist of fate and example of bizarre symmetry (and by hilarious I mean literally the most unamusing thing to happen ever), this week I am talking about how the opposite can also be true, and how physical health conditions can end up triggering or making a pre existing mental health problem worse.

So when we last left off, I had explained how I had been admitted to hospital for water intoxication and was being treated for this problem via a strict fluid restriction plan to get all of my electrolytes back to acceptable levels (it is at times like this when I wish I had one of those “previously on” video clips that they show before episodes of various TV dramas…I should really look into that…ooh and a theme tune! I do love a good theme tune!)
Now, after a few days, the fluid restriction, whilst being incredibly annoying for me, seemed to be working, and my sodium levels kept improving until they were back to normal. Really, that should be the end of the story, the problem was solved so I should have been packing my bags and making my merry way home, but alas the story did not end there and developed into what I like to think of as an epic novel of utter ridiculousness.

You see whilst my sodium levels were improving, I wasn’t feeling any better which didn’t make much sense. I had been admitted for a problem that was being successfully treated yet bizarrely, as the days went on, I became more unwell with a pain in my stomach. The doctors couldn’t really make sense of this and before long I was in so much pain that I couldn’t stand or lift my head off the pillow and was in need of all the morphine I could get. A few tests were run but no answers were revealed so a surgeon was sent to have a look at me.

After thumping me in the abdomen with an iron mallet a few times (she said she was only going to “press gently” but trust me from the pain I am pretty sure that woman had a mallet and a vendetta against my stomach region), it was concluded that I might have a swollen appendix. I was told that normally the surgeons would book me in for an operation to whip it out just incase, however due to my already poor physical health from my eating disorder, they wanted to avoid taking me to theatre (alas the operating one and not the version where you get to watch The Sound of Music on stage whilst eating a little pot of ice cream with a spoon that is basically just a mini plank of wood with no resemblance to a spoon whatsoever), because they weren’t sure I would survive an anaesthetic.

Thus it was decided that they would only operate if they were absolutely certain that such a thing was necessary and therefore some more tests were scheduled to try and clear up what was going on. The problem with this was that by leaving time for tests, we were also leaving time for things to go downhill which they did fairly rapidly. Again the surgeon visited and again an operation was suggested but also feared so I was sent to yet another test in the form of a CT scan where I was basically shoved in and out of a tube a few times whilst doctors took photos of my insides (I really hope that my organs put on their best clothes and posed nicely for the occasion…it isn’t every day someone wants to photograph your intestines).

After the CT scan was complete it was around 1am and I was finally allowed to have some more morphine and attempt a snooze, whilst my sister, who had been sitting beside my bed for the past few days, went home. That was until 4am when another surgeon woke me up, to tell me that the scan had shown that things were rather serious and I was scheduled for emergency surgery immediately, my sister being called back in by the nurses having only just left. The next little bit of time is somewhat of a blur but from what I remember I was pumped with anaesthetic and taken to theatre (again, the operating one. I didn’t get so much as a lick of ice cream and I saw no children dancing in curtains. Livid.)
I was so knocked out that it was about 24 hours before I woke up from the procedure, dazed and confused with a tube coming out of my stomach and leading to a bag of some unidentified liquid.

It was then that I was informed that my appendix, in being left for so long, had ended up exploding. (The surgeon told me that I shouldn’t say that it “exploded” because in technical terms you should say that it “ruptured” but damn it I went through a hell of a lot of pain and nonsense because of what happened so if I want to say that my appendix literally exploded like a firework on the 5th of November then I will jolly well do so!)
Consequently my body had been filled with poison, hence the tube and bag scenario coming out of my stomach after the appendix had been removed, to drain the poison out (the poison being the funny liquid in that bag.)

Since then the job has basically been to free my body of poison, recover from the surgery and try to build my body back up after its internal beating, a job that isn’t going too well at the moment because this whole physical health problem extravaganza has triggered the life out of my mental health problems, more specifically my eating disorder.

Admittedly I haven’t been doing particularly well for a while now, but I have been clinging on to some sense of stability by rigidly carrying out the same routine meal plan via some form of repetitive autopilot action. Unfortunately, this event has utterly destroyed my autopilot “just do what you did yesterday” routine.

I think when you have an eating disorder, eating your meals is kind of like a recovering alcoholic avoiding the pub.
If you force yourself to eat the same meal plan every day, you get into a sort of rhythm, a rather bumpy and unpleasant rhythm that you can’t lead a good conga to, but a rhythm all the same. Missing one meal however is like an alcoholic downing one mouthful of vodka after a few months sober and then suddenly finding it impossible to stop.

Knowing that missing one meal will always make the next one harder is the reason that I fight so hard to complete my meal plan even on the bad days because I know that not doing so will make it harder for me in the long run, but in this whole “my organs are exploding” situation, missing a meal wasn’t something I had any control over.
For the first day of the hospital admission, eating was mentally impossible because I was in a different place with different foods. This problem was somewhat solved when family and friends hauled bags upon bags of my safe foods to my bedside, but by that point I was physically in too much pain to lift my head let alone grab a spoon to chomp down on some cornflakes. During all of these pain days I was also constantly being wheeled in and out of various tests that doctors were telling me I wasn’t allowed to eat before, and incase I was going to need emergency surgery after some of these tests, my stomach also had to be kept empty on the off chance that people would be whipping the scalpels out (apparently it is significantly harder to operate when one has just demolished a peanut butter sandwich…or any kind of sandwich…not that there is any other sandwich worth mentioning).

Post surgery I was finally allowed and encouraged to eat to regain my strength and I genuinely tried, but again there were hurdles. Firstly the combination of anaesthetic/poison/million medications made me extremely nauseas, and I was being sick multiple times a day. My taste buds had also suddenly gone haywire and for some reason I could not tolerate sweet foods which for someone who always picks sweet over savoury and who lives off sweet things like porridge and cereal, this was somewhat of a problem. Even the flavour in toothpaste made me throw up (all over my toothbrush I might add…suffice it to say my breath was not minty fresh), and shock of all shocks, I started to be repulsed by peanut butter. Me. Repulsed by peanut butter aka the food that was previously the holiest substance on earth? Who am I? I think I am going through some kind of identity crisis. You might as well start calling me Malcolm.

Therefore I was trying to find new foods that I could both mentally and physically tolerate, family and friends bringing in new groceries every day (including my parents who had had to cut their holiday short and catch an emergency flight back to the UK with fears that they might not get “back in time”…safe to say their relaxing trip to Malaysia was somewhat of a disaster this year..).

Excitingly, a new safe food that I could physically and mentally tolerate was discovered in the form of mashed potato, but by this point it had been so long since I had eaten properly even that was a struggle. I felt sick at every meal time and I could never be sure why. On one hand it could have been the “genuinely physically ill with poison and anaesthetic” sick that I shouldn’t have forced myself to fight as nothing I ate would be kept down anyway, or it could have been the simply sick with anxiety and fear of food sick that I really should have been challenging to prevent it getting any worse. Sometimes food would arrive and I would feel so ill that I wouldn’t risk a mouthful only for the food to be taken away, the sickness to go and me to realise that all that nausea had been anxiety as apposed to anything related to physical complications.

After multiple meetings with my eating disorder services who visited me a lot on the medical ward, it was decided that I would be discharged home incase eating became easier there due to familiar surroundings. Armed with a ridiculous amount of mashed potato, I really tried but a few days in found that I was struggling to swallow. Again I assumed this must be that whole “throat closing up with anxiety” thing, so I persevered, but then after finding some weird white nonsense all over my tongue and throat and a trip to the doctor, it was discovered that life had thrown yet another curve ball and in my weakened post surgery state, had given me tonsillitis and oral thrush, conditions that make swallowing rather difficult and would therefore interfere with anyone’s ability to eat…Oral thrush? I didn’t even know that was a thing? WHAT THE HELL IS GOING ON WITH MY BODY.

Now I am three weeks post surgery (happy no appendix anniversary to me!) and in positive news, the nausea from anaesthetic and poison is practically gone. Having started another lot of antibiotics and some weird throat drops I have also regained the ability to swallow but after so many physical preventions to eating, I am now mentally more terrified than ever at the prospect. I have been to my eating disorder unit and the scales say that I have lost weight yet somehow I feel bigger.
Doctors are telling me that I have to get back to my old meal plan immediately so that we can add new things in to regain all that I have lost but it feels impossible. I cannot comprehend how the hell I was managing to eat before, despite the fact I was doing it only a few weeks ago, because now such an ability has become alien and frightening. I am tied up in a bundle of fear over food, throwing up, weight gain, trying to eat whilst being laid up in bed unable to carry out my usual exercise routines and consequently recovery from surgery isn’t going very well because I don’t have the energy to recover. Both the physical affects and mental health problems are feeding off each other like my body is an all you can eat buffet, and ironically the one person not getting fed in this situation is me. I have been on the edge of collapse for months now, clinging to the edge of stability with all the strength I can muster, but this has thrown me. I have fallen off the cliff. I am spiralling.

…And on that jolly note, that is pretty much my explanation of how a physical illness can go on to affect/cause/trigger a relapse in a pre existing mental illness. As with a lot of my blog posts, it hasn’t been a particular barrel of laughs as far as topics go, but it is the honest truth, and as always, that is what I am determined to put out there in terms of raising awareness of mental health problems.
Now after all this typing, I think I am very much in need of a nap and then maybe I will give some more mashed potato another go. Eating food is the last thing I want to do right now and my stomach is already full from terror, but I promise, I really am trying.

Take care everyone x

AppendixExplode