What Do People With Anorexia Eat?

Over a year ago I wrote a post about how people with eating disorders were misrepresented in the media via their use of skeletal pictures when interviewing or discussing someone with the disorders, yet lately I have noticed there is another stereotypical image being promoted that drives me equally round the bend, that being the idea that people with anorexia do not eat anything at all, and it is this myth I really want to tackle in this post as it is simply not true and is unhelpful to everyone.

You see when you come across articles in the paper interviewing someone with an eating disorder, they always make it sound as if the person has gone years without ever letting a morsel of food pass their lips. 

I am often reading pieces stating that someone lived on half a cornflake for three years or something ridiculous, a statement that is physically impossible and that must be taken with a pinch of salt as everyone knows journalists will often exaggerate or make things sound worse by picking and choosing details from an interview to make a good story. If an article makes it sounds like someone interviewed supposedly hasn’t eaten more than half a cornflake for three years, it is most definitely false and cannot be taken as a fact in general or by which other sufferers can be measured. 

Admittedly, people with anorexia frequently do not eat enough, it is after all one of the symptoms, the classic restricting of calories to lose or prevent weight gain. Indeed people with anorexia often eat very little, nowhere near as much as they need to keep themselves alive, but that still doesn’t mean they don’t eat anything at all and spend years living on air. In addition to those in relapse  who still eat at least something (regardless as to whether it be enough or not), when people are in recovery and on a weight gain meal plan they may actually eat more than some “normal” people. I know I have certainly followed meal plans that exceed the “government guidelines” irrelevant calorie limit, which have been prescribed to me both in and out of hospital. People in relapse and recovery are still considered as having “anorexia” if their mental state dictates that diagnosis, no matter how much they eat, and they should all be counted and taken seriously as a voice for people with eating disorders without being discriminated against for (brace yourselves)…having breakfast. What about the people who have severe anorexia but eat to keep their families off their back or to maintain a job? The ones who eat purely to stay out of hospital or the ones who are trying their best to eat to get better yet are still in as much mental pain as anyone else and hating every second? The ones who want to scream and shout every time they eat but force themselves on anyway because they don’t want their kids to see them worrying about food in fear that they may also pick up on the anxiety? That image, of people with anorexia eating, is never represented in the media, as equally valid or not it isn’t a dramatic image that would sell a story in a magazine. After all, headlines of “anorexic eats an appropriate number of calories, not because they are better but because they don’t want to scare the children” are never going to sell or create as much drama as “anorexic eats nothing and only licks a blade of grass once a month for 10 years”.

I am pretty sure that every member of my family is aware that I have anorexia and in a way I find this helpful. With them knowing, it means I don’t have to lie all the time, if I disappear for a few months to go into hospital it isn’t a big secret and I don’t have to pretend I have been off travelling, climbing Kilimanjaro or building schools for orphaned penguins in the Arctic, but in a way it actually makes things harder because I feel there is an expectation of the way I should behave at family gatherings. I am currently unable to eat outside of my house or with family anyway, but even if I were able to I would find attempting it incredibly intimidating as I imagine if I were to eat anything, people would be confused. If a person without an eating disorder goes out for a meal and eats, nobody raises an eyebrow, but if someone who is known to have an eating disorder goes out for a meal, when they eat people start to question whether there is anything actually wrong with that person in the first place. If you hear someone has to go into hospital for a new leg and then you see them prior to admission dancing the tango pretty happily using their old one, you might wonder why on earth the new leg is needed as clearly there is no problem. The issue is of course that though someone may appear to be eating happily on the surface, they could still be going through mental torture inside and may be just trying not to make a fuss and embarrass themselves or draw attention.

The dangers of this misconception that “anorexics don’t eat” are very similar to the ones created by the idea that people with anorexia are underweight. Again, family members or professionals may not be concerned about someone they suspected may have an eating disorder because the person often sits down for a family meal. Sufferers also might find themselves in situations where they don’t eat, not because of their disorder in particular, but because they feel they can’t incase people suspect that they are faking the whole thing. Much like images of skeletal bodies, people hearing the myth that people with anorexia don’t eat can cause people to think that they are not “that bad”, “not ill enough to warrant help” or even worse it can trigger them to restrict their intake further because they think there is some “anorexic standard” they have to live up to. You cannot compare the severity of a person’s illness with that of someone else’s just by looking at what they look like or how much they eat without having any idea of what is going on inside their heads. 

Overall I guess the message of this post is that when it comes to the portrayal of people with eating disorders in the media, take all the pictures and interviews as pieces of journalism to sell a paper with the nuggets of truth inside partially skewed or not representative of eating disorder patients as a whole. Making judgements based on accounts that are for the purpose of selling papers rather than truly giving a voice to people with no ulterior motive is never going to provide an unbiased piece that one can make conclusions from. Basically what I want to say is do not trust the media at all, instead you should trust strangers on the internet like me…actually don’t trust strangers on the internet…that isn’t the message I want to promote at all…. just don’t think that people with anorexia don’t eat. 

Take care everyone x

Sandwich

Why Alcohol Doesn’t Go Well With Mental Health Problems

Ketchup goes well with chips. Rhubarb goes well with custard. But do you know what doesn’t go well with mental health problems? Alcohol, and this is a lesson I have learnt fairly recently. 

You see there is something I have been leaving out of my most recent blogs, partly because I didn’t think it was a big deal and partly because I thought it was an issue that would resolve itself fairly quickly, but it turns out that that is not the case. Basically, over the past month I have become dependant on alcohol to get through life with my mental health problems and it is causing a lot of issues. 

It all started five weeks ago on a jolly evening out in a rather sunny April, when I was at a concert by my favourite singer. The concert was brilliant, the music exceptional, but In between each song my favourite singer would pause to talk to the audience and on one of these occasions she stated how much she wanted a drink to help her to relax on stage. Obviously I have known about alcohol before this moment in my life, but as soon as she said about how it would relax her, my anxious brain got all excited and I decided to try drinking myself to see if I could relax too. Cut to today, five weeks later and I have not been able to have a day sober since.

Naturally, I have been trying to stop drinking for multiple reasons. For one thing I know that it is not good to spend your entire life totally off your rocker on vodka, but I can’t help it and it is now that I am realising how silly it was to start drinking in the first place. Obviously I never intended to get addicted to it but come on, we all know I have a rather addictive personality (actually I don’t think I have a personality at all, just a thick blob of addictive in its place) so maybe I should have seen this coming, but I didn’t and now I am left to try and deal with this extra problem on top of all the others and that is why I am writing this blog, to tell people out there with mental health problems that alcohol is not going to be a solution to your issues, rather it will add another issue to the pot. 

It is like making a cake. When you have mental health problems you have all the ingredients of insanity swirling around inside you, anxiety eggs, depressed flour, paranoid sugar and melancholy vanilla extract. Then comes alcohol which you think will wash all of those ingredients away and leave you free of all problems and to be fair, temporarily it does. When I drink alcohol, my anxiety goes way down, I laugh rather than cry and suicidal urges become a thing of the past. For once I am happy, dare I say merry to the point of feeling pure joy. If you could see all the things I have done in the past month you would be shocked at how much I have “achieved” under the spell of alcohol, from touching a door handle to eating out in public and for this reason you may think that alcohol therefore goes well with mental health problems. It takes the pain away so surely it is a great combination? Wrong. Instead, as I have learnt, alcohol only masks the problem by placing a big old blanket on top of all of your mental health ingredients so that you can’t see them, but underneath that blanket things are getting worse. The more you drink the more the mental health problems blend together, the closer they get to the oven and then BOOM! Before you know it you have sobered up and instead of finding your problems gone you find that whilst they were covered up things have got a whole lot worse and you are suddenly left not just with all these nasty ingredients to deal with but a giant three tiered cake covered in icing and cherries, and that is where I am now. 

I think alcohol is very sneaky that way and to be honest I wish I had never started drinking in the first place. It was just so easy to get addicted to it. When you are anxious and depressed all the time and then find a magic potion that takes all that away, why wouldn’t you drink it and then keep going? Even if the relief from your problems is temporary and the potion is actually creating more and more problems, wouldn’t you keep drinking it? Now I am sure some of you out there are reading this and are saying “no Katie, no I wouldn’t” in which case I have to congratulate you for being far more sensible than me! 

Like I said I am trying to give up alcohol right now and I have managed two days sprinkled in amongst the five weeks of drinking, but it is far harder than I ever imagined to go without alcohol, even though I have only been using it as a solution to my problems for five weeks. I don’t think one can become an alcoholic in that time but you can certainly become pretty damn addicted and that is why my team have referred me to alcohol services to try and nip this problem in the bud before it gets any bigger. Alcohol certainly hasn’t solved my problems, it has just added to them and that is why I wanted to write my blog about this today because I fear that other people out there are likely to fall into the same trap as I have, the trap of seeing alcohol as a quick fix to all the nastiness in your head and therefore becoming reliant on it for life, which seems good in the short term but in the long term will only create bigger problems and lead to more addictions and issues than you ever imagined. 

I can’t offer any advice to people like me who have already fallen into this trap, because like I said, I am still in it but what I wanted to do in this blog was to warn about the fact that mental health problems do not go well with alcohol and alcohol is certainly not a solution to your demons, it is instead a new one of them poised and ready to make itself at home with the rest of the insanity family. 

So that is my confession for the week, a jolly one I am sure you will agree! Still, at least in the past five weeks I have learnt something and hopefully in writing this blog maybe I can use that lesson to benefit someone else out there who was maybe on the brink of turning to alcohol but now realises that it is really not a good idea…I can only hope! In the meantime I m going to try and give up alcohol myself before services have to get involved, but considering how hard I have been finding that, who knows how well that is going to go.

Take care everyone x 

NoVodka

Anorexia And The Fear Of Being A Healthy Weight

When people hear that I have anorexia and am scared of gaining weight or scared to maintain a healthy weight, they always assume that this is because I am scared of getting (or eventually being), “fat”. In actual fact, this is not because I fear getting or being thought of as fat or large at all, and funnily enough being fat is probably one of the things I worry about the least when it comes to anorexia. 

The majority of my friends are a healthy weight, (by which I mean a healthy BMI which is of course not a foolproof way to measure anyone’s health due to all the many variables at play, but for now it is the best we have). Some of them have always been a healthy weight and have never had an eating disorder, but there are others I have met in treatment during times in which they were very underweight, that have since regained to a healthy place in their quest for recovery. Sometimes I was in hospital with them for the entire weight restoration process, but never at any point did I ever look at them gaining back the weight they never should have lost and think that they are “fat” once their BMI has returned to a healthy range. On the contrary, without exception, I always think people look more beautiful and fabulous than ever before when they have gained the weight. It is like seeing a shrivelled up flower come back to life again and bloom brightly coloured petals all over the place, and in seeing this surely I shouldn’t fear being a healthy weight myself? After all, who would want to look like a shrivelled up flower when you could look like a fresh one at the peak of its colour? I know I certainly don’t, so why do I fear being a healthy weight? 

When it comes down to it, it is all to do with the way I feel on the inside and the way in which people perceive me. Inside, I feel broken, scared, weak, sad and very much shrivelled in every sense of the word. When I am underweight people treat me as if they know all of these things. They don’t ask me what I am doing with my life or how I am because they know I am too unwell to be doing anything in life, which saves me having to tell them these things and acknowledge the catastrophe that is my current situation myself. When I am healthy however, they assume that my mind is naturally in the same corresponding state, and when that isn’t the case, it can be incredibly frustrating, confusing and dysphoric. 

To explain it in another way, I would like you to imagine that I am a penguin (and if you know me well enough that will not be too much of a stretch. Literally all you need to do is add a beak and the ability to eat raw fish, I mastered waddling before I could talk.) 

Inside I know I am a penguin, and I feel like a penguin. I know that I like sliding across sheets of ice on my tummy, I know that I can swim faster than an olympic athlete, I know I can catch fish with ease, I have fully accepted the fact that no matter how hard I flap I will never be able to fly and I know that in terms of career, my goals are to waddle around various agencies to pursue my dream of becoming an extra in the children television show “Pingu” or to model on the front of the wrapper of a chocolate biscuit that is named after me. When I am underweight, everyone else around me can see that I am a penguin. Fellow penguins nod to me in the street to acknowledge our solidarity in species, when I go to a pub the bar keeper knows I will want ice in my drink without me having to ask and friends compliment me on the elegance of my waddle and ask how I achieve such shine on my beak. If they hear about an audition for an actor to play Pingu’s second cousin twice removed, they call me right away and offer to give me a lift, but when I am a healthy weight, they see that audition sheet and don’t even think of me. 

When I am a healthy weight, nobody can see that I am a penguin, instead, they see a meerkat and treat me accordingly. When I nod at my fellow penguins knowing that I am one of them they look at each other aghast as to what this fluffy stranger is trying to say. People keep putting me in sand pits so that I will feel more at home, they buy me air conditioning systems to install in my desert home because they know how hot it is in my country of origin, I am offered jackal repellent to help me avoid predators and passers by ask me for help comparing different offers they have received on their car insurance. Nobody is unpleasant or horrible, but still I hate it and want to scream at them because inside I know that I am a penguin. Jackals don’t hunt me in the arctic! I hate sand because it gets stuck in my flippers, I am cold enough as it is without air conditioning units in my igloo and I know nothing about car insurance! When I am a healthy weight there is such a disconnect between the meerkat people see and talk to on the outside and the broken, cold little penguin on the inside that it almost feels like being two different people or that people can’t really see me at all. I feel I have to try and act like a meerkat to live up to their expectations yet I don’t know how. When I am underweight, people see the penguin I know and feel that I am, I don’t have to pretend, I am instantly understood and treated as the waddling little creature I am. 

That is why I fear being a healthy weight, and from what I gather from friends with eating disorders that is also why they fear it too. It is nothing about fearing being fat or looking unattractive, it is fearing being seen and treated as something or someone that is totally different to the person you know you are in your heart, it is fearing being put in a sand pit that burns your flippers rather than being taken ice skating for a pleasant afternoon of sliding on your tummy. 

I realise this whole thing is a really difficult thing to understand (and as you can probably tell, a difficult thing to explain what with all this talk about penguins and meerkats), but I hope I have helped it make some sense. I have anorexia, but I am not scared of being fat, I am scared of people thinking that I am “ok” when inside I feel anything but. 

Take care everyone x 

Meerkat

Suicide And Shame

Cabbages, sprouts, kale, broccoli, cauliflower. 

Apologies for that rather random start to a blog post, but to be perfectly honest I had no idea how to start this entry after last week’s post and after a suicide attempt it is so difficult to find the words to comprehend the world, that it seemed as fitting a way as any to start this blog by listing my top five favourite members of the Brassica oleracea plant species. 

So yeah…Hi everyone, I am back and I must say a little at a loss as to what to say. First off though I really must take this opportunity to thank you all for your support after last week’s post because I really was very worried about posting it and you were all so kind and lovely about it that it made me feel all of the warm fuzzy feelings inside (as warm as fresh bread out of the oven and as fuzzy as one of those little dogs that looks like a ball of fluff with legs, to be specific.)

Secondly, I guess I should address the elephant in the room (no not that trunked creature in the corner, Frank, he does not deserve to be addressed. He has been very badly behaved stealing cookies this morning…that is why I put him in the corner), aka the fact that last week I attempted suicide. Now I am not going to go into the details of how it happened because I do not think that is helpful and the last thing I would want to do is trigger anyone, but what I wanted to write about was the feelings that came after the attempt because all in all this experience has taught me some very interesting lessons that I think might be of use to some other people out there. 

You see, something that surprised me after this whole incident occurred is the level of shame that I felt after this whole suicide extravaganza. When I woke up in hospital and realised that all of my efforts had been in vain I felt terrible, not just physically, but mentally in terms of what I had put my family through and that is something that I doubt many people expect to feel. When you are all caught up in the moment of a suicide attempt, you cannot think about anything else. There is no logic, no rational thought, all you can think about is the big black hole swallowing you up, the level of intense pain and the desperate need to make it stop. As selfish as it may sound, you cannot think about family or friends, not because you do not care about or love them more than anything in the world, but because the pain is so loud that it drowns thoughts of anything and anyone else out. It gets to the point where the black hole is so dark that you wouldn’t notice whether or not someone turned the lights out in the room you were in because everything is already pitch black and you cannot see your hand in front of your face. The world is a blur, colours turn greyer than they are in the first ten minutes of the Wizard of Oz and sound or voices in the real world become the incoherent bumbling of voices underwater. When you wake up however and it hits you as to what has happened and you see the faces of your family there and hear their worried voices clearly for the first time, that is when the shame kicks in, and that shame only got worse as I heard the phone calls and read the texts of worried family members trying to reach out to me and my parents. It is that shame  that I wanted to raise awareness of in this post initially, because I wanted to warn anyone else who is suicidal out there of how much people care about you even when you don’t believe it possible and don’t care about yourself. 

Then again, at the same time, whilst I want to rase awareness of the shame that comes after one attempts to take one’s own life, I want to remind anyone out there that suicide attempts are in essence nothing to be ashamed of. Don’t get me wrong, they are nothing to be proud of either which is one reason as to why I nearly didn’t write about this event on my blog, but after reading your comments I have learnt that the shame that comes with suicide, though real, is not justified. That isn’t to say you can’t feel ashamed, for who am I to tell people what they should or should not feel (as if that would make a difference to those feelings that tend to creep up on you unannounced anyway). Still, feeling ashamed about a suicide attempt is very much like a person with kidney stones feeling ashamed that they have little pebbles lodged in one of their vital organs. Suicide attempts are, like physical health problems, a sign of illness and I truly believe that nobody who seriously attempts suicide ever does it by choice, rather they do it because they are driven to it through that level of pain they feel, just as a mother in labour may beg for pain relief and slap her partner across the head without really meaning it. 

Suicide is not a choice, it is a consequence of severe mental pain and it is being reminded of that by all your lovely comments last week that I wanted to spread the message of today to other people who may be out there suffering with the shame of suicide. If this is you, please know that I am so sincerely sorry that you are hurting and I do not condone your actions in any way, but I want you to know that if you’re struggling with the shame of what you have done, it is no way unusual, neither were these actions your fault. Instead they were the actions of a mental illness that is driving you crazy and in these circumstances rather than shame, the key thing is to reach out and ask for help and support to ensure that nothing like that ever happens again. I will admit, getting that help and support is a struggle (as someone who has been desperately asking for help from people for months, trust me, I know getting the help you need is no easy task) but it is that which you must do. Suicide may not be a choice but seeking help when you are struggling often is and if there is one message I want to get across in this post it is that if you are ashamed after a suicide attempt, please give yourself a break but more importantly seek help. 

Other than that, today I can honestly say I do not know what words of comfort I can offer to you all but I wanted to thank you from the  bottom of my heart for the words of comfort you have given to me. My dear readers, you really are so important to me and, as it turns out, vital to my survival in this game of mental health. Hopefully next week I will manage to talk about something a little more jolly or at least a little less depressing. In the meantime…

Take care everyone x 

Elephant

What Do You Do With Someone With Mental Health Problems?

Usually, when I title a blog with a question you would expect for me to find some kind of answer to said question in the blog below, but, spoiler alert, this week that ain’t gonna happen because today I genuinely am asking all you guys out there what on earth you do with a person with mental health problems.

I suppose to be more exact I should specify that there is a particular person with mental health problems in mind when I ask this question, perhaps obviously, me.

You see, as far as questions go, this is quite a big one that is perplexing and confusing the many therapists and family members in my life, and considering that none of them can find the answer, today I figured I would ask you lovely lot, aka the wonderful readers of my blog, for your opinion, because if you can’t go to the internet to solve all your problems and big questions in life then quite frankly where can you go? (don’t say a therapist, trust me they are stumped on this one too). 

You see me and my family are sort of stuck playing a game of Where’s Wally right now, although slightly different as we are well aware of where Wally is and just need a place to put him. Wally in this situation is me (I even have the glasses for it…just missing the stripy sweater and hat…actually thinking about it the glasses I am wearing are the only things that make this remotely like a game of Where’s Wally…Wally was never stuck as to where to go because of mental health problems and if he was then that gives those activity books a whole new spin to them), and lately there has been a big question as to what to do with me. 

You may remember that after coming out of hospital, the plan was for me to stay home and follow some ground rules set by my parents, but shortly after my departure from the loony bin it was clear that I was unable to follow those ground rules and consequently we came up with the plan of me moving into my own flat…However now…yeah…it doesn’t look like that will be possible as although the purchase of the flat is still going swimmingly (I think…I have never been one to understand the purchase of properties), it doesn’t look like I will be able to cope living there by myself as planned. On one hand I am fully convinced that I could do it, but considering the week I just had when my parents were away in Cyprus, perhaps that is naive of me to assume blindly that I could cope all by myself as when trying to live by myself for just one week in my own home, things did not go to plan. Indeed, a mere hour in my own company and I was on the brink of suicide, hence why my dear best friend had to step in and save the day and come to stay with me, so maybe independent living isn’t the thing for me at the moment, and that is why I am posing you this question today as to what to do. I cannot stay at home living with my parents as I am still unable to follow the ground rules required and am in short, driving them around the bend with my mental health problems (it is a lot to ask of people to live with a complete lunatic and one of these days I am going to give one or both of my parents a mental breakdown themselves at this rate), but it seems I cannot live alone elsewhere either, hence the question of where to put me. 

At the moment, the option my parents are pushing for is for me to go into this sort of long term hospital like place which is less like a hospital setting and more like a communal living area for people with mental health problems. I however am not keen on this idea and really I want to stay as far away from communal living spaces as possible. Don’t get me wrong, I am not one who is completely set against mental health hospitals, after-all I have been in many myself on previous occasions, but they are not places that I particularly like being and in my eyes, as bad as things are at the moment, I really want to do all I can to be treated and to get better somehow in the community as an outpatient. To be fair this hospital place isn’t like most other hospitals, there is no long corridor and like I said it is more of a communal house with a big family living space and a huge garden (a garden so big in fact that it is basically one giant vegetable patch…they even grow cabbages there and are looking into getting cows and chickens which has caused me to name the place “The Literal Funny Farm” to my mum’s annoyance…she really likes the place…can you tell I am not keen…). Still, despite the fact it isn’t like a  regular hospital I am still not convinced. Part of this I will admit is an OCD issue as the idea of communal living gives me all kinds of heebie jeebies what with sharing bathrooms and other areas, but also the problem is that I do not want to live surrounded by people with mental health problems. Obviously I do not mean this in an offensive way nor do I have any judgement against people with mental health problems, how could I, I am one, but there is something about living with other people with mental health struggles that I have always found difficult and potentially triggering. When you are insane yourself but live with sane people I always find it sort of gives you an idea of normality for you to try and follow however hard that may be, but when you are insane and living with other like minded people, as nice as it is to have people to relate to, crazy is in a sense a version of what is normal, and I have always found long periods of time in situations like that problematic which is what this would be. This hospital is not a place where people go for a few weeks to recuperate but a place people go for six months to a year to do serious long term pieces of work and I just do not feel ready for that, especially having just come out of a five month admission to a hospital only recently. To be honest I still feel like and want to feel like I am settling in at home but it doesn’t seem that that will be possible much longer for the sake of my parents physical and mental health…

Which is why I am asking you all this question today. What do you do or what would you do with a  person with mental health problems aka me, a person who is currently very much entrenched in their own lunacy but very much lost as to where to go? Seriously, I am asking you lot because of all the people in my life you are perhaps the people who, alongside my therapists and family members, know me best. After all you read my ramblings on a weekly basis (at least if you are a regular reader you do and if you are please know that I think of you as very special), therefore who would be better to answer this question? So, people of the internet, dear blog readers and lovely people who have just stumbled upon this blog today, tell me honestly, what do you think and where do you think I should go?

In my dreams I would ideally like to stay at home as I may have mentioned a million times but if that is not possible which do you think is the best alternative? Living all by myself in my own flat even when a mere hour of doing so in my own home went terribly wrong or living in a communal farm like area for people with mental health problems with a passion for growing cabbages? Or maybe you have a third option, who knows, all I do know is that I don’t have the answers and if any of you out there could help a mental out with a few words of wisdom, I really would appreciate it. I realise it is asking quite a lot for you to make a decision as to what happens at this next stage in my life but I wouldn’t ask if I wasn’t seriously in need of some good old fashioned friend (for I consider you all to be my friends of the highest quality) to blogger advice. 

Either way, whatever you lovely bunch decide or think, I am curious to hear your thoughts as right now being landed with this question all by my lonesome is quite the burden and is one I cannot carry much longer. So what do you do with and where do you put a person with mental health problems? I really don’t know, but I sincerely hope that someone out there has the answers as lord knows I need some. 

Take care everyone x 

Cabbage

5 Tips For When Mental Health Carers Go Away On Holiday

If you struggle with mental health problems, there is a high chance that you have some sort of carer in your life, someone who helps you get through the day, someone who supports you through the particularly bad times and stays with you when you need. Indeed, carers for people with mental health problems can feel like people you couldn’t live without because they are so integral to your daily survival and that is how I feel about my mental health carers, my parents, although mainly my mum, who had to give up work partly to look after me because having a real job and the job of looking after a total lunatic was far too much for one poor woman to manage.
So if carers are so vital for life, what happens when carers do the terrifying thing and go away for a while, perhaps on a much deserved and needed holiday? What do you do then? What do you do when your person isn’t there for a period of time? Well, to be perfectly honest if it were me, I would go into a total panic and start crying hysterically which is funnily enough how I have been reacting in this situation for as of today both of my parents are heading off to Cyprus on holiday for a week, a week in which I am going to have to find different ways to manage my survival.

So today, seeing as it is so scary to have carers go away and seeing as I am dealing with this myself, I thought I would talk about how to manage, for I think it is an occasion that requires some kind of plan and is not very much like eyeliner in the sense that it is something one can merely “wing”…

Tip 1 – Make a list: Over the course of any one day, a carer can perform a multitude of tasks and when we try to think about all these tasks all at once and how we will manage them alone, it can become overwhelming. For this reason I think the first part to the plan of action is to make a list of all the things your carer does for you or helps you with every day or every week so that you can tackle each hurdle individually and set up a solution for every single one rather than throwing yourself in at the deep end with the overwhelming task of simply “managing everything” by oneself. If you are faced with a week without your carer the prospect can seem daunting, too many hours and too many tasks to truly comprehend but if you break it down into more manageable chunks it becomes less intimidating and also allows you to anticipate what exactly is going to be difficult when left to your own devices. For example, before my parents were going away I made a schedule of my 24 hour day plan and have gone through my daily routine picking out any issues to solve to avoid them springing up unexpectedly like some demented and rather terrifying Jack in the box…Jack in the box surprises are never appreciated, especially when you are living with mental health problems without a carer, so make a list and anticipate those problems before they can become an issue.

Tip 2 – Look into respite care: Making a list of challenges and things you are going to struggle with whilst a carer is away is all well and good but there is a chance that even when that list is made, things are still going to look incredibly daunting and perhaps unmanageable even if you break it down. When this is the case my tip would be to perhaps look into various institutions or options of places that you can go for respite care. It sounds a bit scary and dramatic but all across the country there are houses and facilities available for times exactly like these when a carer about to go off galavanting and they provide an option or place to stay whilst the carer is away so that you can manage living without them whilst getting the care you need. Crisis houses and specific respite houses will be around if you do a bit of research, although with this one it is important to look up these type of options as early as possible. Crisis houses may have spaces available more last minute (although usually there will be some kind of waiting list so getting exact dates is never certain), but respite care often needs to be planned in advance. Getting funding for a respite placement is another difficulty so this tip is not one without its issues (although if I could remove the issues for you please rest assured that I would), but it is certainly an option to consider or something to look into if tip one has left you still feeling that the idea of living without your carer is unmanageable. Indeed, personally I would say that looking for and going into respite care when carers are away is a great, safe and secure option that I would be head over heels for and going for myself during this week but alas because of late applications, lack of funding and various OCD reasons (like sharing bathrooms) this option is not available to me at this time and we have had to look for alternate ways to get through the situation….for example….

Tip 3 – Look into replacement carers: If like me, you find yourself incredibly intimidated at the thought of a period of time without your carer (even if that carer is away on a well deserved holiday that you fully support them in travelling on), but have not been able to access respite care either for lack of date availability or lack of funding (please insert comment about how desperate this country is for funding in the mental health department here), or OCD like complications like me where staying in your own house is preferable, there may be the chance of looking into an option of hiring or getting care from a replacement carer who can come and help you out in your own home and indeed this is the option that I am taking this week. The problem with this option is that it can be expensive hiring a nurse from an agency to come and support you, but luckily or unluckily depending on how you look at it, my parents have been so desperate and so worried that they have found the funds somewhere. Perhaps there are places and people who are eligible to receive this kind of care from the National Health Service (I know that the government provides hired assistance for people with learning difficulties for example, just not for people explicitly with mental health problems), so certainly check first to see if you are eligible for that kind of care but if not and if you do have the funds, my tip here is to know that hiring a replacement carer for a period of time is at least a possibility you may not have thought of (I know I certainly didn’t know this kind of thing existed until my parents ran into issues with my care for this particular holiday) and certainly an option to look into if you don’t think you will be able to manage being home alone.

Tip 4 – Make plans: When faced with a week home without my parents I shudder at the thought and my teeth chatter together like Scooby Doo’s after he has been through a particularly intense ghost chase. Thinking of all of those hours by myself/even with a nurse is terrifying, so as well as making a list of things you are going to need to challenge whilst your carer is away, I think it is important to make a list of things you can do to break down the time and give you structure. Being told to “survive the holiday” full stop is far too intimidating, so the key is to break it down into things that you are going to do in order to survive. Maybe this means planning to go on a walk one afternoon or planning a morning of crafty activities (by which I mean the arty kind as opposed to the sneaky sneaky burglar kind…no burgling whilst carers are in or out of the country please folks) but whatever it is make a rough plan for every day to stick to. Then, instead of “survive 7 days”, you will be faced with smaller and more manageable tasks like “watch a film for two hours” or “knit a penguin tea cosy” (other animal shaped cosies are optional but not advised). If choosing activities for each day is too stressful maybe simply write a list of ways to keep yourself busy, tear them up and put them in a jar and then when your carer is away and you find yourself at a loose end pick an activity from the jar and get distracting yourself with it. Either way time used productively is infinitely easier to manage than time spent simply worrying about where your carer is or what you should do to pass the time, so get a timetable going and make some structure for your time!

Tip 5 – Have a list of emergency numbers: In an ideal world, candy would rain from the sky, Donald Trump would not be president and your time at home without your carer would go swimmingly without a hitch but unfortunately we do not live in an ideal world (clearly evidenced by the current inhabitant of the White house and the lack of strawberry gum drops falling from the sky) and so we must face up to the fact that when carers are away, there is the potential for things to go wrong. Therefore it is important to prepare for such circumstances in advance by making a list of phone numbers of friends/family, support services, carers and crisis teams who you can call should things go awry. Hopefully you will make this list, hang it up beside the telephone and never need glance at it for the duration of your carer’s holiday but just incase things do go wrong, it is vital to have people in place who you can call on for help ready and prepared.

So there you have it! 5 tips as to how to manage when your mental health carers go away on holiday or at least 5 tips that I will be using over the coming weeks to survive my parents’ jolly jaunt off to Cyprus (they are going for a wedding…I am sure it is going to be lovely despite the fact that a holiday for my carers abroad is both delightful and terrifying). Whether these tips will be helpful to anyone else out there in a similar situation I do not know but whatever the case I thought I would try to help my pals out there and hopefully I have.
When carers go away it is always going to be scary but I will keep my fingers crossed that with these tips and that by hanging in there together, we will be able to get through. I guess there is only one way to find out…let’s give it a go shall we?

Take care everyone x

CarersAway

6 Tips For Managing Your Self Esteem On Social Media

Recently, because I am struggling a lot with my mental health, I have not been posting much on social media, and the other week I went a full fortnight without posting on everyone’s favourite photo sharing app: Instagram. In the grand scheme of things, this is not a big deal at all, but in my head, after fourteen days still with no photo to post, I was in a right panic and felt like the apocalypse was bound to begin.
As much as I hate to admit it, my self esteem rests a lot on what people think of me in real life and online, and therefore a large portion of what I think about myself comes from things like social media. I know it is unhealthy, unhelpful and perhaps a little bit silly and I am ironically the kind of person to shake my fist at the sky when people get upset about the number of “likes” on their selfie and cry in dramatic anguish “The number of likes doesn’t matter and doesn’t dictate your value as a person”, but in the end I cannot help it.
After two weeks of not posting a photo I managed to convince myself that everybody hated me, was furious at my inability to post a reasonable selfie or a witty hashtag and so I resigned myself to the fact that this was the end. Solemnly I sat in my lounge and listened for the sound of an approaching mob, preparing myself for the hoards of villagers to arrive with their flaming torches and their pitchforks. After four hours of anxious worrying however, no angry villagers, no flaming torches and no pitchforks had arrived which was both a nice surprise and quite a shame as I had bought a nice bag of marshmallows to toast on those terrifying torches for a little snack before the riot started and I had a lot of hay and straw that needed tidying (according to Wikipedia: “clearing hay and straw” is what a pitchfork is used for…handy little farming fact for you right there…ooh and in other farming fact news, chickens lay eggs and sheep say “Baa”).

Turns out I may have got a bit carried away with the catastrophising (which is odd and so unlike me…), and I would imagine that there are some other people out there with buckets of anxiety and no buckets of self esteem who have been in similar situations. Therefore today I thought I would try and help my fellow pitch fork, flaming torch fearing, mentally ill pals out there which is why I am here to offer a few tips as to how to manage the anxieties that can be caused by this 21st century obsession with social media accounts and how to help keep your self esteem and the way you think about yourself away from that..

Tip 1: Know that trolls exist – Twenty years ago, the word “Troll” was used to denote a creature that likes to live under bridges tormenting billy goats. Nowadays though, if someone speaks of “trolls” they are more likely to be referring to those hate filled creatures on the internet (otherwise known as humans who have nothing better to do), who spend their time locked away in computer filled rooms spouting as much hate as they can to torment all the innocent people they can find (like the original troll definition they also are known to torment billy goats if they come across them, although billy goats are slightly harder to come across using the internet due to their lack of opposable thumbs, laptops, Wi-Fi and their preference of crossing bridges to googling cat videos.) Basically, these are people who are going to potentially post negative or offensive comments on your uploads regardless of what they are and the key here to remember is that it is NOT your fault nor is it personal. If you find yourself getting hate online do not simply accept that it is hate you deserve and be aware that as well as cool things and nice people, some real idiots exist on the web, but whatever they say is no reflection on reality. Seriously, if people want to be nasty they will say anything just to get a reaction and that reaction is all they are looking for rather than a desire to state the truth about you as a person. I once saw a troll commenting on a video of a penguin saying that “penguins suck” which I think perfectly illustrates my “some people are idiots,” as clearly penguins do not suck and I think we can all agree are waddling miracles of nature who deserve much love and respect. If you ever get hate remember that penguin hating troll and with that remember that some people just want to be mean for the sake of it, so don’t take any negative comments you might get to heart.

Tip 2: Remember that interactions are open to interpretation – One day years ago, my mum and I were buying a new microwave and in asking for my opinion of which one I preferred, my mother asked me “if you were buying for your own house which one would you pick”. By this she meant “I know nothing about microwaves. Do you have a preference or opinion you would like to share to help me?” What I heard however was “how long are you going to live in our house for? Please start thinking about buying microwaves and other appliances for your own place and start the process of moving out of the family home immediately.” I guess the point I am making here is that I can often read too much into comments made by other people, or indeed read them as meaning entirely different things to what the speaker intended, and I think people often do this online in social media where comments and likes are flying all over the place without the correct tone or specification of the meaning perfectly portrayed. Therefore whenever reading a comment or interpreting the meaning of a “like” online, always remind yourself to not get carried away with interpretations and that it is unlikely that a simple statement such as “I do not like penguins” on a photo of you and a penguin means something dramatic like “The entire foundation on which you base your life is wrong, please jump off a cliff”…

Tip 3: Be aware that people do things – There are periods of time when people use social media. Logically then, this means that there are some periods of time when people don’t use social media and it is vital to be aware of this fact if you, like me, often find yourself relying a little too heavily on social media as a source of self esteem. Every time I post a tweet, photo on Instagram or a blog on this delightful website you are currently visiting (cheers for that), unless it is well received within the first five minutes I am in despair about the fact that everybody hates me/nobody likes me anymore and that I am a terrible human, without realising that there are multiple reasons for silence on one of your posts, one of these reasons being that people haven’t seen it because they are not on social media. It isn’t as if people sit 24 hours a day, 7 days a week staring at your account in anticipation of your next post, ready to react seconds after it is uploaded, they do stuff and live their lives. If you ever find yourself panicking about the lack of likes on a post a few minutes after you have submitted it, try not to assume this is because you are hated and get carried away thinking all of the negative thoughts you can about yourself. Maybe some people won’t see your post at all but that is fine and the lack of interaction is more likely to be down to that than some flaw in your character. Whenever you get no likes just remember, people need to leave social media to do things like pee (an activity they are hopefully not doing whilst using their phones…)

Tip 4: Think about the long term – Life is unpredictable and none of us can be sure where we will be in ten years time even if we make very organised plans for our lives over the next decade. One thing I can predict however, is that any interaction you have on social media today (yes…even commenting on this blog…feel free to do that by the way…as long as it is nice and doesn’t make me cry), will not matter to you or mean as much to you in ten years time as it does right now. When you find that social media scores and numbers are getting you down and are comparing yourself to other people with a million retweets on that picture of a tortoise (people love a tortoise), imagine yourself living in a nursing home at 100 years old reminiscing about your life and adventures. I cannot guarantee that you will have achieved all you wanted nor that you won’t have some regrets over time, but what I can guarantee is the fact that if someone were to ask you at 100 years old what the highlight of your life was, it is not going to be “that time my Instagram picture got over 1000 likes”, and is more likely to be something along the lines of “that time I swam with penguins”, “that time I hugged a penguin” or something else people see as important…like marriage and the birth of your kids…that stuff. Of all the nursing homes I have ever visited people in, I have never heard of anyone reminiscing about the time they got retweeted by that guy from that band (and not just because twitter wasn’t invented in the time period being discussed). In the long term, likes and comments don’t matter, it is experiences, people and penguins that do.

Tip 5: Know that none of it is real – Ok, with this one I am going to hold my hands up and admit that I do not exactly know how the internet works, where it comes from or where it “is”. In my head however, though the internet is a real thing that we all use and experience in day to day life, it is not something like a cliff which would take serious crane action to remove and technically, with one flip of a switch, it could all be gone tomorrow. Of course nothing real is permanent and mountains and rivers can be “deleted” with enough effort, but few things aside from the internet that are so integral to our lives could be gotten rid of so easily. The internet exists but it could just as easily not and sometimes that also helps me when I find myself basing too much of my self worth on things I find on there. Every time you are upset or struggle with a comment or interaction on social media, perhaps it will also help you then to think about the fact that it makes no sense to base your self esteem on something so flimsy, for at any second the internet could just be over (LORD PLEASE DON’T LET THIS HAPPEN) and could all disappear at the flick of a switch…

Tip 6: Don’t forget the “real” world – I suppose this point is quite similar to the previous one but it is still important because as much as I want to encourage remembering that the internet is so fragile in it’s existence, I want to encourage people not to forget that the real world (you know…that stuff outside that you see when you peep out from under the duvet every few weeks) and the “real” life exists outside. Virtual and digital worlds exist for sure and they can be fantastic places to get lost in or even find yourself in, but though our world can be a bit rubbish at times, it is there and you do have a life within it away from social media, so tuning out of social media and into the real world is ok. Again of course, everything in the world is technically very fragile and not even mountains or oceans will exist forever, but in a way it is a lot more permanent and real in my eyes than a thumbs up icon or a few characters typed on a mysterious “mobile telephone” device. I know that shortly after that incident where I didn’t post online for a while, I met up with a friend and it really helped because it reminded me of what is actually important and that there is a life and dare I say it real people around as apposed to digital emojis and Facebook profile pictures, and sometimes those real people are worth spending time with too (unless their name rhymes with Bonald Wump. Never trust anyone whose name sounds like Bonald Wump.) If you are too caught up in social media scores and “friends” and what they all mean, take a step back and maybe glance around at the real world to remind you of the other things out there. Trust me, some of them are quite fabulous and worth keeping an eye on.

So there you have it! 6 ways to manage and look after your self-esteem/general mental health and wellbeing when you find yourself spending too much time on the internet or worrying about social media. I am not saying that these tips are going to make that bizarre side of 21st century life easy, nor am I denying that you will probably still freak out a bit about that comment and that photo with only 2 likes on it (don’t worry…I may have written these tips but I know I shall be doing the same), but I hope these at least help a bit with those stresses and anxieties, even if they are things you only remember once in a while.
Now if you don’t mind me, I am off to upload this blog to that trusty friend the internet and then I am going to spend the next few hours staring at the screen to see exactly how many people read it, how many like or comment on it and how quickly so that I know how much to value myself/hate myself for the rest of the day/generally get an idea of my worth as a human. PLEASE LIKE ME AND MY BLOG OR I AM NOTHING. NOTHING I TELL YOU…ahem…

Take care everyone x

SocialMediaSelfEsteem

The Importance Of Listening To People With Mental Health Problems

This Wednesday the 14th of March is a very special day. Why? Because as of the 14th of March 2018 this little blog you are visiting right now will be two years old. That is right folks, as of Wednesday it will be two whole years since the birth of Born Without Marbles, nay not birth, the hatching of this tiny little mental health blog egg that I had been keeping in my oh so sufficient plumage until that moment (and my my do I have a lot of plumage).

How crazy is that? Pretty crazy if you ask me as two years is a really long time…Like a baby can go from a screaming ball of tears to a waddling and talking human creature in that time and I would like to think that my blog has undergone a similar amount of progress.
Now, you are going to have to forgive me in this entry as I fear I am going to sound very much like one of those actresses in a ball gown making a thank you for my Oscar speech and I am well aware that two years of running this blog does not entitle me to any award, but still today I really wanted to thank all of you out there reading this for making this blog what it is and for putting as much effort into reading it as I put into writing it. Indeed, you readers have helped and supported me more than you can ever possibly imagine. “How?” I hear you ask “What have we done?”. Well dear friends, you have done the most important thing that one can do when living with or dealing with someone with mental health problems: you have listened, and I think that this whole listening malarky is a seriously underrated piece of malarky on the scale of all things malarky.

I know people have messaged me in the past, people who may know or care for people with mental health problems and who have asked me what they can do to support them and the answer I want to advocate today is to listen to them. That is it.

I think a lot of people often find that when they have a loved one with mental health problems they want so desperately to fix their problems and unfortunately that is seldom, if ever, possible.
Mental health illnesses and disorders are complex and difficult to understand, intricate beings (which is why I have managed to write about and try and explain them for a whole two years now without really scratching the surface as to their mysteries), and I think that when people see themselves as responsible for curing a loved one it is simply too much responsibility to take hold of. It would be like asking one person to fight a whole army of sword wielding warriors who will need a lot of strategy and weaponry to defeat as apposed to one lone soldier with a mallet (for we all know it is notoriously easier to get hold of a mallet than it is to get hold of a sword…seriously where do they even sell those? Are they available on Amazon? Not that I want a sword of course…I am just seriously curious as to how one would obtain such a thing were one to be in need). If you ever set yourself the challenge of you and you alone curing someone with mental health problems then I think you are setting yourself up to fail.

This doesn’t however mean that when it comes to mental health problems and people who are struggling with them that it is best to do nothing, and that is where this listening thing comes in that I want to thank you all for today.

You see, when you live with mental illnesses, you live with a constant stream of noise and mayhem between your temples and that noise is difficult to deal with. Maybe that noise comes from the barrage of thoughts that come with depression, maybe they are the intrusive thoughts from OCD or an eating disorder, maybe they are audible hallucinations from psychosis or schizophrenia, whatever the condition, whatever the disorder, there is a lot of noise, and keeping quiet about it is a sure fire way of making that noise louder.
If people don’t speak about the noise, the noise tends to build up, louder and louder until all “real” sounds are drowned out by the cacophony and therefore it is important to have an outlet, a place to talk about and release a bit of that noise, not necessarily because that will make it all go away but because it will slightly lessen the burden that staying silent will weigh you down with.
That is where listening comes in. When you simply listen to a person with mental health problems, when you allow them to be heard, you are helping them more than you could ever know because you are sharing in that noise and therefore are giving it a little less power. I think when a lot of people think about going to see a therapist they assume that they will have these big elaborate contraptions designed to zap the mental illness away or physically remove it by some grand operation when really that is not what therapists do. There are no magical contraptions (unfortunately) and there are no magical zappers (also unfortunately), instead therapists listen, they hear and take on some of the noise because when you speak out loud about something it loses power. That is why in Harry Potter everyone is so scared of Voldemort, they don’t speak his name and by keeping it locked up in their minds as this big scary word they increase the fear. As Hermione wisely once said, “fear of a name increases fear of a thing itself”, and that is exactly how I feel about mental illnesses. When we fear them and keep quiet about them, we give them more power to control us, we give them authority as some big terrifying thing never to be spoken about and alright, I admit it, they are terrifying, but unless we talk about them and get them out into the real world, they cannot be tackled. If everyone were to keep their illnesses inside of their heads then they would be kept in a place where nobody else could reach them but by talking about them, they become tangible, they become part of our world and thus are something that can be dealt with.

Now don’t get me wrong, I am not saying that talking about a mental illness is going to cure it instantly, if ever, as I know very well myself that after a lot of talking and a lot of therapy, things are still pretty terrible (hey, I am nothing if not honest), but as terrible as they are, at least I have an outlet to get them out of my head both in therapy and on my blog. I have people who listen to me and hear all the pain it is hard to speak out about and if you have been a reader of this blog from the beginning, last week, or even if this is your first ever entry (welcome!) you have been a part of that and you have helped.

So what do I want to get across today as we approach the two year anniversary of Born Without Marbles? Simply this: That if you want to help someone with mental health problems, the first and best thing you can do is to listen to them, and if you have been listening to me for years or just today, then I want to thank you for hearing and taking on my noise. Trust me I do not know where I would be without all of you wonderful people out there listening and supporting me and I want you to know how much I appreciate, and how much all people with mental health problems appreciate it when people listen, when they are heard and when others are there to share in the noise. From the bottom of my heart and from my head to my toes, today, my message is thank you for being there. You do more than you know, and more than I can ever thank you for in a mere blog post. I hope you all know that I am also here to hear all of you struggling out there and share in any of your noise as well.

So happy second birthday Born Without Marbles and to all readers and mental health sufferers alike, remember to keep talking and to keep listening, for doing so is one tiny tactic we can use to tackle the mental health demon army.

Take care everyone, and thank you x

Anniversary

The Difficulty Of Eating In Public When You Have An Eating Disorder

To the average person the idea of going out to eat is a pleasant one, and when someone suggests going out for a coffee and a piece of cake in a local cafe or out to dinner at a fancy Italian restaurant, the usual reaction would be “Why yes what a lovely idea”, or “of course! I think I shall order the lasagne”.
To someone with an eating disorder however, it is likely that the idea of eating food out will be a terrifying one, reserved to the realms of nightmares rather than sweet dreams, and if you are anything like me when it comes to life with my eating disorder, it is likely you would rather dance a tango with a giant hairy spider than go out to “grab a bite to eat”. It is for this very reason that when I was in ward round this week and I was told that I had to go out to a local coffee shop for a snack with a member of staff, I started to wish there was a chance to whip out my dancing shoes and go to a ballroom with an enormous arachnid instead.

It is silly really because like I said, as a rule people generally enjoy going out for food (even if, like my mum, that is simply because you don’t have to wash up at the end of the meal), but for me there are so many things to be scared of and I don’t think people realise just how many things there are to worry about when it comes to going out for something to eat when you have an eating disorder rampaging in your frontal lobes.

First off there is the difficult task of looking at a menu and choosing what you are going to eat. Alright you may have to make some food choices in the home or out at the supermarket, so choosing food shouldn’t be a sudden and new experience, but at least with that kind of thing you can plan far in advance and prepare what you are having yourself so you know exactly what the meal comprises of. When you are eating out however, the ability to plan everything and control each stage of the process is whipped out from under you quicker than a slippery yoga mat on a vaseline coated floor. Ok, nowadays most restaurants and cafes tend to have menus online so in a sense you can prepare for what you are going to attempt and do not have to make a choice on the spot, but even if you make a choice from an online menu you can never guarantee that what you decide on will be available in the branch of the restaurant that you visit in particular. What if you have your heart set on the roasted aubergine spaghetti and then get to the table only to be confronted by a waiter breaking the news to you that they are all out of pasta and severely lacking in terms of aubergine supplies? What if you get your head all psyched up to tackle a chocolate muffin with multicoloured sugar strands and then find that the muffin man got caught in a traffic jam on the way to deliver his cocoa rich rainbow sprinkled delights? HOW CAN ONE RELAX AND MAKE A DECISION WHEN THE WHEREABOUTS OF THE MUFFIN MAN AND AUBERGINES ARE ALL UNKNOWN?

Then again, what if the aubergine harvest has been plentiful and the chef can prepare your chosen dish? How are they going to prepare it? How much pasta will they use? Will there be oil? Will there be butter? How will it be arranged? Will the sauce be served on top of or mixed into the spaghetti? Exactly what kind of concoction should you expect? Also what if you can’t even get that far and can’t make a decision as to what to have in the first place, either because there are too many options or not enough safe ones? When it comes to people going to restaurants a little bird told me (a very little bird. about half the size of Tweety Pie to be exact) that people chose what they “fancy,” but again when you have an eating disorder and find most of your decisions controlled by calories and grams of fat, what exactly does it mean to “fancy” something?

Even when food is chosen and aubergines can be found in abundance, the worries don’t end because then you have what I would say is the hardest thing about going out for food and the thing that I worried about most after this news about a snack out had been broken to me: eating in public. Indeed the choosing from a menu worry wasn’t even what made me anxious about the excursion as when I went out for snack with my nurse I actually took the food with me to the coffee shop from the hospital (not that that is technically allowed in terms of coffee shop table taking up without making a purchase regulations, but when you are terrified and have an eating disorder you don’t give a damn about the rules!), so it wasn’t the menu issue but the eating in public part that was troubling me.

Truth is, when I eat I prefer to do it in private because even though I am well aware that other people have too many things on their minds and in their lives to have space to think about what is on my plate, I am always paranoid that everyone around is looking and judging me for every mouthful that I consume. Why do I care what random strangers have to say about my choice of snack of an afternoon? I have no idea. Why do I think that a business woman on her lunch break or a student cramming for an exam over an espresso and a laptop, care about whether or not I eat a hobnob? Who knows, but regardless of the reason, I do care and I care a lot. For other people I do not see the act of eating as something to be ashamed of at all but when it comes to me there is something so guilt and shame filled about it that the idea of eating in public is sort of how I imagine the idea of showering in public would feel to most people, aka self conscious and like you want to throw a sponge and curl up in a ball so nobody can see you.

No matter what you do or what you eat, it feels like everyone is staring at and judging you, even if you can see for a fact that others around you may even be eating more than what you have on your plate and are not actually looking anywhere near your direction. When I was out for snack there were plenty of people busy reading papers over plates far fuller than mine, yet still I thought that they were somehow looking at me with some kind of laser vision and thinking that I was greedy for attempting what I had before me. It was so bad that just to get through the snack I had to close my eyes and play that childhood game where you imagine that because you can’t see other people ,they can’t see you either (side note: it is surprisingly hard to eat a snack when you can’t actually see it…).
Somehow I got through it using my head down, eyes closed, just keep munching method but still it was a horrendous experience and one that I am not planning to repeat in the near future or ever if I can help it.

Overall then, though it would seem that the idea of eating out in public, either for a snack or a meal, is some kind of treat to be looked forward to, when you have an eating disorder, it really isn’t that simple a task nor is it a particularly enjoyable one either. Like I said, I know I for one am not going to be attempting such a thing again voluntarily simply because even without the ordering stress and malarky it is the actual act of eating in public and being judged (however irrational that thought may be), that causes all of the anxiety. A snack out in a coffee shop may be a piece of cake physically, but in practice I can assure you that it certainly isn’t! PLEASE DON’T EVER MAKE ME DO IT AGAIN!

Take care everyone x

EatingPublic

5 Ways To Deal With Weight Gain When You Are In Recovery From An Eating Disorder

If I had a penguin for every time I have heard someone say or have said myself “I want to recover from anorexia but I don’t want to gain weight”, I would have more penguins than exist on this planet and would therefore have to get the existing penguins to rapidly reproduce in order to make up numbers (which is why all the penguins of the world are probably grateful to hear that I don’t have to have a penguin for every time I have heard that sentence or else they would have a lot of egg hatching to do).
Admittedly, there are many sides to the Rubix cube confusing madness that is recovery from anorexia, both mental and physical, and there are a lot of fears revolving around all of them, but I think when it comes to recovery, probably one of the top three things most people worry about is the weight gain side of it all. Personally at least, I know that the fear of weight gain is certainly a big thing for me and is particularly relevant right now as in my current admission to hospital it is the forced and rapid weight gain that has ended up distressing me most of all to the point that I haven’t even been able to focus on any of the more long term mental health sides of the illness as I am too focused on the scales.
I know that to other people, my weight does not define me as a person and that the number that flashes up when I step on a little machine should not dictate the way I live my life but when you have an eating disorder, those thoughts are often automatic and knowing they are irrational doesn’t take them away.

Unfortunately, despite the fact that the weight gain side is incredibly hard, if you really want to recover from your eating disorder, the fear of weight gain is an unavoidable thing that will need to be tackled and that, if neglected, will never truly allow you to get back to a healthy mind and body again.
So how do you manage it? If you want to recover from your eating disorder (or even if you don’t and are in forced treatment at the moment…ahem), how are you supposed to deal with one of the most frightening challenges to face someone struggling with anorexia: weight gain. Well, if that question has been on your mind at all then welcome to a blog post containing some possible answers, because today I am here (wearing a bow tie no less because I am fancy and have dressed smartly for you on this occasion), with 5 thoughts to help you deal with weight gain when you are in recovery from anorexia. So without further ado, lets get into it *straightens bow tie and gets down to serious business*…

1. Weight redistributes – When you start the re-feeding process after depriving yourself of adequate nutrition for a long period of time, your body will have no idea what the hell is going on or what the hell to do (something I explain a little more in this post here: Five Things You Need To know About Re-feeding During Eating Disorder Recovery). Because of this confusion and deprivation, when your body first starts gaining weight, it will want to prioritise on life saving things first (handy that) and for this reason a lot of people find that weight gain in the early days primarily goes to the tummy area so that the body can focus on repairing things like a dodgy liver or an out of whack kidney. This has happened to me multiple times (including right now) and understandably it can be quite distressing as your body can start feeling out of proportion, but what I want to emphasise with this point is that even though weight may initially go to life saving organ places, it WILL redistribute and spread out eventually as long as you hang in there and give it time. Restricting your intake to lose the weight again will only make this process more dramatic, so the key is to stick with it and always remember that redistribution will happen!

2. You are gaining weight you shouldn’t have lost in the first place – Whenever you see or hear an advert for a weight loss diet club, the people will emphasise how good it is to have lost the weight they did with whatever weird low carb eat upside down with a pineapple up your nose (difficult task, would not recommend) diet they have been following and therefore the idea of gaining any weight back is automatically “bad”. Culturally this has then created this false idea that the act of gaining weight is a bad thing in itself however this is not always the case, especially when it comes to recovery. Thing is, when you are regaining weight you have lost through an eating disorder, you are actually not gaining weight but are regaining parts of your body that you should not have lost in the first place, so whenever you see that number go up on the scale remember, it is not weight gain in the negative way that the diet clubs claim it to be, it is just re-finding a little puzzle piece of the wonderful you that may have been lost to this terrible illness.

3. The alternative is worse – I will hold my hands up and admit it: weight gain is scary. Then again, if you think about it, isn’t the alternative, aka death (for anorexia is the mental illness with the highest mortality rate of all), even scarier? “I am not that bad” I hear you cry, “I am not going to die of anorexia”, but hey, that’s what they all say and in a lot of cases, it turns out not to be true. Anyway, even if you are one of the fortunate souls whose body somehow manages to survive the abusive nature of an eating disorder and live, what kind of a “life” is it to spend your days tortured and tormented by a beast in your head? Weighing things up then (no pun intended…actually screw it…with me the pun is ALWAYS intended), although weight gain is scary, when you are going through the process it is important to think of the alternative, and remember that that alternative is a hell of a lot worse.

4. Weight gain is not as visible as you think – If you are like me, when you stand on the scales and see that the number has gone up, you can immediately see where that extra weight has gone to. This however, in the nicest possible way, is utter nonsense because in actual fact changes in body weight are no where near as visible as we might think. I remember one week when I gained one pound and instantly I saw my physical appearance change into something unrecognisable to the person I had been before that pound. Know what everyone else saw? Nothing. I would be lying to say that no weight gain is ever visible (as someone who has just spent 5 months in hospital I can guarantee I do look very different now), but my point here is that weight that you gain every week at weigh ins is not as visible as you might think and if you think you can see that pound or two of extra weight then it is simply proof that your eating disorder is distorting your vision. Don’t listen to its lies I say!

5. Getting bigger doesn’t mean you are big – If I ran a banana farm and after the harvest found that I had 1000 bananas, that would be a lot of bananas (and I would clearly be one hell of a good banana farmer). In that circumstance then, 1000 banana would be the definition of a lot of bananas. If the next year I then had 100 bananas would I think that I had hardly any bananas (trust me I do have a point here and am not just trying to send subliminal messages to you all about my secret dream to become a banana farmer). If however I had 0 bananas one year and then the next had 100, 100 bananas would be my definition of “loads of bananas” and that is what it is like with weight: aka all relative. Just because you are gaining weight and getting “bigger” it does not mean that you are big. You might think “I am huge” because the number on the scales has gone up but what I am saying is that just because the number has got higher it doesn’t mean that number is big. 100 bananas only looks like a lot of bananas if you previously had no bananas, just as a certain number of kilos only seems “huge” because it is bigger than the nothing you had previously and every “high” number you fear only seems high because you are looking at a lower one first. Getting bigger does not mean getting big therefore and if it was the other way round (aka the 1000 banana situation first) then your “high” number would be someone else’s low in a different situation. Whenever you see you have gained weight and feel like your weight is high, remember the bananas and the fact that a high number only seems big because it is bigger than the previous number and it is not that the number is big in itself.

SO there you have it! 5 thoughts to help you manage the fear and stress that is the weight gain side to recovery from an eating disorder! As always I am not saying that this blog post is going to solve the problem, nor will it probably make gaining weight any easier, but these thoughts are at least important and sometimes helpful/comforting things to bear in mind when the voices are getting a bit too loud for comfort and you have no arguments to fight against them. These thoughts are therefore your arguments against all of those bad thoughts, your weapons for the recovery battle, so take them brave soldier and use them wisely to outwit that cunning eating disorder who is trying to fool you into making weight gain seem like a bad thing.
In the meantime, if you are someone struggling with the anxiety ridden process that is gaining weight, please know that I really do feel for you as someone who has gone through the process multiple times myself (and is still going through it today), and I hope that this blog post has perhaps helped a little bit. Remember, recovery and weight gain is hard but losing your life to a cruel demon in your mind is far worse.

Take care everyone x

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